Returning threadworms for years....
Posted , 76 users are following.
HI, I've had treadworms for almost 5 years now! Ive been eating loads of Opex and Mebendazole. I tried the pumpkin seeds and eaten garlic every day for months...I've also gone up to the Hospital for Tropical Diseases In London to see a specialist for the last 8 months....All their treatment has not worked either. It always comes back! My husband or my two children have never had it and we dont have any pets....I keep a very clean house and im so careful with my hygiene...What can i do to get rid of these? Help Please.....Its driving me insane!
4 likes, 290 replies
vicky05201 Anna196444
Posted
Hi iv signed up to this just to be able to speak to people suffering just like me. And to give and hopefully receive a bit of advice and support. Iv been suffering with this horrible evil things since I was a toddler. Throughout my childhood I constantly picked them up (my 2 brothers had them from time to time nowhere near as much as me). My mum gave me ovex a lot throughout my childhood and I used to be inconsolable when suffering with them. I basically still have them as an adult and suffered 9 months when pregnant with my daughter because I couldn't take ovex while pregnant. I suffered a miscarriage prior to this pregnancy so didn't dare to take ovex while pregnant incase it harmed my baby. At the minute I am at a complete loss as to what to do. I feel so depressed and fed up with my life. I feel like I'm not normal. I clean my hands constantly I'm in nowhere dirty or unhygienic (I was as a child as typical children are and bit my nails didn't wash hands enough etc). Iv been to doc the other week as couldn't cope anymore. My mum came with me for support and I told the doctor everything while feeling extremely embarrassed. She has told me to do the cello tape test and send off a faeces test. She was very sympathetic but from reading a lot of these threads docs can't do anything anyway! My 2 year old daughter has picked them up a few times from me which makes me feel like the worse mum ever! I'm constantly paranoid she's gonna get them again and if she cries in night I pray she doesn't have them. Iv had stupid thought about suicide (I wouldn't do it to my family and leave my child without a mother) but I do have silly thoughts when I become so frustrated and down about this. If I could pay 100 of pounds out a month every month for something that would prevent me from getting them I would I would do anything.
vicky05201 Anna196444
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I have suffered with these things my whole life (since being a toddler in nappies). I have signed up to this for advice and support. I am 30 years old and taking ovex at least once a month. Not convinced it works anymore. My mum gave me a lot of ovex as a child cos I constantly suffered with them. I'm clean and don't bite my nails constantly Washing my hands. I suffered for 9 months when pregnant due to not taking ovex as not supposed to when pregnant and I had a miscarriage before that pregnancy so didn't dare risk it. Iv been to docs other week was extremely embarrassed my mum came with me for support. Doc wants Sellotape test done and faeces sent in. I told doc I'm so depressed over it. I feel l
vicky05201 Anna196444
Posted
Here for support and any advice kind words. At my wits end had them my whole life, I'm 30 with a 2 year old daughter. Feel really depressed and like a bad mum. I'm hygienic and nothing works. Not sure of iv become immune to ovex I take at least once a month scared am damaging my liver worried my daughter is gonna keep getting them off me! Doc has told me to do Sellotape test and send poo in. Have mum and partner for support but they can't ever fully understand how bad it makes me feel. Think I have bad anxiety. I panic every time my daughter cries in night that she has them. I feel almost suicidal over this (I have silly thought when I'm feel desperately low over this) but I know I would never leave my daughter. How do you who keep suffering carry on? I have really bad days when I feel like I can't put on a brave face anymore. Iv trying DE and grapefruit seed extract raw carrot Etc. Having a bad day today
chanel144 vicky05201
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vicky05201 chanel144
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vicky05201 Anna196444
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laura27275 vicky05201
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Hi Vicky05201
I know exactly how you feel. I'm not coping at the moment either. I want to get to a place where I feel I have some control as I'm putting on a brave face constantly but dying inside.
I'm scared to be close with my partner and terrified my son will catch them.
It's nice to know there are people on here who understand as can make you feel quite lonely.
vicky05201 laura27275
Posted
Until I began googling about it I wouldn't of dreamt so many were in the same boat as me! And I agree it makes me feel less alone which really helps! I had a really bad day (emotionally) yesterday but luckily had my mum to support me. I feel a lot better today. Do you take a lot of ovex? The thing thats worrying me the most at the min is whether I'm damaging my body keep taking it. But I want to take it whenever I feel that I have them (which is like every 2 bloody weeks) to try and stop my daughter catching them from me and to let me forget about them for a bit. X
laura27275 vicky05201
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No it's shocking how many of us there are and yet doctors seem oblivious to the situation. It's great to talk to someone in the same boat!!
Last year I did a long ovex protocol, about three months of taking two a day for five days, one week on one week off. I had mucus and itching the entire time, stopped and two months later another bloody worm appeared. I've tried all the vet medications ect.... I had lots of blood tests last year and I've not done any damage.
Have you ever gone a longer period between seeing a worm? The timing of mine can be so random. I also had a bad day yesterday, when I realised after 6 weeks they are back and made me terribly itchy all day. I currently use tea tree oil and Vaseline covered gotten wool, insert it into my bottom and hope not to encounter or feel one of them. I'm taking ovex again.
I would be happy if I could get to a stage where it's not dominating my life. If you ever need to talk I'm here
vicky05201 laura27275
Posted
I used to get them a lot as a child and I think then it was quite random with the times between having them and not for a while. But for me it seems to have got worse since iv become an adult and this past year or 2 it's the worst it's ever been! I feel them so take an ovex tablet and it can be as early as 5 days or up to 3 weeks later I start to feel them again! I don't physically see them in my stools but like I said to the doc I'm 100% sure it is them (I have seen them before won't go into how lol) but the sensation that you feel when you have them is like no other thing and I can swear on my life it is them no mistaking it! I am in 2 minds whether the ovex is not working at all or my body keeps picking them up but either way am frustrated with it all. It's so upsetting when it's affecting my life and making me feel so depressed! It also puts me off having anymore children as I'm
Constantly paranoid my child is gonna get them off me and if I get pregnant again I won't be able to take ovex for a full 9 months
im here for anyone that wants to talk I know how lonely it can feel x
Anna196444 vicky05201
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Im sorry to hear that you are suffering to. As you can see from this post you are not alone! There is so may of us having this issue and im so glad i found this forum years ago. Ive actually met up with another sufferer from this forum to have a chat and ‘compare’ our problem. It was actually really nice to meet her over coffee as having Thread worms makes you feel very alone and it’s a tabu problem to speak about to any friends or family! Ive suffered for a very long time to and ive tried numerous options and I ALWAYS get them back! (Sorry not to be more positive) Been to the tropical hospital in London 3 times and i am welcome back there at any time but as they cant really help me i dont see the point to do so. I have done numerous stol samples and also sellotape test! Some came back negative and some positive! I have had my liver tested due to the amount of Ovex ive eaten over the years, The test came back just fine. Ive tried different diets, less sugar, detox, garlic, DE, pumpkin seeeds, well you name it and ive tried it!! I get them every 6-8 weeks roughly. I normally take an Ovex and they disappear for a while but always comes back sadly! Ive kind of ‘exempting’ living with this condition....Not sure what else i can do? It took me a long time to tell my husband and when i did it was a relief to ‘share’ the news! He took it really well. I dont talk about it anymore when for example i get them. I just keep it quiet and get on with it!
Im also very clean, keep a clean house and have no pets. Don’t bite my nails.....My husband and two children have never had it, luckily! So the reason why its always just me getting them back? I cant work it out!
I’m sorry not to have more positive news for you all but ive kind of learnt to live with them...how sad that may sound!
Feel free to message me whenever you want to talk.
Anna
Anna196444 vicky05201
Posted
Im sorry to hear that you are suffering to. As you can see from this post you are not alone! There is so may of us having this issue and im so glad i found this forum years ago. Ive actually met up with another sufferer from this forum to have a chat and ‘compare’ our problem. It was actually really nice to meet her over coffee as having Thread worms makes you feel very alone and it’s a tabu problem to speak about to any friends or family! Ive suffered for a very long time to and ive tried numerous options and I ALWAYS get them back! (Sorry not to be more positive) Been to the tropical hospital in London 3 times and i am welcome back there at any time but as they cant really help me i dont see the point to do so. I have done numerous stol samples and also sellotape test! Some came back negative and some positive! I have had my liver tested due to the amount of Ovex ive eaten over the years, The test came back just fine. Ive tried different diets, less sugar, detox, garlic, DE, pumpkin seeeds, well you name it and ive tried it!! I get them every 6-8 weeks roughly. I normally take an Ovex and they disappear for a while but always comes back sadly! Ive kind of ‘exempting’ living with this condition....Not sure what else i can do? It took me a long time to tell my husband and when i did it was a relief to ‘share’ the news! He took it really well. I dont talk about it anymore when for example i get them. I just keep it quiet and get on with it!
Im also very clean, keep a clean house and have no pets. Don’t bite my nails.....My husband and two children have never had it, luckily! So the reason why its always just me getting them back? I cant work it out!
I’m sorry not to have more positive news for you all but ive kind of learnt to live with them...how sad that may sound!
Feel free to message me whenever you want to talk.
Anna
laura27275 Anna196444
Posted
Hi Anna
It's so nice to be able to openly chat about this issue. It is so baffling!!!
My partner is very supportive too, but it's nice to talk to people who know exactly how it makes you feel.
My son has never had any obvious signs of having them nor my partner, we all get treated just incase.
I'm trying to accept it while still trying new methods to control it. This time the itching has been worse and almost constant where as before I've had weeks of no real symptoms before the next appearance !
It's good that we can compare symptoms and ideas here!
vicky05201 Anna196444
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Thank God for this forum! And thank you girls for replying to me! Jut been in tears after speaking to nurse on phone who basically said I'm imagining it all because my tests came back negative. It's so frustrating when people think you are going mad and imagining things! Have any of you girls lost weight? I'm losing weight and don't know why. Not sure if it's connected or just cos I'm so stressed and down lately. Xx
laura27275 vicky05201
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Oh Vicky I feel your pain and frustration.
Yes I've been treated like I'm some sort of fool. Was it a stool test or a tape test? The tests aren't very reliable, hit n miss most of the time!!!
I intend to bring in an actual worm next time I see one then they can't deny I have them.
I used to think Doctors knew everything but now I know they have limited knowledge of certain conditions. Don't give up Vicky. X
Anna196444 laura27275
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Ive not lost weight over it, could it possibly be the stress?
Ive also had doctors asking me if it could be something else then worms..They find it difficult to believe sometimes as its quite unusual to not get rid of them after taking Ovex.
I have seen the worms in my stool and when i look at a mirror (when they come out at night!). I also made sure when sending the sample in, a worm was in there...I did do a few tests when i had worms, before taking the medication, and the sample came back negative!!!!????? That is impossible i said to the doctor as im 100% sure i have them. So hence the other test where sent with a worm inside it!!
Anyway, let me know how you get on.
Anna
vicky05201 Anna196444
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I'm really upset with the doctors. Think I'm going to change doctors. I asked for the doctor who I saw at my first appointment to ring me back and instead a nurse rang me and basically said the test was negative and the tests are very accurate (I did Sellotape and stool) I tried to argue wit her and said I was adamant they are threadworms I'm not stupid and I wake up in the middle of the night with them. Her reply? "Sometimes when you are in bed you can get warm and a bit itchy!" And at end of our conversation she said "forget about worms!" She also used the word "imagining". She also said she wasn't worried about my weight loss. Iv given up with doctors it took me all my strength to go and speak to them due to the fact I was mortified about having to speak about it and all they have done is made me feel worse! It's really affecting my mental health Iv been so down and stressed these past few months. But thank you for all your advice, i am gonna accept Iv got to live with these things probz for life but not gonna be scared to take the ovex when needed now even if I have to take ridiculous amounts throughout my life. X
Anna196444 vicky05201
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laura27275 Anna196444
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I just wonder, seeing as they must know all about these creatures, is there anything that can aid elimination eg... Garlic and Vaseline on the bottom at night, that sort of thing?
Anna196444 laura27275
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They only thing they tell you is that taking the medicine mebendazole for the 6 weeks, keep yourself clean, wash and dont bite your nails ( I dont anyway)....ive tried this 4 times now and it still comeas back. They ask you not to try garlic, Vaseline , DE etc as it dosent work!
They are clueless as well as it haven’t worked for me. They don’t realise that so many people is suffering. When i first went in to the hospital in London i saw the top Professor and he really calmed me and i was so positive when i left that day thinking, I will get rid of these once and for all.... so 3 months later when i got them back i went up to London again and he said: not to worry i will give you a stronger dose this time, they will go...
Tried the stronger dose and guess what? They came back...
So after having gone up there 3-4 times i have given up.
They just say, one day they will go and when your children will grow older they will not bring home germs etc.....But i have told the doctors that it cant be my children bringing germs home as they never have had worms in 10 years!!! Crazy!
I think im just very prone to them and thats why it’s only me in the family getting them back..
I have tried all sorts of diets and garlic etc and it has not worked for me, sorry!
X
charli23219 vicky05201
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Hi Vicky! Yes I lost weight but this was down to stress I think as o probably wasn’t eating as much due to this. I was also looked at as abit of a crank when I seeked help from professionals! I was assessed by a physiatrist when pregnant but they agreed I was Saine thank god or social services would have got involved! How terrible is that! I even included a worm in my stool sample ( which my partner witnessed, he even thought I may be cranky). However the sample when missing at the hosp!!
Keep your head High & don’t listen to other people, you know your body!
kate38193 Anna196444
Posted
I've never even bothered with those tests because apparently they only test for eggs. Really stupid but you could have 200 worms on that tape but if there aren't any eggs then the results will come back negative. Seems like a lot of effort for not much reason. You would think that midway through 2018 there would be a more advanced way to test for worms since they're "so common" but no one cares. We're pretty much out here fending for ourselves.
nina.42 vicky05201
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hi, I’m wondering if you found a cure? I’m suffering exactly like you did it when you wrote this post. Three years now on and off and before I originally started getting symptoms I was losing a lot of weight and lost over half a stone in a short space of time. Constant bad tummy, then I thought the wriggling and then it all started. Tried every medication