Roller coaster !!
Posted , 8 users are following.
I have attempted to try and reduce pred from 20 mgs to 15 as I am currently in limbo re diagnosis ......
yesterday was a really bad day .. Mobility rubbish and felt under the weather , a bit like I was running a bit of a temperature , shaky and poor balance .
woke very early ... Awful pain back in my big toe joint and left thumb .... 2 hours have taken my pred .. Pain easing
I have found that during my journey ... When I have felt very unwell in myself it seems to follow with a different area being 'attacked '
is this an experience others share ?
today I feel better in myself , despite the discomfort and the deep pains in my hips and lower back appear to have eased .
i did have a session on Thursday with a Bowen therapist which I would really recommend to others .
not sure if all this is coincidental ???
love to hear from you all
Helene
1 like, 19 replies
ptolemy helenemiles
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helenemiles ptolemy
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what I have found during this journey is that each day is different !!!
not sure what I'm doing really !!!
but I have had to learn to be patient !!! Maybe not one of my qualities ...... The lack of energy , pain and poor mobility has made me have to stop for the first time ever !!!
my spinal surgery was a breeze compared to this .
make sure you take care of yourself x
helene
ptolemy helenemiles
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pat38625 helenemiles
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Eileen is the lady who can answer your question on Bowen Therapy. Good luck. Pat
helenemiles pat38625
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i found the Bowen therapy amazing , I think my pains and balance are due to trying to reduce to 15 mgs .
i have another session booked for Wednesday .
im wondering wether I need to go back to 20mgs ????
Lovely to hear that you doing well at the moment .
take care
Helene x
EileenH helenemiles
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June29649 helenemiles
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helenemiles June29649
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but I have too say I am in a better situation than I was 3 weeks ago .
the symptoms are extreme and took over my whole body ....
started in my big toe , left thumb then both elbows ... Felt tired etc then like an alien invasion suddeny attacked my whole body !!!
I have made considerable progress since being on pred but trying to reduce appears to have relapses in the pain and mobility .
Not a journey I would wish upon anyone .
this forum has kept me going through difficult times.
its lovely to know that others have shared the same experiences and have offered fantastic advice and support .
keep going juney x am thinking of you .
helene
June29649 helenemiles
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Juney x
EileenH helenemiles
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Other than that - your session with a Bowen therapist probably will have woken up a few sleeping dragons! The things they do will release the cytokines from the trigger points in your back - the same cytokines that cause PMR in general when they are all through your system - and cause more generalised yuk. Did s/he tell you to drink lots of water? Did you? I always felt better but worse if you see what I mean the next day - but never as bad as she told me I would feel! And it is very common for balance to be off after a Bowen session - your body has to get used to a new balance set up.
helenemiles EileenH
Posted
that is was my thought of going back to 20 mgs , but a little unsure when to consider a reduction . I have now got 2.5 mgs from the GP on Friday so I could go to 17.5 but so unsure ..... When ........
the bowen therapy was amazing , within half an hour I could feel the pain in my hips and back easing .
i am back again on Wednesday , would recommend it to all .
she used Emmett (not sure if I have spelt it correctly ) technique and within my session the immediate change I noticed was with my balance .
Cant really describe it , but I felt more balanced ... Grounded for the first time in about 6 weeks .
A big thank you for your recommendation , it offered release from pain , and has improved my coordination and balance by 50% Didn't skip out but felt so so much better .
helene
helenemiles
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although quite painful during and following my session ,the following day I was very aware that they I did not appear to be experiencing such deep painful muscle pains . Was able to lift the kettle without it feeling as if I'd been weight lifting .
Im converted
EileenH helenemiles
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I recommended it to someone on another forum and gave him a video link - immediate response was "sounds like a load of hooey"! This from someone who had booked a session of acupuncture!
An NHS Trust in the NE of England is trialling it alongside pain management for a period, like acupuncture has been offered in the past. I just hope it meets with the approbation I've come across.
Oregonjohn-UK helenemiles
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helenemiles Oregonjohn-UK
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2 forward then 6 back .
helene