S-I Joint Dysfunction
Posted , 17 users are following.
Im struggling to find anyone who has s-i problems. I can find a lot of US information but not a lot in the UK. I cant be the only one who is suffering with this.
My right thigh is numb and tingling, my right leg has gone shorter and I have pain in my hip & groin. Drs are convinced I've always had a shorter right leg but Im sure this is something I would of noticed before now. Im not getting any real help or tests. Ive had MRI which didnt show anything. Physio was the one that pointed me in the direction of S-I joint. After physio my leg goes the right length and I get relief for about a week.
Would like to hear from anyone else trying to live with this
0 likes, 28 replies
catherine39
Posted
What help most? Coccyx cushion, hot baths and hot water bottle on lower back and trying to keep positive and in touch with work friends and totally believing I will get better.
I wish you all the best.
Shell21 winnie105
Posted
winnie105 Shell21
Posted
My other half has fibro and he is on a combination of tablets and just in the process of going to the pain clinic, he also has CFS and ostearthritis with his fibro.
As for me with my SI pain - I describe it like a toothache, its a constant nagging pain in one dimple at the bottom of my back which I get no relief from. Just been seen at the pain clinic and waiting to get an injection in my si-joint when I have had it I will let you know if its been worth it or not. SI pain is a funny kind of thing it also makes my back feel heavy and I walk with a limp but this is also down to my other back problems.
There isnt a lot of info about on SI pain and it seems very mis-understood.
Have you been offered the injection?
Shell21 winnie105
Posted
Yes I've been offered the injection for my si, the dr said it is entirely up to me, as he knows the ones I had for my back didn't work, as for my fibro I'm on a combination of drugs, the dr wants me to try and come of 2 of them as he is thinking of putting me on ketamine
winnie105 Shell21
Posted
katrina1992 winnie105
Posted
I have been diagonosed with SI joint dysfunction recently after an accident at work. I l sipped on the floor and landed on my front think my hip took most of the weight!
SO fed up of the pain and agony this causes i don't know how any of you get on really as this is all quite new to me. I walk with crutches as my leg goes from underneath me, which causes me to fall on regular occasions! sometimes its so numb i cant really feel it, theres days where i cant even leave my flat as the steps outside are to steep for me to get down. Recently suffering with bladder incontinence episodes, did some research and SI can cause this as all the nerves are around the same place. Does anyone else suffer with this?
Completely feel like my whole life is on hold for 4 months i've been in the most unbearable pain, currently on butrans patches, tramadol, pregabalin 150mg, amytriptiline and diazepam. Nothing seems to work properly just want a day without pain.
Was reffered to the Muscular skeletal clinic where i saw an extended physio, she said my SI joint was misaligned and she manipulated it back, since been in even worrse pain! i know i have to go back as the doctors keep saying it will get fixed with physio. But its too painful to even do! Been reffered to a neurologist and pain management team but there is a hefty waiting list on the NHS. Feel like im running out of options and can't afford private treatment.
At 22 it just feels like i have know where to turn and no answers and i haveto deal with the pain everyday, i do have quite a high pain threshold as i had gall stones and a gall bladder removal so i know pain quite well and this is 1000 times worse!
Any help/answers anything would be hugely appreciated!
Kate
sabrina27780 katrina1992
Posted
So nice to hear that people are in the same boat as me . I've had this problem for years but only have been aware of the condition 4 years ago after having my 4th child. While pregnant I suffered from SPD wasn't aware of having this problem with my other 3 children but PT thinks I did have this whole pregnant before.
Since having my daughter my pelvis and back hasn't felt good.I'm now having more pain then ever, I've had acupuncture,treatments with a chiropractic and seeing a physio who said it was S I joint dysfunction. The pain is unbearable can't walk,can't sit down I'm only pain free when sleeping.
I am seeing my GP later today but feel low as a mum of 4 I need to be mobile.
Tinky1 katrina1992
Posted
I am 22 as well and have quite a high pain threshold. But this SI pain is something else isn't it? I
suggest you try Bowen treatment. It relieves my pain so much. I have only had 2 treatments so far but it is good. You do have to pay but I think it is worth it.
sabrina27780 Tinky1
Posted
Where do you go for the Bowen treatment?
Thanks
Sabrina
Tinky1 sabrina27780
Posted
You just have to go to your nearest one. Google on it. Or the next nearest.
There are plenty of Bowen therapists.
Thanks.
sabrina27780 winnie105
Posted
So nice to hear that people are in the same boat as me . I've had this problem for years but only have been aware of the condition 4 years ago after having my 4th child. While pregnant I suffered from SPD wasn't aware of having this problem with my other 3 children but PT thinks I did have this whole pregnant before.
Since having my daughter my pelvis and back hasn't felt good.I'm now having more pain then ever, I've had acupuncture,treatments with a chiropractic and seeing a physio who said it was S I joint dysfunction. The pain is unbearable can't walk,can't sit down I'm only pain free when sleeping.
I am seeing my GP later today but feel low as a mum of 4 I need to be mobile.
winnie105
Posted
The numbness I get where you would have an appendix scar, my groin and my thigh. Ive tried bu-trans & fentanyl patches reacted badly to both so cant use them. Currently on no meds at all as nothing stops the pain so dont want to fill my body with tablets and I can judge my pain daily and know my limits.
I now need a walking stick and a built up shoe. I am managing to work part time but can no longer drive. Losing my independence by the day. Cant lift anything heavy and struggle to dress and care for myself.
Still waiting to have spinal injections to try and help the pain. Ive not been offered a neuroligist.
joy47826 winnie105
Posted
There is a site Spine Universe and they show specific exercises for the lower spinal and I do 2 important ones for this horrible issues. Do them laying on the my bed as it's tough for me to get on floor and get up NOW....
I can now sit longer, but I do get burning....I deal with OA and I'm 76 and never want a surgical knife near me again unless an emergency.
I'm in the U.S. and we have a lot of alternative healers here in So. Calif.
I understand totally what you are saying....
joy47826 winnie105
Posted
Lying on floor or bed on back, pull one leg bended to chest and hold....then let it down....then do the other one and hold.....then bend both and bring them to chest....and hold....you are holding with your hands to get a good pull. This helps to open up the spinal canal. Do these often and HOPEFULLY they will give you some relief.
sabrina27780 winnie105
Posted
It truly is a horrible condition to have I think childbirth was easier then this.It's very hard to stay in a positive mindset, I guess it's just taking it day by day.