Scared this will never end now! Labyrinthitis

One more thing has anyone experienced earache with this...because I have dull earache both sides...? Thank you

Hi.

I first got labrynthitis in May this year and it has returned again. I've had it for 2 months so far! There have been weeks were I have literally been unable to get out of bed because the vertigo and nausea has been so bad. I recently started taking prochlorperqzine and this has really helped me! Last night for the first time in months I was able to go out for a meal without the dreaded vertigo and panic. The tinnitus is still really bad but the nausea has almost gone. I feel a million times better I would not wish labrynthitis on my worst enemy. I have always had ear problems from being cabin crew but does anybody know how long it takes to completely disappear? Will it happen overnight like my dr said??

Im 29 and have had labyrinthitis since end of July / beginning of August

I wasnt diagnosed until September so the first few weeks I was unmedicated andmy doctor said if I am given meds now it will be nausea calming tablets but they wont help the brain heal if I have dizziness meds so as yet I am unmedicated.

I gave up work a few weeks ago as I had no more sick leave and my job was compremised with being off ill so much.

I am currently suffering with the blurry head, faint feeling, ringing in my ears, nausea and loss of appetite.

I was getting better becuase in the beginning I couldnt even make it to my sons school, and was experiencing anxiety every day......it was better and last monday I even felt happy enough that I went out and did volunterring at an animal shelter and have been getting better going out and doing the school run etc - in fact I felt great compared to what I had felt

Wednesday I went shopping with my partner though into TKMAXX - downstairs was dimly lit and I was fine until I went upstairs and it was bright white light and I suddenly felt sick and faint so I left sharpish but the last few days Ive felt horrid again and Im not sure if its because I have a slight cold or the lights have triggered another episode.

Either way it is not fun

does anyone else find that computer screens/ phone screens and bright lights make theres worse - I was bad with crowds (and I mean running out of shops scared) which I have never had before......but Im just waiting for it to go now

Everyone else I know who has had it tells me they had meds in the first few weeks and after 2/3 weeks they are fine and back to themselves.....it took me over a month to even get diagnosed and I still feel awful.

I find warm/hot milk helps settle the nausea but its the brain shifts I cant cope with very well so I just lay down

Also I think Im going to start drinking lots of mineral water since I cant seem to eat very much thanks to the nausea - even cooking turns my stomach - so that probably isnt helping :-(

anyone wants to chat about it - please feel free to message me . I havent been back to the doctors since the middle of October.

Hi!! I am still suffering from this and after the post I previously

Posted it has got better but only if I'm taking my tablets 3 times a day...if I feel like its disappeared and stop taking them, it returns!! It did disappear for around 2 weeks but a cold brought it back on. My doctor has told me it can last for a very long time and has given me some head excercises to do.

At first I couldn't look at bright lights or be around crowds of people in shops without panicking and having to get out (horrible feeling) but now that has got a lot better and my anxiety from it has gone.

The tinnitus however, is really really bad. The ringing in my ears is that loud it sometimes gives me a headache and if it's low pitch noises, it makes me feel like my head is shaking.

This just seems like a problem that can only disappear in time and there's nothing that can help with the process. Obviously taking tablets works for a short while but I can't take them forever. Have you been to see an ENT specialist yet? I'm going next week so hopefully they can help in some way!!!

I've recently developed labyrinthitis and am taking 16mg serc 3 times a day. Does anybody know how long it will take for them to start working? I have a constant low grade dizziness and feel heavy and foggy headed all the time, are these symptoms like anyone elses?

Thanks!

Hi everyone, I hope you're all doing ok.

I'm a 19 year old student, who got labryinthitis just weeks after starting my first year.

I'm wondering if this definitely goes? I know it can last a long time but surely it can't be permanent? It's no way to live, it's making my time here impossible.

Thanks for any response

Hi everyone, I was diagnosed with Labryinthis about 7 weeks ago and like everyone here, this illness has taken me to hell and back. However, with this post, i want those reading it to see that there is hope in the end. Like everyone, i suffered the same symptomsm of vertigo, lightheaded-ness, neaseua, and was always very tired. I woke up manyy mornings hysterically crying wishing it would go away . This illness not only affects you physically, but i think more so mentally. I suffered a lot of depression and anxiety because of it. However, once i started to become more positive I noticed then I wouuld slowly start to get better. The first step is to accept the fact that this illness may take a few months to go away and that is OKAY. Once you accept that, you are able to move on and then start to help yourself. The one thing i always told myself was that I was never going to die from this illness. It is very uncomfortable, howevever some people are waiting for a cure from their cancer, and imagine what goes on in their head. I still do not take any medication for the vertigo as i feel it limits you from getting better. I also started to make a dizzy diary and kept track of times throughout the day that i would feel the most dizzy and lightheaded. This really allowed me to understand some lifestyle changes i had to make in order to get better, such as not looking at my phone or the tv first thing in the morning. Furthermore, i started to do yoga and simple eye exercises twice a day, which helped tremendously. I also did a lot of meditation and trusted in prayer. I tried to keep my days as normal as possible, but i slowed down everything i did by 80% and never pushed myself at anything. Through my research on labrythinthis, i found that it affects and has a lasting affect on the majority of people who suffer from anxiety, stress and depression quite often. I myself, suffered a great deal of anxiety and stress in my life. However, this illness has taught me to cope with life stresses in a more positive and peaceful way. I have made a lot of liffestyle changes from my diet, to my everyday routine, to my relationships because of labryinthis. While it has not completely gone away, and i have many attacks throughout the day,i take it one day at a time and try to keep positive outlook. From this point on, it will always get better

Hi everyone,

So I think I have been suffering from labyrinthitis for 4 weeks now, I woke up one Sunday morning feeling fine, and about an hour after getting up I had a very sharp pain in my head which lasted a few seconds and straight after I felt very dizzy which has lasted ever since. What I would like to know is has anyone else suffering from this suffered from very tight neck and shoulders, for me this is the worst part of all and I also get bad tremours and heart palpitations!! I am starting to feel like I'm going mad and it could be something a lot more serious, it's hard to try and explain to people as I feel like know one understands. Teacher123 I loved your last post and I completely agree that anxiety can make this 10 times worse, I think I have been suffering a lot from anxiety. It's just so hard to try and relax as anxiety brings on more symptoms which makes you feel even more crazy!!

Hello to everyone I'm 58 have very similar symptoms as Guest. after stress and it got worse after flight to Spain in October. I had to see doctor in Estepona in private clinic and been prescribed :Sulpiride 50 mg, Diazepam 5 mg and Paracetamol 2x500mg. I was really out of balance could walk holding the wal only, after week on Sulpiride and Paracetamol I felt better but had dizzy spells. After returning home I went to GP who told me that Spanish doctors are funny ( which raised my hope that British doctors should be better ) Hmmm I been prescribed Serc, next visit to GP -Cinnarizine and he made appointment to see ENT specialist. After waiting for 2 month I went to see private ENT . He performed Empley on me and it put me strait back where I'm started/. No MRI or any other test was done . GP told me he can't do anything for me and had I strong impression he doesn't want to see me with the same problem anymore .

I have been on many British and foreign sites and everywhere said that MRI or MRA scan should be done because in some cases it could be tumor .

Went today to see physiotherapist who sending me to hospital to do some test -because I have stiff neck after all this trouble. As read in Internet it is very common to have anxiety with vertigo, hot /cold flashes . But doctors prefer to ignore it for some reason. Good luck to all. Keep trying . Don't leave yr. GP untill they will do something. They paid well enough to be interested in us.

Hi

I've been suffering with labrynthitis since August 2013. It did completely go away after a few months but in December I caught a bug and had an allergic reaction to amoxicillin and the vertigo has now returned again. I take prochlor 3 times a day and although it does help, I still feel light headed and foggy headed sometimes. I am only 23 and this has really affected me. The anxiety I got was terrible, I have now learned you have to remain totally calm when the vertigo comes over you and don't panic at all and it has got a little better. I am going to request a scan just to reassure myself this is just labrynthitis. This time I have. Had more of a sick feeling with it.

I would not with this on anybody. Such a horrible illness.

I started with same symptoms in November...

Sharp pain in head, dizzyness... Went to a&e and was tingling down my left side at this stage..

My vision and speachieved were affected also.. I was sent home saying it was a panic attack.

I have had great help from my doc...CT scan, chest xray, cardiac stress test etc..

I have however not had my ent appointment through yet.

I have had left ear pain for 5 week's now. with ringing,whooshing sounds.and internal pressure..

Nausea comes and goes at will....

I have found my symptoms ease if I pop my ears by holding my nose.

My left side takes ages to pop but my symptoms go away..

I now pop my ears about 10 times throughout the day and it really help.

This may work for others too.

My neck and ear pain eases right down, nausea passes and woozy feeling goes..

This is a horrible condition that I've had since mid November 2013..

I have just been back to my doctor this morning as I've now had enough of this since may last year! 23 years old and it's affecting my social life a lot, can't remember the last time I had a night out or was able to socialise with friends properly! He has now finally referred me to a labrynthitis specialist doctor! I still haven't had a CT scan or MRI scan like most of you...do you think this is something I should request?

Hi Ashleigh- how are you feeling now? I haven't had an MRI yet either. I am going on a full month with this.

I was first diagnosed with Labyrinthitis in 2011 - where I suffered dizziness, blurry vision, headaches, near-fainting episodes, night sweats and other symptoms for 7 months. I had an MRI and blood tests which were both negative. It recovered completely, and I cannot pinpoint when or how it resolved.

In August 2013, I was driving and suddenly felt dizzy to the point where I pulled over in fear of fainting. Over the next weeks, I had several attacks of vertigo accompanied by panic. By October I felt bed-ridden sick and had ringing in my ears with lots of ear pressure and popping, along with headaches, nausea and anxiety. I took a course of antibiotics which cleared up my ears and improved my general feeling of sickness/nausea, but by this time I again had 24/7 dizziness, blurry vision, light-headedness, brain fog and near-fainting episodes - along with excessive anxiety.

Over the next months I had bouts of bronchitis, a chronic sinus infection and am now being treated for acid reflux which has caused damage to my throat. Alongside this, the dizziness persists. I wake up every morning feeling slightly feverish and am constantly in a haze, almost like being drunk. I'm excessively clumsy and absent minded. Sharp movements, exercise, busy environments, stressful situations and hangovers (although I swore of alcohol 3 months ago) all seem to exacerbate the condition.

It's worth mentioning that quitting smoking seems to have been a trigger for me on both occassions, although I had stopped at other times without experiencing any dizzy symptoms.

Like a lot of people here, I've clearly developed an anxiety issue. I'm planning on seeing a psychologist as I'm wondering if there's a link between stress/muscle tension and this condition. It also resembles what I've read about depersonalisation/derealisation, although at this point I'm finding myself double guessing what is going on as it's hard to believe that this is indeed all related to an inner ear condition.