Severe tingling, burning + pain in both legs
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Hi everyone,
I've been having severe tingling and pain in both my legs (toes, feet, calves and knees) for about seven months now. On running a few tests, I found six months ago that I was deficient in vitamins B12 and D, which was set right. The neurologist said my symptoms were due to the deficiency, however, the condition has steadily worsened in spite of the deficiency being rectified.
Here are the tests I've done:
Vitamin B12 and D: Levels stable for the last 4 months
Thyroid: Normal
Sodium, calcium, potassium: Normal
Iron: Normal
Bloodwork, ANA, dsDNA all normal.
Rheumatoid factor negative.
The pain is worse at night and while lying down. The docs have told me I've got Restless Leg Syndrome. I took Pregabalin for about a month and Ropinirole for ten days but both didn't help with the tingling - in fact the side effects were terrible.
I'm not on any medication as of now and the pain + tingling has worsened, now almost constant, like there's electricity shooting up my legs all the time. I'm unable to do anything physically exerting like climbing stairs. Walking makes my feet hurt terribly (which I believe is not the case in RLS?).
Does anyone have suggestions to confirm the diagnosis? Is there something I'm missing? I'm due for an LS MRI, but the docs have said it is most likely to come clear.
Thanks a ton!
17 likes, 568 replies
Peonygirl1 moimystique
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jodie39832 Peonygirl1
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Did your issues show up on a nerve conduction test? I just had one done today and he said it was normal.
Thanks,
Peonygirl1 jodie39832
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Agony_lad moimystique
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joao42518 moimystique
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I have been reading these posts and I can recognize some of the problems presented. I have numbness and tingling on both my feet for more than 6 years, went to several doctors I have done all kind of exams blood tests, NMR´s to my column and head, tumor blood markers that came lucky me negative, 2 complete electromyography exams, on my feet, legs and arms and up to very recently no special indication why this was happening. In the past 3 months things got much worst and I started having this feeling coming up both my legs, a bit on some parts of my upper thorax and then to my face and lips. I went again to my neurologist and after another NMR on my column they discovered something very subtle was wrong with one of my vertebras that was causing this new phenomena, with probably pressure on some nerves, but nothing related to my feet, then I have done another electromyography now only to my lower part of my legs and feet, by a neurologist specialized in this area in a University Hospital and he very quickly discovered that I probably have what they call Morton neuroma, a condition that you can see a lot on the net, that has a lot of the synthons I feel, except pain, because I do not feel any pain, but a lot of discomfort specially at night when I lay down and feel my feet touching the sheets, with this feeling of numbness and tingling that sometimes does not allow me to get to sleep. Next week I am going to do an echography to my feet to see if this is what I have and prepare for a good treatment afterword’s. Hope this has helped you a bit
marie16426 joao42518
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Brumar moimystique
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I am learning a lot just from reading of of your texts. My malady sounds exactly like all of your symptoms. Some time my symptoms are almost unbearable but at other times everything feels cool and normal. I wonder what gives. I am just beginning to worry about what to do. I went to a podiatrists and she told me what shoes to buy which I did and of course it didn't help. Now she wants me to take lyrica which I am not doing because of what I have heard about the side effects. What other kind of doctor should I go to. A neurologist? I am on regular medicare. I don't want to pay it out of pocket. I have had the PAD test negative for any problem. What other test should I have. What about vitamin deficiency. My doctor always tests my thyroid and Vitamin D. I used to exercise regularly and with weights and at first I thought I was abusing my feet what with all the treadmill fast walking and stairs walking and rope jumping. But I quit all that and am now into yoga and plan to start swimming to better treat my feet but nothing is helping. Any suggestions.
matt66 Brumar
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Medication as an alternative could include gabapentin or pregablin.
sorry if you have seen these suggestions before as I have not read the entire post. Good luck.
PinoM655 moimystique
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I have had this problem for over 2 years and have tried everything. Preipherial Neurophathy is a mystery to GP's and all they will do is refer you to a Neuroligest.
I went on Gabapentin about 6 months ago with some success. Then as a last resort I have had Accupuncture for about 5 weeks. There has been a big improvement and I have made up my mind to continue with this weekly for 12 weeks as i am definatley improving. I take 900mg Gabapentin a day I hope to start gradually reducing them.
Brumar PinoM655
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I am taking electrical stimulation in my feet to stimulate my pelvic area for another problem with a gynecologist. I wonder if that could be causing it. I dont remember if I had this foot problem before I started getting the electrical stimulation in my feet. I'll do some digging on that.
ni68403 moimystique
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Sounds like Myalgic Encephalopathy to me. I get this too. I kept a diary hour by hour of the things I used to do, and from that identified that I can only do activities 3hrs at a time. To reduce the pain, you need to rest your legs more, soak your feet in luke warm water, have regular baths. Try sleeping with your legs supported by pillows, this helps to reduce the pain too. I attended an M. E Clinic and learned more about the condition and found keeping the diary and following the above hints, by legs are not so bad. It's about pacing your life and your body.
rebecca74737 ni68403
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What did it take for you to get diagnosed? Im suffering terribly and in a lot of pain on a daily basis and most of my doctors keep saying I don't know. What tests were run on you to get a diagnosis?
judy11606 rebecca74737
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ni68403 judy11606
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ni68403
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tammy97474 ni68403
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