1. Community
  2. Ears, nose, throat and mouth
  3. Meniere's Disease

Sever hearing loss on both ears because of Menieres

Posted , 7 users are following.

Marioscy
Marioscy

can Meniere affect first the one ear and then the other one?

 

0 likes, 25 replies

25 Replies

Next
  • christine_35821
    christine_35821 Marioscy

    Posted

    Are you in America?  I know from other support groups that treatment is different from uk where I am. You need to talk to a neuro-otologist. I think I’ve got that right. That’s where I am now - looking for more comprehensive advice by a specialist in Meniere’s. My local ent guy was perfunctory to say the least. In another discussion on this site there is a link to a book/web site called www.mindovermenieres.com which I and another person found helpful and insightful. He is American and gives useful advice and links. I personally take betahistine 16mg x 3 times daily and this so far has controlled the vertigo. It seems to work by reducing the pressure in the ear which research tells me this is what contributes to the damage and hearing loss. I read everything can find on the subject including all the discussions. Drives me crazy sometimes!

    • Marioscy
      Marioscy christine_35821

      Posted

      Actually i am from a small island,Cyprus. There No neuro-otologist here. i also take betahistine 3 *16 a day (sometimes i make the mistake to take only 2 times but then i take it 3 times because i get a lot of the symptoms). My vertigo attacks are somehow reduced but not the noise in my ears and the reduced of hearing.

      I will have a look at this site u told me

      thanks 

  • Dean1946
    Dean1946 Marioscy

    Posted

    When I was diagnosed I already had it in both ears with hearing loss. With two rounds of intratympanic steroids and one round of streptomycin, injections my hearing has greatly improved in right eat. To have another round of steroids in left ear due to continued vertigo.
    • Marioscy
      Marioscy Dean1946

      Posted

      thanks Dean, I am really considering it. Even thought the idea of putting something in my ear scares me a lot. was it painfull?
    • Dean1946
      Dean1946 Marioscy

      Posted

      Not painful because my Dr uses Propofol to sedate you. Procedure doesn’t last long and you wake up in recovery room. He has you lay on injected ear side for two hours , I know some Dr’s just put local anesthetic in ear with no sedation. I talked with a man that had the local and he said it hurt, I’ve only talked to one person that had local anesthesia, so I don’t know if he is a typical case. I’m just glad my Dr. “knocks you out”.  No pain after procedure.
  • JMJ
    JMJ Marioscy

    Posted

    Dear Marioscy,

    I’m so sorry to hear that you’ve got it bilaterally.   I can tell you that I  have had intratympanic steroid injections in my right ear, and that they have greatly improved both my hearing and my tinnitus in that ear, over the long run.  For me, it was a cumulative effect, after several injections.

    Wishing you all the best!

    J-

    • Marioscy
      Marioscy JMJ

      Posted

      Did you get some of u hearing back?
    • JMJ
      JMJ Marioscy

      Posted

      Yes I did.  I went from investigating hearing aids, to realizing that I no longer needed them.  My hearing is much better, now. 

      J-

    • christine_35821
      christine_35821 JMJ

      Posted

      Hello JMJ. I just googled intratympanic steroid injections and it doesn’t appear to be available in uk. Not on our NHS anyway. Are you in America?
    • JMJ
      JMJ christine_35821

      Posted

      Hi Christine,

      I’m sorry I missed your question until just now!  Yes, I’m in the U.S.  But I could have sworn  intratympanic steroid injections were also available in the UK.  Anyone from the UK have any experience with this?

      Wish you the very best of luck!

      J-

  • roxanne76357
    roxanne76357 Marioscy

    Posted

    I wish I knew that answer. Is that what is happening with you? It's my biggest fear.

    • Marioscy
      Marioscy roxanne76357

      Posted

      Yes unfortunately. Meniere  it is a non lethal disease but when i get all these symptoms i sometimes when i can not handle it wish that it was
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.