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Severe tingling, burning + pain in both legs

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moimystique
moimystique

​​

H​i everyone,

I've been having severe tingling and pain in both my legs (toes, feet, calves and knees) for about seven months now. On running a few tests, I found six months ago that I was deficient in vitamins B12 and D, which was set right. The neurologist said my symptoms were due to the deficiency, however, the condition has steadily worsened in spite of the deficiency being rectified.

Here are the tests I've done:

Vitamin B12 and D: Levels stable for the last 4 months

Thyroid: Normal

Sodium, calcium, potassium: Normal

Iron: Normal

Bloodwork, ANA, dsDNA all normal.

Rheumatoid factor negative.

The pain is worse at night and while lying down. The docs have told me I've got Restless Leg Syndrome. I took Pregabalin for about a month and Ropinirole for ten days but both didn't help with the tingling - in fact the side effects were terrible.

I'm not on any medication as of now and the pain + tingling has worsened, now almost constant, like there's electricity shooting up my legs all the time. I'm unable to do anything physically exerting like climbing stairs. Walking makes my feet hurt terribly (which I believe is not the case in RLS?).

Does anyone have suggestions to confirm the diagnosis? Is there something I'm missing? I'm due for an LS MRI, but the docs have said it is most likely to come clear.

Thanks a ton!

17 likes, 568 replies

568 Replies

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  • katie159
    katie159 moimystique

    Posted

    Hi all, do some internet searches regarding histamine and neuropathy to see if your troubles are being caused by histamine intolerance. Wish you all, all the best in your search for relief.
  • Jimjamcolly
    Jimjamcolly moimystique

    Posted

    Hi ..just wondering how you are getting on I have the same symptoms as you .they are giving me 250000 vitamin d a week as it's low so they think this might be the reason . It can take 3 months I'm in so much pain .thank u

    • Jimjamcolly
      Jimjamcolly jane75220

      Posted

      No they havent..just Vitamin D came back 17.. Can Vitamon B12 cause the same symptons .. I have been on Lyrica which was useless, im now taking Amtripaline 25mg which is giving some relief but I am so tired with it .. Im so glad other people have the same symtons.. I have been driving myself crazy
    • jane75220
      jane75220 Jimjamcolly

      Posted

      Sorry to take all this time to answer but have been offline.

      ​Vitamin B12 deficiency or pernicius anaemia can be the reason why one has peripheral neuropathy. If you are unable to absorb Vit B12 then drs ca prescribe injections. If you see the pernicious anaemia society you will see lots of info on burning legs etc.

       

  • allen49243
    allen49243 moimystique

    Posted

    Hi I have Peripheral Neuropathy for ten years with burning legs and feet.Take Lyrica which is usless. Cause of neuropathy unknown
  • christy463
    christy463 moimystique

    Posted

    I finally have a diagnosis. I've only been dealing with all of this since November 2016 and thankfully I work for/with a wonderful medical practice that went above and beyond to figure out what was going on with me. I've had every blood test imaginable, MRIs, Neuro vision testing and have seen a neurologist and now a rheumatologist. All my labs have been normal for the most part until this past week when my rheumatologist ordered 16 additional labs one of which was the Smith Antibody that came back positive which confirmed I do have Lupus. My PCP suspected it from the start, but with my ANA and RA being normal he wanted to see what the specialist thought. My PCP has started me on meds and I'm praying they work. I really hope and pray you all find answers about the cause of your symptoms.

  • susan75999
    susan75999 moimystique

    Posted

    Could be geopathatic stress, have you tried bio resonance to treat your symptoms. Suffered with this for two years and is the only treatment that works, acupuncture also helps
  • mercedes3
    mercedes3 moimystique

    Posted

    Have you taken statin drugs to lower your colestrol?

    Google Statins and side effects

    • mercedes3
      mercedes3

      Posted

      I ment by that reply above that statins might be the cause of your problem.
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