rivaroxaban

Posted , 27 users are following.

I've been on warfarin for just over a year and have to be on it for life but want to change to Rivaroxaban as there is no regular INR checks. My GP said that it can't be done as no-one has ever been on Rivaroxaban long term. Can anybody tell me if this is correct? or have I been fobbed off.

2 likes, 114 replies

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  • Posted

    Hi all. I have been on rivaroxaban for the last 9 months and found I am continually tired along with colds flu and infections. Has anyone else had these problems on rivaroxabn
    • Posted

      Hi. My husband was put on R last Tuesday and is already complainung of tiredness, weakness and aching joints.

      He went to archery today and had to give up as he couldn't pull the bow he used last week!

      We will be in touch with his consultant tomorrow and may well go back onto warfarin...we can at least keep the inr under contro with the coaguchek machine

    • Posted

      Hi just want you to hear my story. I had two stents fitted in two arteries and suffer from AF. A specialist told me he wanted me to go on warfarin. When I chatted this over with my Cardiac Nurse she strongly advised me to go on Apixaban. It too is one of the newer  anticoagulants but she said that Apixaban is far better than Rivaroxaban. I did not wish to go on Warfarin because of the constant blood tests. A doctor friend of my went on Apixaban over a year ago and he too recommended it to me. I can honestly say that since the beginning of January this year when I went on Apixaban, I have no side effects whatsoever. I have to be on it for life and will quite happily continue. I did have to push to get put on it but I was so determined I would not accept anything else!!!
    • Posted

      Hi, I know how your husband feels, I am the same however doctor tells me its not the rivaroxaban so its a frustrating situation.  I am going to ask about the other new one apixaban when I go back in September and will let you know outcome.
  • Posted

    Are you still in warfarin ? I will be on rivaroxaban for life ..... All being well !

  • Posted

    My husband has been put on Rivoroxaban today....not sure if it will be OK but will give it a month.

    There IS a antidote...but you need to go to hospital for it. That was the first thing we asked about, as if there wasn't he wouldn't have tried R.

    His consultant told us that there is a lot of misinformation on the web regarding antidotes...there is one.

    I'll give you an update in a few days...

    • Posted

      Thank you for the information will ask about the antidote at anticoagulant clinic tomm take care Carroll 😊
    • Posted

      I was speaking to cardiology consultant last month and he said that it was still being developed.
  • Posted

    According to my GP there is NO antidote for the modern anti coagulants.  All that can be done, if a bleed occurs, is to stop taking the drug.  It will take, I am told, 24 hours for the blood to return to its normal clotting ability.  In this time it can be necessary to transfuse, if the bleed is severe.
    • Posted

      I heard to same but will double check tomm and let you all know 😊
    • Posted

      Hello when I asked at anti coagulation clinic they knew of no antidote to Riveroxoban. ..but they were nurses and not doctors ..😊
  • Posted

    I am really surprised how everyone is talking about Rivoroxaban and no mention being made about Apixaban which is also an anticoagulant. It too is one of the newer ones but I was strongly advised by my Cardiac Nurse to go on it as she felt it was far better than either Warfarin (which I did not wish to go on) and Rivoroxaban. A doctor friend of mine also recommended it as he too is on it. I suffer from AF along with two stents in two arteries. I can honestly say that since I commenced my treatment in January I have not had any side effects whatsoever. I am on this for life.
    • Posted

      My GP said that Apixaban would be his drug of choice if he ever needed that type of drug due to it's shorter life and being taken twice a day.
    • Posted

      Thanks Derek, I will check with my doctor next time to see if I can try Apixaban
  • Posted

    Hi Rob, I know doctors prefer giving warfarin because its cheap.  I think you are being fobbed off however rivaroxaban doesnt agree with me but some people i know take it okay
    • Posted

      Would jjust llike to make a point ..yes warfarin in cheap but because warfarin requires regular monitoring and blood tests by qualified nurses who have to adjust your dose whenever Rivaroxaban does not i should imagine it would cost the nhs more money in the long term if you were on warfarin rather than the new anticoagulant. Regards Carroll
    • Posted

      Hi Carol, thats absolutely correct lol I hadnt thought of that biggrin
    • Posted

      Hi lots of people don't think of that 😊

      Makes you really think doesn't it ...why would they be so eeager to give you a more eexpensive drug which we are told without an aantidote ...who does it rreally benefit in the longterm them or us. Sometimes better to stick to devil u know than devil you ddon't. This is my view wwhether right or wwrong regards Carroll 😊

    • Posted

      I can remember warfarin making me feel ill, I felt like I was being poisoned.  After trying dabigatran which gave me bad headaches I am not doing well on rivaroxaban either.  I am tempted to try warfarin again though after what I know now.
    • Posted

      Hi i have tried Rivaroxaban ..felt quite ill on it so went back to warfarin. Feel safer on warfarin. There are other new anti coagulation drugs not just Rivaroxaban there is another 1 beginning with A...heard that as less side effects but you have to fight with your gp to get it mine refused. You do what you feel is right for you ..😊
    • Posted

      Apixaban is then name of it ...more expensive and fewer side effects than the rest ...up to you x
    • Posted

      Warfarin is still cheaper even with weekly surgery visits. INR appointments evidendly get the Surgery about £10 a time.
    • Posted

      Also you have to pay someone to workout your dosage and home vvisits. ..so why is warfarin cheaper in the longrun than the nnew Ones. ..do u know how much new Ones r? CCompared?
    • Posted

      At our practice housebound patients get their own machine for self testing and phone their results in at an appointed time.

      Cost to NHS

      Tablets, warfarin sodium 500 micrograms (white), net price 28-tab pack = £1.66; 1 mg (brown), 28-tab pack = £1.04; 3 mg (blue), 28-tab pack = £1.07; 5 mg (pink), 28-tab pack = £1.08. 

      Tablets, yellow, f/c, apixaban 2.5 mg, net price 10-tab pack = £10.98, 20-tab pack = £21.96, 60-tab pack = £65.90; 5 mg, 56-tab pack = £61.50

      Tablets, f/c, rivaroxaban 2.5 mg (light yellow), net price 56-tab pack = £58.80; 10 mg (light red), 10-tab pack = £21.00, 30-tab pack = £63.00, 100-tab pack = £210.00; 15 mg (red), 14-tab pack = £29.40, 28-tab pack = £58.80, 42-tab pack = £88.20, 100-tab pack = £210.00; 20 mg (brown-red), 28-tab pack = £58.80, 100-tab pack = £210.00

      Capsules, blue/ivory, dabigatran etexilate (as mesilate) 75 mg, net price 10-cap pack = £10.98, 60-cap pack = £65.90; 110 mg 10-cap pack = £10.98, 60-cap pack = £65.90; 150 mg, 60-cap pack = £65.90. Label: 25

    • Posted

      Cost to nurses who look after patients on wwarfarin and work out correct ddosage?? U have oomitted that . TThank u ffor all the Iinformation you have aquired and letting us all know kindest regards Carroll
    • Posted

      I'm told that the practice gets £10 or was it £12 per patient visit for INR testing.

      They probably fit in five patients an hour if they are not Chatty like me:-)

       

    • Posted

      Yes but they only ttake blood ..it is then sent to hospital to be aanalysed then your ddosage is either changed or rremains the ssame 😊
    • Posted

      At the practice I go to it is just a pin prick test.
    • Posted

      Hi Derek not in nottingham .

      For pin pick have to go to qmc😊

    • Posted

      It is changing around the country for example in Brighton hospitals and GP's no longer do it. You pick from a list of pharmacies and register with one. They take blood, send it off and the patient gets a phone call the next day.

      When I told one nurse at my GP's she said, "I wish"

    • Posted

      The GPs only do a pin prick test wih a coaguchek monitor. Its immediate. Only A full blood test out of a vein is sent to a hospital.

      Get a machine...for £299 you are free of all the hassle...just phone the result to your GP every so often

      It made a huge difference to our lives.

      Now my huband as been on Riveroxiban for a week and the side effects are: dreadfully tired, aches all over, very weak suddenly. Not normal at all for him, as we are usually out doing stuff all the time.

      May chang bak to warfarin if this continues, as at least we could keep it under some control with the coaguchek machine.

    • Posted

      When I was on Rivaroxaban all my muscles ached and stomach not too good either so went back onto warfarin and ok now...at the anticoagulant clinic they said a few other people had returned to warfarin for the same reason

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