Residual thymic tissue

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I had a CT on my chest w/contrast. My GP said I needed to get an echocardiogram ( which I had at the ER already too and they said it was fine) none the less, he seemed mildly concerned with the following statement from my CT scan. Anyone have any input? 

‘Mild hazy soft tissue density within the anterior mediastinum, favored to represent residual thymic tissue without a discrete mass appreciated. No axillary or supraclavicular adenopathy.’ 

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  • Posted

    I had the same thing noted after a ct scan on my neck, though it only showed to top of the mediastinum but notes the same as yours. I have no idea what it means but since 2010 after an episode where o thought I was having a heart attack, suddenly my left side anterior jugular vein and the upper subclavian vein that runs behind my clavicle engorges in and out as I breath and if I bend over it looks like it's going to explode. None of the doctors seem concerned but I know something is wrong. I have lost faith in the medical doctors. If you don't have something easy to figure out, then it's all in your head in your crazy. So tired of it.

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    • Posted

      They have recommended me to a cardiologist for an echocardiogram. Said it could be nothing, or possibly thymic tissue that came back. He explained to me that you are born with that tissue in your heart and it goes away as we get older. My doctor said he has had patients with thymoma issues and if it got bad they had the tissue removed. I asked him if fatal and he said no.  Look up thymoma to see if you’re having any symptoms. I wasn’t really having a lot of the symptoms myself. I’m mainly going to cardiologist because I have a high resting heart rate and even when I just go up the stairs walking my rate shoots to 175 and I get out of breath, I’m only 29 and not out of shape - so this is not right and needs to be addresssed for sure. I showed my nurse friend the note and she said she has seen it on X-rays before too and said the same as doctor, it’s either or something or totally nothing. I would talk to your doctor again about it. Sometimes thymic issues don’t even show up until someone has an X-ray or ct scan for something else, and found by accident, which was the case for me. I’ve had an ekg, ct scan and X-rays and they claimed my heart was good at the ER but my new GP is playing it safe by sending me to an actual cardiologist. 
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    • Posted

      Also, go to another GP, I have gone through 3 this year. This 3rd new one actually seems to give a s**t about finding what’s wrong with me. It’s tiring and costly, but what’s more important than your health...
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    • Posted

      I have also been to cardiologists and get regular echocardiograms and EKGs. I get palpitations, short of breath, my heart rate jumps when I get up from laying down and when I climb stairs about 30 or 40 beats per minute up. My heart also beats too hard, it pounds. It all just happened one day in a minute and I can remember everything. I've had a CT angiogram and my heart arteries are clear. I hope you get some answers soon and everything works out for you.

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    • Posted

      That is really crazy, and yes everything happened to me practically overnight too, ongoing for 2 1/2 weeks. I do have some other issues going on, but the heart rate is one of the worst ones. Hopefully we both get to the bottom of it eventually. 
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    • Posted

      I'm going to look that up and see if I have the symptoms that go along with that. I wonder if that extra tissue could be pushing on a vein of mine and causing it to engorge up farther up my neck. I've been dealing with this for 8 years and now I'm just labeled as a crazy hypercondriac and I'm really not getting any help. I'm still walking around and I'm not dead so they think that there's nothing wrong with me but it has affected my life in every way. I hope you and I get answers too. I was only 4 years old when this happened and in Good health but I did overexert myself during cross-country skiing in which my heart was pounding way too hard and I wonder if I did something to myself cuz after that I developed a kinked artery in my left side of my neck. I'm not going to stop fighting until I find out what's wrong.

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  • Posted

    Hey! Did you get any answers? I recently had a similar issue where my heart rate increased to 160 walking up stairs despite previously being a healthy and active 34 year old woman. Went to the ER where they diagnosed me with POTS. I looked at my CT chest results and also saw I have soft tissue in the anterior mediastinum, possibly residual thymic tissue. I have had other issues myself, including proximal muscle weakness (worse after rest, improves with activity), muscle soreness, and then some signs of autonomic dysfunction - constipation, occasional slightly slurred speech in the morning only, and then a positive ANA and anti dsdna. On a mission to find out what is going on, though I am expecting a lupus diagnosis in a way but also concerned for thymoma and associated LEMS. Curious to see if your story sounds similar and what you found out!!

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