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Severe fatique but am down to 1 mg pred and still on methotrexate

Posted , 14 users are following.

marilyn79703
marilyn79703

So why am I so exhausted now. Been down to 1 mg for 6 days and am o-k with only some pain but can hardly get out of my own way. Pmr for over 1 year and so glad I am able to get to 1 mg but what is with the tired feeling. I could stay in bed the whole day it seems. Nothing stressful going on so what is wrong?

1 like, 36 replies

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  • linda06830
    linda06830 marilyn79703

    Posted

    New to forum; so thankful to have found it.  PMR for about a year and a half.  Prednisone was taken and felt so much better for a couple of months.  Have taken paquenal, methotrexate, and currently on leflunomide, also am on 9 mg. of prednisone.  I, too, experience extreme fatigue, mood swings, and no desire to do anything fun or homewise.  So tired of feeling this way!  I've concluded that I will neev
    • marilyn79703
      marilyn79703 linda06830

      Posted

      This is truley an illness for only the brave. I never heard of pmr till i got it. Never had such pain, mood swing. tired all the time and do not even like to shop. I said if someone gave me a bunch of money and told me to go shopping I would have to turn them down. Never had something that took everything out of me like this. Hope you feel well or better soon.
    • linda06830
      linda06830 marilyn79703

      Posted

      You're right, not for sissies and am not feeling very brave at this time.  Often wonder if I ever will be totally pain free.  Not a fun way to start retirement!  I don't know anyone else except an ex-sister-in-law that sufferes from PMR.  She, however, is in a semi-remission and not having difficulties that I've had.  Am quite certain people assume we are lazy hypochondriacs, but if they only knew.  Hope you feel better soon, too.
  • margaret22251
    margaret22251 marilyn79703

    Posted

    well done, but what dose did you start on, it does not seem a long time to me,. but i am still a newbie, i have been on 10mg for 7 months and still trying to get to nine.

    Hope you keep well

     

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