Returning threadworms for years....

hi, I know this is a very old conversation, but your story is interesting. I’d like to know did you have any success with all of this as I’m at the end of my tether

Hey, I'm a canadian momma of two and in the same same boat aswell. I also have a very healthy diet and good gruming. I've been fighting this for years. the worst part for me is the emotional side. at night I fell like they are all over my body, not just my anus. I feel them in my vagina aswell. This kills my self esteem and sex life... 

Hello. I'm really sorry to hear how you feel. I am a mum of 3 too and have had them in varying degrees for 6 years. Please don't lose hope - I am adament to find a cure this year which I will share with everyone. I know how hideous this problem is but trust me, you're not alone x

Hi to everyone on this post, I've been infected since July (for 8 months) but have had no let up, not even for a day, since the start of November. And this is despite vast quantities of mebendazole and currently 400mg of Albendazole weekly which I got (at some expense) after seeing a consultant privately. I have read of a few long term sufferers who were cured with albendazole so I had such high hopes but it is simply not strong enough to break the (daily in my case) cycle. My symptoms subside a bit for 3 days then return as abundant as ever. I am not a remotely depressive person but I am sinking into some kind of dark place with the realisation that a prolific & relentless infection can actually destroy your life. I've just come back from my GP (where I basically broke down in floods) who finally agreed to refer me to the hospital for tropical diseases but after reading some of the posts in this thread, I do not feel very positive about the treatment they might give me! I have a couple of points & would love to read any comments/answers!

1. Retroinfection

I sometimes think this is the root cause of the continuing problem. Maybe some of us have bodies which lend themselves to this occurring more successfully. I spend hours showering each day, washing the area with soap free cream VERY thoroughly, but every day, especially when the infection is at it's worse periods, I still have debris (little white flakes) in my underwear indicating that I did not manage to wash all the eggs away (because this is the residue the hatching eggs leave behind). I worry that every single day, hundreds or more tiny worms are getting back in resulting in a parasite load that is so heavy, medication can only shift a portion of it! In short, the reinfection rate is far outweighing the die off from the meds.

2. I am really concerned about my marriage if I have this for years. Do most people with this infection manage to have sex with their partners? I have avoided it because I know about these eggs still being on me even after several showers. I spend my life now acting like someone with OCD in terms of washing & hygiene, so having sex with threadworm eggs flying around everywhere just seems crazy... Not to mention the fact that it's totally impossible to feel sexy with this infection... Am I being overly paranoid? OTT? How are other people coping with this aspect? I can't find much about it on chat forums.

3. Alcohol & sugar

I adore my booze but I gave it up before xmas, despite consultants saying there's no known link, because I perceived that I would get a spike following my usual weekend wine intake. I have also given up sugar. 2 weekends ago, symptoms were fairly reduced & I was at a friend's for dinner & decided to fall off the wagon & have 3 glasses of wine & a choc brownie with ice cream. For a whole 9 days after my symptoms were massively increased.

Does anyone else find this?

Any help/info/comments much appreciated.

I could have written this same post myself. My family (me, my husband and two year old daughter) have had threadworms for just over 6 months. Itchy bums, thready poos and white dots/threads in underwear etc. We referred ourselves privately (GP was as good as useless) to a Dr in Great Ormond Street and saw him 3 months ago. We were all prescribed albendazole 400mg once weekly (daughter half dose). We've just finished the course and guess what.....we're all still infected. I emailed the Dr and he replied, 'I don;t believe that you are all still infected after a 3 month course of albendazole'. He also attached a document, that he said he got off his colleague in London hosp tropical diseases, that explained how we should be showering often and using wet wipes etc. Also it could be that the worms are gone and we're just irritated. Hmmm.....as if we haven't been showering 2 to 4 times a freakin' day over the last 6 months! I feel like I'm banging my head against a brick wall. Please tell me that someone has had some joy or magical breakthrough with this parasitical atrocity.

Yes, I've tried it all...nothing works on me! Sorry. 

Hi Anna, I cannot fathom having these things for years! Im a mom but didnt catch them from my kids. My husband isnt itching but taking reeses every 2 weeks so we're hoping he keeps it away. Dr tested my stool, I swear I could see them. Found nothing. She did give me 2 doses of prescription meds but with 2 weeks between, they were back. I quit contacting her and feel Im in this alone. Ive figured out that I cant wait 2 weeks before taking next dose of pin worm medication. Its just a few days after i take a dose that i can feel them again. Ive been taking about a tablespoon a day of Diatomaceous earth in my coffee and a natural cure with cloves I ordered online. Maybe these are helping? Using vasaline and diatomaceous earth as a plug continuously. Read all the "what to do's" you and others have so kindly posted...and im doing it all. Plus, I wash out laundy baskets with bleach after starting wash everyday when i do laundry, and use plastic tubs rather than baskets, so no holes, so nothing can fall out. Im exhausted from cleaning and my hands are raw. Will I hurt my liver if I just buy a huge bottle of pyrantel and take it more often? I read about someone taking double the dose 3 days in a row, waiting 5 days and doing that again and possibly again for 6 weeks. I also read they can live inside a human for 3 months! I believe I inhaled eggs cleaning. Could having inhaled them make them somehow behave differently in your body? I appreciate any feedback. Im so very sorry. I feel like I'm in a nightmare sometimes, I can only imagine what you've been thru and it's never ending.

HI, Its hard isn't..Not sure what to advise as i have not had a cure and still suffering. As ive said in previous messages i do think some people (us..) is more susceptible to them, We must be! As no one else get them in the household. Clean house, wash everything a lot etc..Ive seen countless doctors and they cant help. Ive eaten lots of Ovex and as a precaution  ive had my liver tested to just incase of any damage of eating so much...It was all ok though! Not sure what to suggest then keep going..Ive tried all the herbs, garlic, health diets, pumpkins seeds etc...Nothing has helped me so far....sorry that i cant be to more help...A

Hi Anna

After reading this thread I feel both depressed but also it's comforting to know I am not alone. I have had worms on and off since aged 7 and I'm now 32!!!

I feel utterly disgusted by it and very ashamed, I dare not tell my partner as I just feel so dirty, infested .. So unattractive this is ruining my self esteem.. I too have been taking lots of over since August this year and I've also tried the herbal stuff but nothing works.

The longest I've had with no symptoms is 2 or 3 weeks then i get the dreaded crawling feeling inside my bum and my heart just sinks!

I know people are saying they had no luck with the hospital for tropical diseases but feel this is my only hope

The thought of living with this for the rest of my life makes me want to kill myself and this is even worse because doctors won't believe me that I've still got the worms after all these meds.

If someone could please reply I would really appreciate it

Feeling very alone

Sorry to hear what you are going through. I know the feeling though! I have been to the tropical hospital in London, 3 times.....Ive seen 2 different doctors there and no luck im afraid..I was put on a stronger medicine for a 8 weeks period, ive now tried this 4 times and they always come back!! Even the doctors are baffled...As ive said before, i think some of us are more susceptible for them and some are not. I did tell my husband after 4 years of having them. It really got me down and he was a great support and i was so glad when i finally told him. If you want to talk more please feel free to message me. TAke Care, A

Hi Anna

Many thanks for your reply... yes I guess some of the anxiety is the fact I feel I am hiding a dirty secret... It's awful.. not sure how to message you privately ? Can you write me back pls.. maybe we can swap emails ? X

Louisa, so sorry youre going thru this too. I found a Dr who i think is listening but im not sure her protocal will work. Ive taken otc pin meds daily there for awhile and no difference. Shes put me on the reeses otc and ivermectin. I will keep u posted especially if this works. She confirmed for me that once youre infested the can migrate all over inside, but will eventually die without being in the intestines for food. My fear is they lay eggs where ever they are so i have them squirming everywhere. My body is immuno compromised and im just not regular so i dont expel them promptly. But meds should kill them whever they are i understand, but maybe everything the medical field feels they "know" isnt enough to really irradicate them in my body. Im so depressed and have to wear my game face for family, especially for those that dont know.

Sorry for the run on paragraph. Ill post when im done with meds or when i no longer itch, whichever is first.

N