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Savella for pain relief?

Posted , 8 users are following.

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Has anybody heard of this drug and is it available in the UK? I have been searching frantically for some kind of pain relief that will work. The normal stuff, co-codamol, tramadol etc is just doing nothing now and I am only taking it cos I am now addicted. I was given a weeks supply of prednisolone recently and really did feel good! I got quite excited with the prospect that I may be able to return to work and get my own life back! But when I went to see GP and asked for some more,she refused saying its not a long term solution and would actually cause allkinds of other problems. Well, I am gutted, my hip pain has come back with a vengeance and I am lying here in tears again with the pain. After feeling so good just two days ago I really dont know how I am going to cope right now, as I am feeling very low again. I came across this Savella used for fibro and it apparently has worked wonders. Is there anything along the lines of prednisolone that doesnt have the long term complications? I am feeling pretty desperate again!

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  • tiswas24537
    tiswas24537 Xxxxxtttttttttt

    Posted

    i know that desperate feeling of just wanting it to stop but you have got in such a whirl of pain and stress by the pain your making it worse ,

    i am not being nasty as i am sure you know this, its just sometimes like myself forget and need to be reminded that getting desperate and stressed ,dosent help.

    i think it was very wrong of your gp not to tell you it was only a respite drug

    and build your hopes up of feeling normal again,

    iv not heard of the above drug are you up to putting in a search on net, i will later.

    have you tried a product called oxylift , i had good results from it ,

    but it started to upset my stomach after 3mnths ,but now they have recommeded

    to start on a low dose and work up ,so i am now thinking of buying some again because i had energy and apain free for those 3months . my dad used it when he had terminal cancer and it helped with his energy levals.sorry i have not got a magic wand i only wish i had ,

    try and find some where quite and listen to something calming music .

    breath deep and slow, it helps with labour contractions and there bloody painful, just try and calm the body and the mind i know its not easy ,i have great diffitculties sometimes but i always find it helps.when ican do it

    • tiswas24537
      tiswas24537 Xxxxxtttttttttt

      Posted

      looking at the side effects of what the doctors perscribe

      and the only know side effect of oxylift in some very sensistive people

      is upset stomach i think i would give oxylift a try first.

  • patricia17763
    patricia17763 Xxxxxtttttttttt

    Posted

    Why do Doctors give drugs like Prenisolone for just a week, getting your hopes up and then withdraw it if it causes other things what is is the point, I found the same with Antidepressants all the side effects and no benefits.

    I feel just like you , am going to a Hypnotist on Tuesday for my anxiety, as it is making my fibro unbearable, as you say desperate to try ANYTHING.

    I think savella will either suit you or no you have to try it, and then they tske so long to work.

    Good Wishes from a fellow suffering fibro.

    Pat

    • Xxxxxtttttttttt
      Xxxxxtttttttttt patricia17763

      Posted

      Thank you. I have also been referred for cbt by occy health, but apparently PAM assist dont do it, or not in my area anyway, so starting another councelling session next week, looks like Savella isnt in UK anyway :-(
    • patricia17763
      patricia17763 Xxxxxtttttttttt

      Posted

      Where do you live, not in the uk? I was referred to a Psychiatrist, by my GP and first I got a Community Psychiatric Nurse come out to see me, and eventually I saw a Psychiatrist who prescibed Duloxetine which made my Fibro worse and I only saw him every six to eight weeks, I am attending a Stop and Think group (BCT) but not getting  much benefit and this all took months.

      i might try those Oxylift drops that Tina mentioned.

      Has your Doctor suggested anything else?

      Pat

       

    • Xxxxxtttttttttt
      Xxxxxtttttttttt patricia17763

      Posted

      Yes I am in UK near Chester, Just outside Wirral.  My doctors suggest nothing. I have to keep banging on their door begging for pain relief. I get oramorph. It doesnt take the pain away. I lie in bed and cry with the pain! My pain clinic appointment will apparently be at least another two months away and even then, what can I hope for?! I have an orthopaedic appointment on 12th when he may inject my hip again. I have had 2 injections, he said 3 is max, each time I have had 3 weeks pain relief, so i am counting the days for that now. But after the 3 weeks I dont know what I can do. My old life is slipping away. I used to love my job, love walking my dog, love visiting national trust properties and gardens, love being on the canal. Now I have tramadol and 'friends' on tv. Is this it?
    • tiswas24537
      tiswas24537 Xxxxxtttttttttt

      Posted

      oh god i know the feeling, i dont seem to be in as much pain as most of you

      at the moment i would say on a scale of 1-10 i am proberly about 4 but i do get flare ups that are just so painful iv wished for death because its preferable to just exsisting, which is what my life feels like,

      the fatigue its not so bad at the moment , either , i think most of my pain at the moment is coming from not being able to get out and about , in this heat, i was offered pain releif injections, but i know they limit them and i know it would be awful when they stop so thought i just manage my pain . in other ways.

  • gill74306
    gill74306 Xxxxxtttttttttt

    Posted

    Hi - I'm sorry you are in such pain. The drugs I take are Gabapentin, Tramadol and Naproxen.  Sounds like a lot I know but without them I would not be able to lead a fairly normal life - no pain anyway.  I would at least give Gabapentin a go - it was a lifesaver for me!
    • Xxxxxtttttttttt
      Xxxxxtttttttttt gill74306

      Posted

      Yes I was thinking about trying that again. Or pregablin, I will need to speak to gp again. I was prescribed Naproxen by pain clinic but gp said no as it is not suitable for me, pcant remember the reason now, maybe interaction with citalopram or another med I am on
    • tiswas24537
      tiswas24537 gill74306

      Posted

      just looked up Gabapentin sounds like if you choose to use it that your playing russian roulette with the rest of your health .

      but needs must, but seriously even on my flare ups that can last weeks i would rather just deal with it ,dont  want to add to my problems , two members of my family died horrid deaths from stomach and bowel cancer ,i dont want to increase my risk by taking such awfuly strong chemical drugs ,

      you spend most of your life being told to eat healthy and do excersise , then when stuff still goes wrong they bang you full of toxic chemicals . i for now will take my chances the natraul way for now , so far it seems to be keeping me steady.fingers crossed

  • tiswas24537
    tiswas24537 Xxxxxtttttttttt

    Posted

    they have all the info on this drug on. web MD SITE .

    SIDE effects for me are not worth the risk i have 6 out of the 8 possiable side effects as symptoms now dont want to increase anythese.

    • tiswas24537
      tiswas24537 mrsmop

      Posted

      Web MD was the first one that came up with straight forward advice,

      i didnt notice is it an american site

    • mrsmop
      mrsmop tiswas24537

      Posted

      I think when you go on WebMD, they offer you the option of staying on the American site [which I do, even though I'm in the UK] or going to the UK site, which is run by Boots.  I don't find the Boots site as comprehensive as WebMD
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