Savella for pain relief?

i am with you i have 6 out of the 8 possiable side effects as symptoms already so dont think i would bet trying it .

Yeh, fibro is bad enough without adding unnecessary complications. I wouldn't be game to add another drug to the equation

Thank you. I am just so desperate to have some relief. It is constant throughout the day and the night is so much worse. I wake several times through the night feeling like I have been hit by a bus. Last night it wasnt just the normal places, elbows, hips, hands, it was my knee too. The pain was unbearable and I end up thrashing about in agony. I honestly dont know how much more I can take. I have also noticed my fingers going mishaped and nodules on my top joints

nice to hear am not alone , i would just rather put up with the pain rather than run the risk of causing more problems i am at my limit with the restrictions now i dont want anymore problems

i think that to me sounds like rheumotiod arthrtus my eldest daughter has it

and she has very bad pain and diffitculty in bending her joints id get that checked out , iv not heard of nodules appearing on joints in fibro its a soft tissues condition that due to stiffness has a impact on the joints .

About 8 years ago I had a TIA and the stroke clinic sent me for a brain scan. When the results came back she insisted on seeing me again, even though there had been no lasting damage from the TIA. She asked me whether I had ever been tested for RA. I told her I actually had an appointment to see a spesh as a couple of other people had said same thing cos of severe pain in various places mirrored -both sides. Apparently the white matter on my brain looked as one would expect in a patient with RA. She wrote it down and told me I must give it to the specialist so I did.  The horrible woman I saw at the hospital, and I mean really horrible, no smiles, just snarls, looked disgusted when I gave her the letter, screwed it up, then asked me to lie on the trolley. She touched my toes, barely, and asked if it hurt. I couldnt believe it, she hardly touched them at all, literally just made contact, did the same with my fingers, barely touched them. Then said ' you havent got rheumatoid arthritis you can go'!! It was quite unbelievable! I asked what is it then? She told me to have some blood test and I never heard from her again. It was absolutely dreadful. Previously blood tests had not shown any rheumatoid factor but I had read that they dont always show up. So..... i dont know. When my hands swelled to double their size, one gp just laughed and said "oh you must have changed your washing powder or something". So dreadful her attitude was.. My hands have been swollen ever since and there is arthritis in them, that was about 18 years ago. Another time I saw the same gp with a urine infection (I used to get them frequently). She looked at the sample and said " well it doesnt look infected"!!!!! She never even tested it. I told her I had same symptoms as I had always had. Couldnt believe she said it didnt LOOK infected, god if we could tell by looking at something, we wouldnt need science labs at all! She said shed send it off but it looked ok. The next night I ended up in hospital screaming the place down in agony. My mum had to ring an ambulance. By the time they got round to me I was rolling on the floor in agony. My temperature was sky high and I ended up being in a few days with a dreadful infection. Its no wonder I have little faith in health professionals now

Oh dear me, you have been very badly treated.  I am appalled.

In England, you have PALS don't you?  You need to talk to someone, try Googling them and then contacting them.  My daughter's GP in Cambridge recommends them.  I live in Wales and they don't exist here.

Thats a good idea. I have just looked at the link you sent and yes I certainly have most of the symptoms, just not the weight loss, unfortunately! Lol. I put about two stone on after having steroids injected many years ago and have just never been able to lose it. But I do always have a fever. I sweat terribly and my temp is always high, also my pulse-so much so that I am having a heart monitor for a week. The pain is mirrored in my joints, i.e. Both hips, both shoulders, both elbows, both wrists, both ankles and definitely worse when I wake, about 20 times worse actually. And yes muscle aches too. Antibodies have shown in blood tests but cos the rheumatoid factor is not present they have dismissed it, but I just read again there that only 2 out of 3 people with RA actually have that present in blood. My gp told me that yes I have an auto immune disease but may never know what it is as there are over 80 types so all they can do is treat the symptoms, ie loads of crap pain pills. But if is is rheumatoid then there are different things you can take, gold injections apparently are good. I dread going back to the so called rheumy spesh they did nothing last time. Just wish someone would do something.

where in Wales are you? I am very near Flint

I am the opposite end!  I am near the end of the M4, in West Wales.

i have none , iv seen some stuff and members of my family have been as badly treated as yourself, so your not being singled out ,i know it feels like it.

my sister in law was told her stomach pains were all in her head for months then they decided to admit her for obsavtion [i think just to shut her up. told her after 4 days they told her there was nothing wrong , still in pain she packed and was on her way to meet my brother when she collasped and nearly died from gangereen of the stomach after a ruptured appendix. the nurse who assited on the op told sandra the next day ,she had never smelt any thing so bad on anyone who survived,

  if she gone home she would have died . the health service is a joke , its not about caring its about money

Yes that is true, its definitely about money, very little caring goes on. Gosh what a dreadful thing to happen to her!  They should have picked up on that way before it got to that point! Its not as though she wasnt telling them! Wow, that is bad!

yes and at the same time my brother was days away from loosing his leg she gone back to the doctors with him , and he didnt like the look of her so had her admitted,

mean while that same doctor who was a locom took one look at my brothers leg and got him an emergency appointment with a specialist , it was still a weeks wait , but when he saw the leg didnt even let him go home, what  his gp had told my brother was a puuled muscle 3 weeks prior, turned out to be what they call a gangling, a none cancerous growth ,

which instead of being only a few inches had grown right up his leg to his knee attaching it self to his calf muscle, it was only the skill of his surgeon that saved his leg , but it was touch and go, he now lives in france and every time a doctor sees it there ,they cant believe it was just a gangling, they tut and shake  there head.

i have very little faith in them . thank god for both my brother and sister inlaw that the locom was on the ball . they might have not been here other wise.

Wow! It goes to show how much it matters who you see! My son had meningitis when he was 3. The paediatrician was sending home saying he was just feeling sorry for him. My gp had already said what it was (a different gp!) and the nurses got a second opinion cos they knew too! Eventually the head of paediatrics came to see him, told me he wanted to do a lumbar puncture as he didnt want to take any chances, the ither gut actually argued with him in front of us, saying there was no need, he just had a virus and needed rest. But the main guy turned round to me and asked what I wanted. I said if you dont think we shoukd take any chances, I certainly dont! So he had it and when they came back with results they gave him a 50/50 chance of survival. It was dreadful. The first guy disappeared quickly and they covered for him at our outpatients later. He was lucky to survive and that was only cos of our old GP who immediately injected penicillin, she knew straight away, but the so called specialist didnt! He still suffers some of the effects now at 20.

ah bless ,with anything that serise they shouldnt take chances,

my husbands son had menningitis as a teenager , 19 his mum had to call the police because he was halusatating and fighting anyone who came near him,

luckly there was little doubt what was wrong once they had ruled out drugs , but it was along road back  and his been left with stomach trouble that needs steriods but at least like your son his still alive.

  arron and his wife  have gone on to have an unexpected baby

and she has rare medical condition to do with not making certain proteins , and their little boy whos just 2 has had his iq tested and it was found to be 180 , so there you go aaron was meant to survive and help produce maybe a futrue scienctist .lifes strange

Blimey, sounds like he is a genius already! Lol they have been blessed and I hope they have a really happy life together x

you can buy gold in liquid form , on line ,thats very good for auto immune problems

well a bumpy start they were planning a wedding, for sep two yrs ago when she found out she was 7months pregnant , so had to cancel they made it last yr just a quick quite wedding, his wife is the brain box so there little genius takes after her, ,. hope you get some relif today. try the gold .

Hi Tina,

i ordered that rhuematoid arthritis oil on the 29th  how long does it take to come, could do with it at the moment arthritis playing up, 

your family have certainly been through the mill, how do you keep your pain levels at about 4. Mine always seems to get worse at night. until I can get a handle on this anxiety can't see it getting any better, don't really want to resort to meds again if possible.

I can't say much to my husband because it worries  him, and he is not very well himself (heart trouble). and 82

Must be great to have someone who understands it all, and  is supportive.

really need someone to talk to.

Were you nervous when you went to the hypnotherapy, because i am, mind you I am the kind of person who likes things to happen now.

Pat

I will look into it thank you x