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Self diagnosing please help!

Posted , 6 users are following.

nataliefranc
nataliefranc

Hi after 5 years of on & off pain. A lot of worry and stress which has helped in the break up of 2 relationships both involving children I am sick of the doctors ignoring the fact that I think I have cp and fobbing me off with ibs and pills. 

Obviously I'm hoping I don't have it as over the years I've reaserched probably every google site so I feel I'm a bit of an expert and it sounds like a horrible disease. 

I was just wondering if any of you have it but have absolutely no vomiting, feeling sick from time to time but no actual vomiting and normal healthy coloured stools, not ever pale even when diarreha palest they have ever been is yellowish when tummy is very upset but never clay coloured. 

My only symptom is the pain. After 5 years of it would I be vomiting and having pale or oily stools?

My pain is also never disabling just stabs at me under left rib, under breast, in my side and back every now and again for a few seconds. 

Any tests I've had are clear. Most were 4 years ago so I don't really count them but recently had bloods done several times, stool test, ultrasound they were all clear. Should I just trust my doc and try and let the cp thing go? I do have specialist appoint next month but the worry in the mean time is driving me mad! 

Natalie x (age 32)

0 likes, 20 replies

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  • nataliefranc
    nataliefranc

    Posted

    I also feel quite itchy on the affected area not sure if this is linked. 
  • manda1030
    manda1030 nataliefranc

    Posted

    I have had cp for 5 years I have had surgery and need more my mri showed major scar damage because it took them so long to figure it out. I developed stones in my ducts. I have had stents placed through ercp. I need them replaced evey few years as I develop stones frequently. I have constant pain it brings me to tears. And been hospitalized many occasions close to death. I can not eat any meat or protein as my pancreas has stopped being able to digest any protein or fat. I have not found an enzyme my body will except. I go through vomiting about once a month for a week or two. Also diarrhea. My stools float and are pale. I have been told they can do no more for me. I am so bad I am now house and practically bed bound I am so very weak. Also I am very pale with constant pain. Quality of life is a joke I hope I die. I do itch badly my stomach drives Me crazy. If you think you have this be persistent as it is hard to diagnosis. I also have auto immune disorders. Don't know if this helps everyone is different. Yes some people have little or no pain. I wish you the best and pray you do not have this. I will answer any questions you have as honest as I can.
    • nataliefranc
      nataliefranc manda1030

      Posted

      I am so sorry to hear you are suffering so badly with this horrible disease. It seems so hard to diagnose. Have you been in this pain and had all these symptoms for the whole 5 years? What were your first symptoms? Like I said I never vomit and my stools are fine never float, not fatty or oily or pale. 

      Are u in the uk was it your gp that kept missing it and who finally diagnosed you? 

      My pain started just below my ribs 5 years ago I did hope it was bowel as it rumbles when I pushed it and seemed to ease with passing gas. That's when all tests were clear. I split with an ex partner and all symptoms went for over a year until I had my 3rd child by c-section month or so after having it the same thing came back and it's been almost 2 years of it now. Last month or so it's got worse with now stabbing pains under breast, in side and back and feeling of ribs feeling bruised and tender sometimes. It's never a pain that puts me in hospital it's just gets me down day after day worrying and dealing with 3 children alone. 

      I have become obsessed with googling symptoms and my anxiety over it all is driving me crazy. I used to drink daily which is what it worries me so much. Pain used to be worse day after alcohol. I haven't drank now for a month and don't intend to again but pain is still there. I can eat anything really some things just make me feel a bit clogged up and windy and I need to lie on my tummy till wind passes.

      Pain is better lying flat on my back than leaning forward. 

      The itching is strange, I read it's when you become jaundice but I'm not at all yellow so don't know why I feel itchy where pain is. Hoping it's psychological due to reading that it's a symptom! Just hate having no answers it's making me so depressed. 

      Thanks so much for your reply I hope u find a miracle and get some quality of life back x

    • manda1030
      manda1030 nataliefranc

      Posted

      Hi sweetie at first it was just pain like yours. Then I started vomiting till I was under 100 pounds

       I am in us Dr were I am suck. I have some symptoms of jaundice but not a lot my tongue is yellow. You did good stopping drinking I been sober 11 years

       I was told if I drink I die. I do have one suggestion try to switch to a low fat diet. Probably not as extreme as mine. I can only have 20 total fat grams per day total fat not just saturated. I was diagnosed in the hospital finally after my 20th attempt and many many tests. My enzyme count was 4,000 it is supposed to be 300 or less. Persistent talking to Drs finally figured it out too late unfortunately I have a young child I understand it is hard I have no energy and persistent pain for two years. I wish you the very best my advice go with your gut. Its better to be persistent believe me it could save your life

      Always around if you need to talk doll.

    • nataliefranc
      nataliefranc manda1030

      Posted

      Thank you. I have appointment with a gastro specialist soon so I'm hoping he will listen to me and either put my mind at rest or diagnose me once and for all! 
    • manda1030
      manda1030 nataliefranc

      Posted

      Make sure he does mri , blood tests, and endoscopy if your numbers are higher than 300 and he says your fine get a second opinion. You know your body better than they do. I do wonder though you could have chrons or ibs. Also gluten intolerance is a sign. I will ease your mind by saying I have faith you will find your answer. Keep on going I am here for you.
    • nataliefranc
      nataliefranc manda1030

      Posted

      Thank you. I haven't had a MRI yet I had ct about 4 years ago and camera down my throat but nothing was found. I'm praying it's ibs as I have suffered with ibs since being a child but it's never just affected my upper left abdomen until 5 years ago it used to be lower tummy that had pain. 

      Had loads of blood tests over the years quite a few recently they all come back normal so did the stool test and ultrasound I had a year ago she said as I'm slim she could see pancreas well and it looked fine. Just wish I could believe them and stop driving myself crazy! 

      I am fit and well other than all this and have no history of cp in my family but I do have history of ibs from my mothers side. My dad's been an alcoholic for about 40 years and he's fit and he has healthy liver and pancreas! Just seems so unfair that about 7 years of me drinking more than I should may of caused me this horrible disease!

      Do you know what caused yours? 

    • manda1030
      manda1030 nataliefranc

      Posted

      Unfortunately I had everything against me I drank ten years, it runs on both sides of my family my dad is dying from it, I also have auto immune disorders RA and and auto immune gastritis. I guess you could say I was kind of doomed from the beginning.
    • nataliefranc
      nataliefranc manda1030

      Posted

      I'm very sorry to hear that. It's amazing how many people lose sympathy when u say u have drank! All my friends drink as much as I did I didn't think I was doing anything that would cause such a horrible thing! I regularly had kidney and liver function tests as I used to worry about that but didn't even know what the pancreas was! My tests were always clear so I just just carried on. Wish I hadn't now! Hopefully my gp is right and it's not cp. can't help thinking the worst! I'm not a very positive person. 

      Thank you for the chat. I'm also here any time u want to talk must be terrible for you x

    • manda1030
      manda1030 nataliefranc

      Posted

      I have learned to cope it does make you feel regret to know something I did so long ago could have caused this. I can tell you I struggle with being here it has all but wrecked my marriage. My child crys seeing me in so much pain. My suffering I could handle but theirs is so hard. It makes me sad that I was able to do so much before and took my life for granted. The little things keep me going. I am sorry you are scared but catching it earlier is key. Who knows how long I have truly had it. Try to focus on things that make you happy. Life is short enjoy what you can. Ibs is nothing to great either so I am sorry I hope it is something really simple. My thoughts are with you just try to think the best. I don't like Drs. So part of this is my own fault I should have pushed harder but didn't. All we can do is love our children give them all we can I may not see mine grow up. Makes me sad I am already loosing my dad he is only in his 50's. I don't want my child to feel that pain. So I will try to fight as long as I can for him. Hugs and healing thoughts sent your way. 
    • rose04684
      rose04684 manda1030

      Posted

      Other side of that,  I have chronic pancreatitis from damage from gall stones that kind of "plugged" me up twice before surgery.  I get what I call "that look" from doctors and they ask if I am still an alcoholic.  Tunnel vision is dangerous in the medical profession.  
    • manda1030
      manda1030 nataliefranc

      Posted

      Just checking up on you doll. Let me know how you are doing either way.
    • manda1030
      manda1030 rose04684

      Posted

      I so agree with you I have been sober 11 years I was young when I drank. I am in my 30's
    • lynnstez
      lynnstez rose04684

      Posted

      Hi rose just been reading your reply. I to had acute pancreatitis due to gallstones but they let me get it 5 times before they removed my gallbladder i to am t total never been a drinker but I'm sure I get attacks of pancreatitis had ct scan and they said all wad okay.was up.last night with severe belly cramp's. And feel generally unwell today. Had colonoscopies and endoscopy all fine.do suffer with constipation though.my anxiety is through the roof cause I'm convinced I've got chronic pancreatitis. What are your symptoms 
    • amanda30366
      amanda30366 manda1030

      Posted

      I have some questions for you if you don't mind. First I'd like to tell u my symptoms. It started this time 3 weeks ago. I started off not sick but vomiting green not yellow but green. I could not keep any liquids down that alone solids. Then after 3 days of trying to stay drinking I just quit besides a minimal drink here and there of Gatorade still continued to vomit. Then I just kept not eating drinking very minimal and now I'm not vomiting but I am so sore under my left rib across my left ab. It puffs out alot.Maybe a flare up. It feels like something is rubbing undefined my rib and it's so tender and sore. I havent vomited for 4 to 5 days but nautius several times throughout the day. I am pretty much been stuck in my bed for these several weeks. My stool started out oily and pale to now dark and constipated and i puff out in my left rib/ab now.I am so scared its pancreatis. I went on a drinking binge last year and drank every single day for a month. Noe i dont drink an occaisional beer or mixed drink however both last 2 times once with beer and once a mixed drink it is like alcohol is poison so i havent had not one more drink. Do these signs sound familiar any thoughts or opions will help thanks hun

    • amanda30366
      amanda30366

      Posted

      Also I am still eating very little like maybe a bowl of shredded wheat a day and still I swell. Also these same symptoms I had last year.
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