REZUM--HAVE YOU HAD THIS DONE???????

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I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM".  The company that makes the system is called "NXThera, Inc".  You can google them up and lots of stuff comes up.  I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now.  I called his nurse and she said he would call me back and answer my questions on monday.  As you guys probably know Doctors are not very good at returning calls but we'll see what happens.  Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them.  It works with high pressure "steam" that at a certain degree will kill the prostate tissue.  My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????

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  • Posted

    I also had the REZUM done 12/15/16. I also am not very happy with having it done either!

    I still get up three times at night and have to pee all the time. So would I reccommend this procedure  the answer would be NO!! I feel the doctors are in it only for the$$$$$$$$$!!!!!! I fired my urologist !!

    • Posted

      Nocturia (waking up at night) is very likely not related to the prostate; a lot of men have voiding symptoms from underlying bladder issues, not necessarily just the prostate. Because of this, I believe it is important to have a full evaluation including urodynamic testing, prostate sizing, physical examination, and cystoscopy prior to choosing any therapy. I would strongly recommend you see your doctor to get evaluated, as it is unlikely that the prostate is currently causing your waking up at night, but may be a different treatable condition. Medical issues such as diabetes, sleep apnea, lung or heart problems, are just a few of the issues that may cause waking up at night.
    • Posted

      That can be true.  But it also could be habit.  If you do something for so many years you can keep doing it until you brake the habit.  Thank you  Ken
    • Posted

      I second Jersey Doc that getting up at night (nocturia) may be unrelated to your prostate and/or your bladder. I would start with a simple 24 hour void log which will give you a good idea if getting up at night is more related to excessive night time urine production versus prostate or bladder issues. 

      Jim

    • Posted

      Hi Dr. Jersey,

      You might also address frequent urination as a function of total daily liquid intake.

      In my case I drank 4 to 4 1/2 liters of liquid per day for most of my life, when the normal standard is 1 1/2 liters per day.

      After I cut down my daily liquid intake it helped a lot.

      Neal

    • Posted

      Leon & JCL    It looks like that REZUM is not doing what they say it should.  Before the procedure did the doctor do test to check any other issues.  You should have had some improvement  Good luck  Ken  

  • Posted

    I had the Rezum treatment done on 5 Oct 17. Prior to I was having difficulty with flow and had nocturia for years. I do have sleep apnea but use an APAP nightly.

    Last year I saw a urologist because suddenly I had trouble urinating during the daytime. A simple DRE was done and I was prescribed Septra for 45 days. My symptoms went away within a week but I finished the course of antibiotics. Fast forward a year and it happened again. This time he diagnoses me with chronic non-bacterial prostatitis without ever touching me or running a single test. Two months later I dumped him and saw a specialist in San Antonio who ran a urine sample and found bacteria and hematuria. It never cuktured out though even post prostate massage. At this point I was on Cipro and had been catheterized 8 days after I saw the first uro because I couldnt pee one day. Needless to say I was suffering. Symptoms slowly got better but never resolved. I ended up getting a cysto and the doc saw that I was pinched off in my prostatic urethra. So we measured my prostate, a modest 32ml and I had the surgery.

    Talk about bad luck but I got a really bad UTI days post op. I was bleeding copiously and didnt start bleeding until day 8, after the initial bleeding from the immediate trauma of surgery. I didnt see a doc to culture my urine because I was told post bleeding was common. It took me until day 22 to get treated. So at a minimum I had the UTI for 14 days ( I was peeing clots at this point). The infection has mostly resolved. Now I can pee better but still have pressure inside like something inserted in my rectum. I dont know if this is all from cystitis or my prostate.

    My question is at this point is this normal? I don't always feel like I have to immediately urinate but the feeling is always there, dull. Also DO NOT have sex guys. Wait at least 30 days. I was ill advised. The last time I had sex the symptoms came back horrendously. And havent subsided yet. I'm just hoping someome can tell me this will get better and this pressure I feel is a normal part of the healing process.

    • Posted

      Most likely, you're just suffering because of the infection. Bleeding for the first 4 weeks or so is common and it tends to peak at around week 3. Urgency is also common and it dissipated for me at around week 6, except when I ran. It wasn't horrible then, but noticeable. Eventually (a couple more months) it went away too.

      As for sex, you're probably just dealing with the aftermath of your UTI there too. I was a slow healer, but had sex on day 2 or 3 and it didn't cause any problems for me.

    • Posted

      Thanks for the response! It's just so hard to tell the difference anymore and if I'm actually healing. I will be patient and understand I need to give it much more time,

    • Posted

      Robert. The best of luck to you. Seems like it takes lots of time and pacience to heal. 

      Please give updates every now and then.  Other folks are thankful for all the info we can get. 

    • Posted

      Hey Mike thanks for the response. Thankfully I don't feel like I have to owe all the time anymore. The worst part is the pressure I feel almost constantly. It comes and goes but 2 is there most of the time. It aches. I'm assuming that's from the surgery. The infection as far as I know is gone. I see my URO Thursday. We will see what he says. I wish they had a direct forum for patients local to each urology office. It would be nice to see if anyone has experienced what I am going through

    • Posted

      Pee lol why did my autocorrect put owe....weird
  • Posted

    I had the REZUM procedure done about two months ago. I was given four treatments, two on each side. It was painful but I didn’t feel as if it warranted being placed in twilight sleep, I received adequate locally administered pain management via injections. I had a foley catheter for two days. I had bleeding for a week and it cleared only to return during weeks 3-5. My stream was great for the first five weeks. I have retained noral ejaculation but it remained bloody through week 7. Currently I am now having more difficulty urinating than before the procedure. When I get the sensation to relieve myself,  when I stand, I’m experiencing sharp burning/stabbing pain from my bladder through to the top of my penis. I become super urgent to relieve myself when I stand. My stream is very restricted and the pressure so great that I have doubled over. I must urinate sitting down and cannot use a urinal.  Using my prescription for BPH does not seem to be effective in improving flow any longer. Its now been 8 weeks. I’m Also experiencing lower left back pain.  I’m going into my doctor tomorrow reporting these concerns. I’m worried that the Rezum procedure has made my situation worse. The pain is a 9/10 scale. Proceed with caution! This procedure is a bigger deal than represented.
    • Posted

      Jeff   Sorry that your having a problem.  Been reading a lot of complaints about REZUM.  I bet when you see the doctor tomorrow he is going to tell you that is normal that it has to get worse before it gets better.  That is a lot of crap.  I hope he can help you.  Ken 
    • Posted

      It is likely that the tissue that was treated may be sloughing off. That should resolve soon, but best to see your urologist to make sure you are not obstructed.

      It is important to know that the prostate is a big deal- any procedure done has side effects, and these should be discussed prior to anything being done.

    • Posted

      But the tissue is dying inside the prostate that is were the steam was put.  Why would it cause a obstructed inside the urethra. And side effects are a big deal and you know that some doctors do not give full detail of all of them they like to side track them and down play.  But I do  what to say welcome back  Ken   
    • Posted

      What can happen after any ablative technique of the prostate is that the tissue can slough off, sometimes months afterwards; it can sometimes become stuck in the urethra, although it usually passes on its own if this happens.
    • Posted

      Hi Doc,

      Great insight. What is the easiest way to know if this is the case? Cystoscopy? Imaging? And if one doesn't want to wait, or if the tissue doesn't pass on its own, how then is it removed?

      Jim

    • Posted

      Thank you.  Going to have to read up on the procedure again.  What I don't understand is if they are killing the tissue inside of the prostate shell how is that tissue getting into the urethra.  I thought the tissue is absorbed into the body.  Thanks  Ken      

    • Posted

      Cystoscopy would be the definitive diagnostic tool, but is often unnecessary; I would definitely recommend a post-void residual monitoring (a simple ultrasound) and a uroflow to make sure that the bladder is emptying well enough. Usually the tissue will break up and pass on its own, very rarely needing it removed cystoscopically.
    • Posted

      Thanks. Makes sense.

      Speaking of "Uroflow", I've always questioned its utility, especially as a standalone. Within limits of course, does it really matter how fast the urine comes out, as long as the bladder empties properly? In other words, isn't it better to p*ss like a pony with zero PVR than p*ss like the proverbial horse with retention smile 

      In my case, for example, I often take a pass on Uroflow at the uro's, because I already know that my flow can be weak on occasion, but strong on other occasions. I also know (I have a bladder scanner at home) that the flow rate makes no difference with how complete I can empty. 

      For example, my PVRs these days are pretty much always below 100 and often close to zero after a second void. No correlation with flow rate. What seems to correlate with flow rate might be initial bladder volume, type of fluid intake (coffee, alcohol, versus water), sodium intake, and perhaps exercise. 

      Jim

       

    • Posted

      Hi guys

      To date I still have not experienced a single benefit or improvement from having Rezum. Now over 100 days ago.

      Urologist says must be something other than the prostate such as the bladder. Although an ultrasound showed I was empty.

      Urologist called Rezum and they said "cant be the prostate at this point" so I was given a Bladder medication (Toviaz) which I took for 4 to 5 days. All it did was cause loose stool and prevented me from urinating. It was not helping so I stopped. I started Rapaflo again from samples I still have left.

      Within a day or two I was at least peeing with some normalcy.

      I was in contact with Rezum and they said they were going to have their doctor call me last week, but he never did. I also called my urologist to tell them that the bladder meds made things worse for me and I started the Rapaflo with some success could they get me a prescription for generic flomax? They also did not call me back.

      Now it has been 1 week to 10 days on Rapflo and I am starting get this pain again when I start to pee. It is as though pee is leaving the bladder but hitting restriction down stream after the prostate.

      Before Rezum I also had split stream and sprayed urine with weak flow and many many trips to the bathroom per day. I also had weak ejaculation force. Barley anything would come out.

      I am starting to wonder - do I have an issue with my urethra and not my prostate? My urine is still coming out in a rifled looking stream that will still split and spray off and on during urination. But now since Rezum and rapflo I have no ejaculation and the orgasm is weak to almost a dull feeling.

      Does anyone know how they check the urethra?

      I have had at least 6 cystoscopes and I always tell them it hurts like hell at a curtain point, they said that is the prostate being tight, but could it be a urethra issue and they are not testing for?

      thoughts suggestion please...

       

    • Posted

      I have never had a treatment for my urinary condition. I was always told it was my prostate and due to my young age at that time it was better to live with the condition.

      Rezum was suppose to be the fix, with no side effects.

      Turns out that was not the case for me at least.

      I have had approximately 6 cystoscopes, three uro-dymanic flows, 1 rectal ultrasound to measure the prostate and finally Rezum. Prior I was not even on meds. I just lived with the condition.

    • Posted

      Hi guys

      Another update. Yesterday I had the pleasure of speaking with the Urologist with NxThera.

      After hearing everything I have done and been through since my early 20's - he does not believe I have or even had a prostate problem. This is why Rezum did not work for me and this is why the meds are not doing really anything either.

      He recommends I see a Urology specialist at a medical center near me such as University of South Florida and have a test performed called a videourodynamic study. He feels as do I that my problem is after the prostate in the urethra and the sphincter muscle. 

      Why? Because as was an issue prior my urine comes out rifled and spray and goes into 2 streams then dribbles at the end. These are all signs of a restriction after the prostate. He was surprised that I have had so many cystoscoped done and not one urologist found a problem and or recommended video imaging.

      This is why I have always said, Doctor do not give a crap about you or healing you you are only a number to them a $$$ - do the cheapest least amount of time and effort office exams possible. Herd them through the front door.

      It is really a shame but its true. My Urologist does not even listen to me when I speak to him, he is too busy typing on his laptop.

      So now I will be trying to get my primary doctor to order this test and see if we can get insurance approval.

      On a side note here is a good one. One Urologist I spoke with and scheduled the Rezum procedure with but later cancelled with him because I did not like his pain control policy for the Rezum. He said if you don't want to be awake I will  put you out and we can just do the laser removal "green therapy" sure am glad I did not listen to him. Again doctor are no longer technicians they are salesman pushing pills and BS office exams so they can close early on Friday.

    • Posted

      That is why you have to be carful. Your lucky you did not say i want to be out but i want the rezum he would have done the laser.  Hope you get better. Having bladder stones removed tomorrow.  Take care. Ken
    • Posted

      It's what I thought, urethral stricture. It should be found out long ago. Hank

    • Posted

      Good luck with your video urodynamics. Too late in your case, but in most instances urodynamic studies should always be done prior to any surgery or prostate reduction procedure. Unlike imaging, and I don't care what type of imaging, and unlike cystoscopy, urodynamics measures the actual voiding function. Video urodynamics is the gold standard of urodynamics and if you can at all find a center that performs it, all the better. 

      Jim

    • Posted

      This is becoming a bigget problem. Could not pee this morning. Did scan 700cc. Try to catheter me twice very painful call urology dept sent this guy grom icu. He was able to get in somewhat in but hurt like you know what was coming out slow. But got 800cc. Left it in but came out of the bladder. When she pulled it out it got stuck pulled harder and i started to bleed. I hurt alot. The nurse went to see if i can get something for pain
    • Posted

      Thank you. It took 3 trys to get it in and it hurt like hsdsss. Not havimg surgety till 4:30. They put in a catheter in when the dovctor hit the prostate i was in so much pain now im bleeding. Can't wait to see whatis the problem. It don't look good. Ken

    • Posted

      Hi Ken,

      Really sorry what you're going through. The good news is that your kidneys are now producing urine and it's getting into the bladder. If that weren't the case, then things would be worse. 

      From very afar, I tend to think that a specialized cath team could figure things out, but  not sure if they have a dedicated team at your hospital. An alternative is a suprapubic while things are sorted out. That would not only drain your bladder but give your urethra and prostate a rest from all that jabbing. They can optionally add a valve to the suprapubic, so you can dispense with the bag. 

      Jim

    • Posted

      I had to have a vguy from ICU come he wass able to get it in some what. Came out very slow got 800cc out. The urologist that work for the hospital camre and put one in because they change surgery till 4:30. When thepylled the other one out it got stuck and started to bleed. When the other doctor put ut in it hurta lot and i started be pass blood and alot of tissue. She said something is blocking the. Prostate. I will see soon
    • Posted

      If they do suprapubic catheters at your  hospital, that would be my choice now. A suprapubic requires just a very tiny incision in  the abdomen, so it should be very easy to do since you're already in the hospital. That would mean no more catheters in the urethra and trauma until things got sorted out. Once you don't need the suprapubic, they simply pull the tube out and the hole closes and heals by itself very quickly. Don't let them keep butchering you with Foley. 

      Jim

    • Posted

      Sorry didn't mean "foley" but from the way things are going with the intermittent cathing, you might be better off with a Foley than repeated traumatic intermittent caths. That said, a suprapubic would still be my first choice.

    • Posted

      Ithink they do. Have to talk more with my doctor. There taking me down at 3pm. I will let you know ken 

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