S-I Joint Dysfunction

I also have this and have had it for over 20 years but only recently got a diagnosis I have had scans etc but mouthing showed up and then I went to the chronic pain clinic  and found out that was my problem I was prescribed Lidocaine patches which I find help but it's all the other aches Ie my hips and when I lay down movement is hard and pain excruciating I am having Ian injection on Thursday by X-ray into the joint so hopefully that is going to help. I do feel for you as I know the pain that I go through I can't take anti inflammatories so have had to suffer in silence 

I waited 8 months for this appointment tried the physio chiropractor privately but found that too expensive acupuncture when I was pregnant it was worse and then 5 children later obviously loads of ware and tare

Evening from accross the pond. 

Sorry for your pain.  I have one leg shorter, back, hip and leg pain and cramps.  Only mine come from having to leap out the second story window of my bedroom to excape the flames of a fire back on 12-29-2913.  When I hit the ground I destored some disks etc. in my back.  Was taken to a trama unit and had back surgery.  Then had to learn to walk again, and this was just five weeks after my open heart surgery with four by passes and I had siggles in the summer of 2013.just for the hoot of it...lol

Its seems like the pain from one illness help prepare me for the pain of the next  thing that happened to me.  I tell you this not out of any pitty for me but that I have found a lot of other peoplel who have simular back, hip and leg pain and problems but from different causes  We all seem to be brothers and sister in pain seaking some relief.

Blessings,

Ron

Hi Winnie i have not been to gp but cant stand the pain i will go tomorrow if i can my lower back is in agony and groin pain to i also have fibromyalgia,im on ammitryptoline solpadol high strenth and propranolol.

hello Winnie

I know this is a terrible thing to live withI have been living with this condition for the best part of 30 years and have only just gone to my GP and had it diagnosed, because I was diagnosed with Fibromyalgia which if you don't know sort of increases my pain awarenes tenfold the condition increses a persons sensitivity to pain yeh I know great eh!! I was diagnosed as having SPD I have one leg longer than the other  most of my pain is on the left side I can't sit for more than 10-12 mins and if I stand still upright for more than the same amount of time my legs go numb I suffer constant pain in my buttocks and a strange one if i sit on a firm chair I get numbness in my groin and pelvic area I dont know if anyone else has this symptom, I am seeing a NHS Physio at the moment to try and strengthen all supporting and core muscles at 55 thats not an easy feat but i'm giving it a go she has offered hydrotherapy also, I have had acupucture before which was very succsessful, I do use a tens machine and hot and cold pads that I wouldn't live without, it is possible to buy a sacroiliac support belt but be careful not to become to reliant on it, rehabilitation exersise is the way to go I know its not easy when you are having a flare up (sacroilitis) but exersise can continue when the flareup subsides I am registered disabled as I have several other major conditions if I can have a go at I hope others might seek help to do the same "hound" your GP's untill you get a referral do not take no for an answer it is your right to be referred hope this helps a little  I really hope you feel a little better and remember you are not alone there are many people suffering as you are.best of luck

Hi,

I have terrible SI joint pain. I walk 3-5 miles a day and that has helped a lot. Not on roads (too hard) but across/round fields. Im careful to watch my step in case I jar my pelvis.  I borrow my friends dogs. After years of agony and a recent slipped disc this works best and have actually had 3 days in the last 3 weeks of 'no pain'.

I also use the, 'Map My Walk" app on my phone. It gives you something to aim for each day and when the website is viewed on a big screen (desktop or tablet) when you get home, you can see how far, altitude and time graphs. I do not want to miss a day cause the missing data in the graphs looks bad. Its a great incentive.

Good Luck...x

Hello- I live in the US and have had difficulty with finding a way to manage and deal with my SI dysfunction.

Have you had an accident? When did this start giving you issues? Do you find it is progressing?

I had a traumatic injury- for a few months I was okay and no problems except for minimal discomfort. Now I am affected every minute of every day/night.

Doctors gave me medication- are you taking anything?

Have you tried steroid injections? They have helped me but the pain is progressing and now the discomfort in my groin is so intense I am doubled over at times.

I have tried: 

Dry Needling, Chriopratic care, Massage, Steriod injections, Cupping, Physical Therapy, Stretching-Yoga (hot), Ice, Heat, and recently have given in to taking daily medication.

The medication makes it difficult to work or function.