Scared this will never end now! Labyrinthitis
Posted , 29 users are following.
Hi - I must say after reading all these comments I am reassured in some ways but feel like this is something which I may have on & off all my life now..
My experience started end of May 2009 - June 2009 - I was in work and started with an intense headache in the afternoon and a cotton wool feeling in my head, and a tight feeling like I had a band around my head ..I felt dizzy and nauseous. It was frightening and brought on palpitations... it went away gradually that evening but came back the following day at work. I saw my GP that day who told me it was viral labyrinthitis, I was given SERC, they didn't help really. I continued to go to work as there was a major change ahead, moving to a new team, new area, new colleagues etc... and I didn't want to miss anything or let my new team / manager down by being off sick. Silly I know.. Anyway, I had a change of medication, Prochlorperazine but little change in my condition. It lasted around 4-6 weeks and then just disappeared.
Now it has started again... I woke Monday morning (8 March) with a bad headache, told my employer I would take some tablets and go back to bed and hopefully be in work later that day. I woke just before midday and had the lightheaded, dizzy feeling, felt nauseous, my legs were heavy and my walking clumsy. I veered to the left as I walked, knocking into door frames. My head was spinning. I didn't go to work. Tuesday I felt the same, if not worse and managed to get an appointment at the GP, viral labrynthitis again and a 7 day script for prochlorperazine. I stumbled into a chest of drawers last night after having a shower and knocked everything off, I feel drunk all the time and disorientated at times. I tried to do some work at home on my laptop but my co-ordination was awful and I was continually deleting spelling mistakes. The tablets don't seem to be making any difference. My appetite isn't too good and my stomach's been a bit off. What I find interesting is that there seems to be a link with anxiety. I have suffered with bad anxiety for about 18 months - 2 years and have been having CBT sessions, I think it has got worse recently as my headaches have been constant and I've had really bad tension in my neck and shoulders. Maybe that's what's kicked off this episode? I'm not looking forward to several weeks of this, I can't take any more time off work after this week as there are procedures which we are put through if we have a lot of sick leave, you basically jeopardise your job if you are off sick. That doesn't help..
I'll be interested to see if the Power Plate works as I bought one some weeks ago (not for this purpose but for general toning...). Going back my GP next Weds as my script will run out.
Would be interested to hear of anybody else's experiences, especially if there's light at the end of the tunnel.... :?
Hannah
2 likes, 64 replies
Chase-Rae Guest
Posted
pili41981 Guest
Posted
tiff2 pili41981
Posted
I'm happy to say that my symptoms have drastically improved. I believe figuring out the root cause of your symptoms is important. I believe mine either stemmed from hormonal changes or possibly from a root canal. For me, doing high intensity work outs, even when I was dizzy, helped my body to compensate for the vertigo. Kind of like the balance training, but just lots of jumping around. Sounds weird, but it worked for me.
charlotteb11 Guest
Posted
I know this was quite a few years ago now but just wondered if anyone had an advice for me.... I was diagnosed with labyrinthitis in November this year after waking up feeling dizzy and sick. GP did all the checks with moving my head around etc which made me feel quite unsteady and said it was caused by a viral infection. It seems to be hanging around me and I have good days and bad days now. I suffer with coeliac disease which means my immune system isn’t the best, and I’m also only 21! I still have ear pain, slight dizziness and nausea and I am just desperate for it to go away now! Did anyone else feel really tired and unwell most of the time? It wakes me up at night! I also suffer with anxiety which I feel may be prolonging my suffering and can encourage episodes of dizziness, nausea and loss of appetite.
I would really appreciate any advice anyone has to help get over this horrible illness!! Thank you, Charlotte x
shari38192 Guest
Posted
My 17 yr old son has all the symptoms of vestibular neuritis / labyrinthitis... Vertigo sensitivity to light and high pitch sounds tingling in his head ringing in the ears fullness in his ear hearing that goes in and out in his right ear... But the ENT insist it's migraines because of his age. He's had balance testing and he is currently doing physical therapy we were starting to see an improvement but then they gave him a migraine prevention drug we took him off of it after a week because the side effects are so bad and made him feel worse we've had an MRI done they can't read the MRI so we have to see a neurologist I want a diagnosis it's very frustrating. Call it an intuition but I know it's not migraines I would just like a diagnosis
jessica39365 shari38192
Posted
jessica39365
Posted
shari38192 jessica39365
Posted
Thanks for replying! I would really appreciate any suggestions or help with this. We are so frustrated! My son had a very bad ear infection in January then he had vertigo that never went away when the infection cleared. He had wax removed then he became sensitive to sound and lights. The balance tested showed vestibular neuritis but the ENT thinks because of his age (17) and Vest. Neuritis normally shows up in older people they are insisting its migraines. And they literally told me they're not that concerned with his vertigo because he's young. He can barely go to school and his grades are slipping. Could this be inflammation of a nerve? Is there an easy fix? What about an anti-inflammatory? We are hoping he gets better with the exercises. Any information would be greatly appreciated!