Rib pain

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I just needed to know if anyone can relate.

I was told by the doctor that they think I have costo about a year ago as I had been getting stabbing pain in my left breast and shoulder.

I have had multiple tests and bloodwork done and everything has just come back as normal.

The pain is worsening, and I have some pretty bad health anxiety issues now. I have panic attacks while falling asleep as the feeling scares me.

Recently I have been having excruciating pain shooting from my ribs to my shoulder and then tingling down my whole body, as well as the pains in the breast that I started with. I've been coughing a lot and have a lot of mucus and have been told that it is inconclusive if I have athsma or not. It is also inconlusive if I have acid reflux. Palpatations, constant headaches day to day. The list could go on and on...

I've been to the doctors so many times over the past year, I'm only 21. I just feel hopeless and wish someone would help 

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  • Posted

    In addition

    I notice the pain in the ribs is really bad, laughing seems to bring it on really badly

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  • Posted

    I can totally relate. And the anxiety that comes with it... I've had it since January 2013 and have written much on here... Unfortunately, the mods delete anything I wrote on here related to what helps and what you should not do, which I don't understand because isn't this site here for us to support and help one another?

    I'm publishing a website with information. I'm hoping to help others, I've wasted hundreds of dollars on 'cures' and treatments that did not help.

    I'll send you the link. This condition is debilitating and maddening, not to mention frightening, and I'm done with all the disinformation I've found online.

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    • Posted

      I can only say that they probably don't want to be held liable for any information you may print on their sites in telling someone how to treat a condition and if it did not work or it got worse the person could or might blame this site....why do you not also offer your own email address the person may try and contact you at, I am not sure if they would allow it or not but I have done it myself and actually haven't seen my own replies anywhere on here to know for sure. ....JUST A THOUGHT, you sound like someone who at least cares, and Thank The Good Lord for People like yourself. 

       

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    • Posted

      Hey..... Good on you for designing a website...... fantastic!! I too have tried and tested so many products, lotions, medications, supplements and gadgets - but to no avail! Quite frankly you get to a point whereby if someone told you to swing from a lamp shade to be pain free, one would try it! 

      Is it possible that you could also forward me the link too please?  I am sure many of us could benefit from your website! 

      Good Luck with the website!

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    • Posted

      Hi Cathe you had written something below but it had been removed xx

      And Haven I haven't received the link yet unfortunately, are links able to be sent through messaged? I'm really interested to read  your website x

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  • Posted

    Hi there

    I am sorry to hear about the above but I am still living thru all of this and more as well as having Tietze I also have Fibromyalgia. Have they given you any medication to help you? x

     

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    • Posted

      Hi, I'm sorry you're dealing with it too it's really awful.

      Painkiller wise ibruprofen is the only thing they have given me. I have been on amitriptiyle for a couple of years before this as I also have hypermobility syndrome/ Ehlers Danlos Syndrome

      They have just tried to put me on a load of anxiety meds and anti depressents which just make me sick which annoys me 

       

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    • Posted

      I too am on anti depressants. Do you have a pain clinic at your local hospital I travel an hour to get to mine and I also talk to a pain clinic psychologist she gives me tips on relaxation and meditation and so on. Ask your doctor to refer you to pain clinic.

      I have been on amitryptyline, morphine and so on but I personally found that I was just doped up and still in pain but I am now on Codeine and paracetamol which does help x

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    • Posted

      Please be careful with the codeine as it can do severe damage to your liver. if you're taking too much of it on a regular basis, but than again who in the heck knows what the other stuff they give us does ?  Good Luck
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    • Posted

      Thank you for that. I'm supposed to take 2 up to 4 times a day but when I do I don't even know who I am so I take one now in an afternoon and 1 at night time
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    • Posted

      I'm hoping my near physio appointment will refer me to a pain clinic as my doctors are kind of useless

      I'm glad you found something that helps more than those, I've been on and off amitriptyline since I was around 15 as I get really bad hip pain and other joint pain but when I tried to come off of it I noticed my pain was worse so I think it must do more than I give it credit sometimes.

      Thanks so much your your reply xx

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  • Posted

    Hi there

    Please dont feel alone out there, there are many of us on this forum experiencing pains and symptoms that you mention above and they can be debilitating at times and very frightening. Be reassured that your tests etc have come back normal as this is usually the case for Costo as opposed to anything related to the heart, lungs etc. The only marker to be raised may be the ESR levels which wil show any signs of inflammation (but not always the case). However, that does not help your pains and symptoms, i know!

    The fact you have a cough will be exacerbating your symptoms as you will be aggravating the costal/rib joints and this will cause more pain, especially when breathing, lying flat etc.

    Have you read over all the earlier news feeds where I described my symptoms etc, as I have suggested some tips that I have used to help with pains etc? If not, may be worth a look!   It may also be worth speaking with your doctor about being referred to a pain specialist to help manage your symptoms better and get some help with controlling your anxiety levels a little better. Its a viscious circle - the more pain you get, the more anxxious you become, which in turn causes more pain as your not able to manage it because of the anxiety. 

    Best of luck and please remember - your not alone in this!

     

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    • Posted

      Thank you so much I'll have a look for sure, are they on this forum somewhere? I don't come on here often so I'm unsure where to find it 

      I have an appointment for physiotherapy on the 1st of April and she is a specialist who deals with hypermobility syndrome, and costo seems to be very common in people with the condition so I am hoping that she can help in referring me to places as asking my doctor to refer me anywhere seems like hitting my head off of a brick wall.

      Thank you so much for the reply, it's always encouraging to hear that others are in the same boat as I am, I appreciate it so much.

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    • Posted

      No problem at all!

      I hope the Physio can help! My Physio has been amazing and he works on my neck (the SCM muscles) and this links to the clavicle and ribs and really helped me!

      I too have hyper mobility syndrome so may be a contributing factor I hadn't really considered! I will re-post my original post save you looking through Hun!

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    • Posted

      Hi Hun, for some reason I can't repost my original post! I put it on about a month ago and under kez16. I talked about my experience and using various things to help! If you want to private message me I will go through it with you if you can't locate it!

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