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Roller coaster !!

Posted , 8 users are following.

helenemiles
helenemiles

I have attempted to try and reduce pred from 20 mgs to 15 as I am currently in limbo re diagnosis ......

yesterday was a really bad day .. Mobility rubbish and felt under the weather , a bit like I was running a bit of a temperature , shaky and poor balance .

woke very early ... Awful pain back in my big toe joint and left thumb .... 2 hours have taken my pred  .. Pain easing 

I have found that during my journey ... When I have felt very unwell in myself it seems to follow with a different area being 'attacked '

is this an experience others share ?

today I feel better in myself , despite the discomfort and the deep pains in my hips and lower back appear to have eased .

i did have a session on Thursday with a Bowen therapist which I would really recommend to others .

not sure if all this is coincidental ???

love to hear from you all 

Helene 

1 like, 19 replies

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  • erika59785
    erika59785 helenemiles

    Posted

    Yes, PMR attacks different areas --- the pain goes away and comes back again someplace else.  My back pain seems to stay, and I am considering Bowen Therapy for this if it does not get better, soon.  This is wishful thinking.....

    I had been on 20 mg of prednisone, but tapering down slowly 1 mg every two weeks.  I am on 17 now --- and proud of it!  2 1/2 had been a too fast reduction resulting in flares in the last 6 months and since diagnosis of PMR. This is my experience, and everybody is different.

    All the best to you.  Erika

    • helenemiles
      helenemiles erika59785

      Posted

      Thank you 

      think I'm going to stay at 20 mgs and try again in a week or so .

      The consequences of my 2 attempts of reduction have not been positive .

      not sure what I should be doing really .

      helene 

    • EileenH
      EileenH helenemiles

      Posted

      Once your symptoms are stable again and the Bowen is having an effect you could try a reduction again. I've already given you the links to the thread with the slow reduction. You may not need to start at the very beginning but trying the new dose for one day and taking the old dose for a couple of days before another single new dose day would be a good place to start.
    • helenemiles
      helenemiles EileenH

      Posted

      Thank you .

      you have given me the links and I will now look at a slow reduction rather than being instructed by the medical professionals who are insistent on ......emphasis of the side effects of pred rather than the management of the symptoms .

      with thanks smile

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