REZUM--HAVE YOU HAD THIS DONE???????

Hello my Friend

Glad all is going well and your doing great. You will see more improvement as time goes on.

All the best.....Ken

Motto,

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Between 4 and 6 weeks, I continued to opened up. At 5 weeks, my PVR's were in the 90's. You should continue to improve over the next 2 months. For some reason, after 3 months my PVR's went up to over 150. They are now hanging out just below 100 ml. I am glad that I had my Rezum too.

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Steve

I forgot to ask have you or anyone heard from Light65. He is the last one I have on my list. I need to know how he is doing.

Take care.....Ken

Glad to hear you are doing well. why was the catheter in for so long? Richard Levin who did the clinical trials for prostate 30 to 80 and now does about 95 percent bph with the rezum procedure, says that about 65 percent go home without foley, but are taught to self catheterize. many dont need it. my urologist took my foley out at 3.5 days. I was able to go on my own, albeit very slow at first. Look for all urinary symptoms to improve slightly from 2 to 3 months and you should gain full control of urgency and leaking which sounds like you are getting there now. I researched all procedures to ease bph symptoms thorougly and this procedure made the most sense and gave most patients the symptom relief they were looking for. Absolutely would do again.

I would have had a foley for a month based on how long I had to CIC. I mean I was totally blocked after the procedure. Could not pee at all.

How many steam injections? How were you prior to the procedure? my prostate around 140, 15 injections. Bet the first time you passed urine was a blessing after 30 days.

9-10 injections. I was retaining 300 or more before that. Yup.

Hi guys, been reading the posts here for a while but this is my first post. Had the Rezum procedure on 6/6/19. So it's nearly been 11 weeks. I'm not aware of the size of my prosate pre-surgery, but was told by my urologist that it was not particulary large. He blasted it 4-5 times. Like most here I underwent the procedure because i was getting up an average of 3 times per night to pee. When out and about it was'nt too bad, can go 2-4 hours without having to pee. Only had a catherer overnight following procedure and had never used one previously. Also had a very weak flow. That seems to be the only issue thats been adressed following Rezum. Now I'm peeing like a firehose. My disppointment lies in the fact that the procedure has done nothing for my frequency. Still up at night about the same amount of times. Even more distrubing is the fact that I need to go much more frequently during the day. Where previously I could go 2-4 hours without needing to pee. it's now 45-90 minutes. This has had quite an impact on my quality of life. I last saw my doctor about a month ago. He again claimed that things would get better, but cautioned that the frequency issue could be more of a bladder issue rather than the prostate. He did not warn me of this possible outcome pre-surgery. I was however warned of such an outcome in a waiver that his office required I sign. They did not insist on return of the waiver pre-surgery. I did not sign it and did not turn it in. Had he directly discussed this outcome, I would not have gone forward. He pointed out that there was no surgical solution to the possible bladder issue, only theatment via medication. One of the reasons I went ahead with Rezum was that I was taking medication (VesiCare) that was no longer working and is quite expensive (I'm 65 and now subject to Medicare Part D). He claimed there were other medications but am skeptical with regard to their effectivness and cost. I have been with the doctor for over 20 years and have a great relationship with him. Should this persist however I may explore malpratice options. Would appreciate thoughts on this situation. I suffer from occasional leakage and sometimes use a Depends. Thanks.

my prostate was 140 plus. 15 injections. ipss was 22. rezum jan. 31. my new ipss score is around 8. 3 of which is waking up at night and dont go back to sleep until i urinate. volume at night is moderate at the most. I have been doing this routine (waking up every 2 hours on the hour for as long as I can remember. Since the injections stay in the zone they are adminstered to bladder damage from rezum seems unlikely. A lot of rezum patients went from 3 to 1 trip at night, that would have been nice. your treatment should have started 1 cm from the bladder neck and every 1 cm left and right to overlap and ablate the cells restricting the flow. in your case mission accomplished. At 3 months i got better control of leaking and the ability to hold off urination if I have to. Am more in control from 3 to 6 months. I have had some 2 1/2 to 3 1/2 hours of sleep here and there which is a slight improvement at night. Prosatitius can inflame the prostate causing leaking and more frequent urination. Hope you get better control in the next couple of months, and some sleep. keep us informed. ray

Ted, I had some urgency after my Rezum for a couple of weeks. Ibuprofen worked great for me. Since it's an anti-inflammatory, it may help. It seems to me that it might be worth trying.

I don't know if an infection could cause those symptoms, but IMHO it would also be worth trying D-Mannose.

You already had an overactive bladder before Rezum (that's what Vesicare treats) and Rezum is known to poke that bear and make it worse. The good news is its temporary and should resolve over time. In the meantime, the best med for overactive bladder is Myrbetriq. It works for most and has a low side effect profile.

Rezum was never going to fix your overactive bladder and whatever symptoms that required Vesicare were, they're still there which seems to be your problem. Even if you have to pay for it, the increase in frequency/urgency shouldn't last more than another couple of months. Beyond that, the enrollment period for medicare drug plans starts in Oct - you can find a plan that pays for Myrbetriq (assuming it will help). IF the problem persists, they have had great results with botox injections for overactive bladder.

I would tend to agree with the sentiment that it will get better. My frequency during the day is still pretty high and I'm going into week six post-Rezum. I was warned about it, that I should expect it, and that it would slowly taper off over several months. My impression so far is that by month three post-Rezum the urgency should be on its way out, flow should be great. Regarding your night-time frequency, that sounds like OAB or Over Active Bladder since you say your prostate wasn't that big pre-Rezum. There are some meds for that and they are covered in some of the other forum posts on prostate issues. Like everything, it is never exactly what they tell you - but for what it's worth, you got the least invasive procedure with the least negative side effects.

Hi Ted,

Here is something to consider: Waking at night may not due to your prostate directly but more to do with poor sleeping and normal sleep cycles. Lots of studies show that we sleep in close to 2 hour cycles where we become somewhat awake every 2 hours. If there is a modicum of urine in the bladder our brain will focus on that full feeling and it is difficult to go back to sleep.

My own experience bares this out.. if I wake at night I feel the urge to drag myself out of bed and pee. Most of the time the result is unremarkable to say the least. I have measured my output and find it to be minimal. So I like to wait a couple of minutes and be able to get a second output thinking that will carry me to sleep a little longer. Unfortunately I am awake again in a couple of hours to do the same thing.

My doc says my waking is probably not due to the prostate but due to the sensitivity of the bladder urge. Thanks but that does not solve the problem. I feel your pain, Ted. I don't see how I can sue someone for that but it would be great to get a new car.

David

Since I @ 62 had a prostate xl. I wasnt sure what to expect from Rezum. Clinical trials for larger prostates are ongoing now. My urologist had to check with the rezum representative and we approached the procedure with the knowlege that it will reduce the mass and hopefully get some symptom relief. It is the least invasive, but the science behind the procedure makes a lot of sense. There was a possibiliy that a second procedure would also be necessary, which I would have no problem doing. In fact, I will probably have the 2nd done sometime next year, after a little more healing. Having an mri in the next couple of weeks to see the size of the prostate and to rule out cancer, if they find suspicious growth....targeted biopsy. Not nearly as apprehensive as the first biopsy with elevated psa around 30. Post rezum psa 21. If we get a negative for cancer, goal for 2nd procedure just to reduce the mass of the prostate, cleanup some areas (medium lobe). Im only 62 and at the rate the prostate was growing it makes sense to me. On the mri any help would be appreciated. For the prostate the radiology imaging is 1.5 T with endorectal coil. The company has 3 T but at a different location and not for prostate? The Dr. likes the final product, can be enhanced to 3 D (for targeted biopsy) and the results are similar to 3 T quality. A year ago, I had biopsy, bone scan, mri which were all negative. Since the biopsy misses about 30 percent of cancers and psa is still high 21 we are just being safe. Richard levin hinted of rezum therapy for cancerous tumors down the road. Different delivery system but it too makes sense.

I would get up 3 times a night for a new car. my scenario is very similar waking every 2 hours like clockwork. I am agreeing with it may not be the prostate, but sensitivity of the bladder. Even though I dont pass a lot of urine, I do go back to sleep afterwards. Goal was to hopefully get up once at night.