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Severe tingling, burning + pain in both legs

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moimystique
moimystique

​​

H​i everyone,

I've been having severe tingling and pain in both my legs (toes, feet, calves and knees) for about seven months now. On running a few tests, I found six months ago that I was deficient in vitamins B12 and D, which was set right. The neurologist said my symptoms were due to the deficiency, however, the condition has steadily worsened in spite of the deficiency being rectified.

Here are the tests I've done:

Vitamin B12 and D: Levels stable for the last 4 months

Thyroid: Normal

Sodium, calcium, potassium: Normal

Iron: Normal

Bloodwork, ANA, dsDNA all normal.

Rheumatoid factor negative.

The pain is worse at night and while lying down. The docs have told me I've got Restless Leg Syndrome. I took Pregabalin for about a month and Ropinirole for ten days but both didn't help with the tingling - in fact the side effects were terrible.

I'm not on any medication as of now and the pain + tingling has worsened, now almost constant, like there's electricity shooting up my legs all the time. I'm unable to do anything physically exerting like climbing stairs. Walking makes my feet hurt terribly (which I believe is not the case in RLS?).

Does anyone have suggestions to confirm the diagnosis? Is there something I'm missing? I'm due for an LS MRI, but the docs have said it is most likely to come clear.

Thanks a ton!

17 likes, 568 replies

568 Replies

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  • Jimjamcolly
    Jimjamcolly moimystique

    Posted

    After 5 months of the same symptoms. .I'm cured! My vitamin d was level was 17 ..so starting taken 25 000 ui of vitamin d for last 8 weeks ..this is my third day of no symptoms got my bloods done and I'm now 43 so still going to take another 6 weeks ..I'm so happy !! My neurologist said it was restless legs Symdrome ..he was wrong !! My gp took my vitamin d level took 2 weeks to come back and he prescribed the thorens 25000 IU..hope this helps

    • susan75999
      susan75999 Jimjamcolly

      Posted

      I'm going to GP Tuesday so will definitely ask for Vitamin D to be tested and test for Lupus just in case, thank you so much everyone x

    • PinoM655
      PinoM655 Jimjamcolly

      Posted

      Your comment is very interesting, I have neuropathy was that ever mentioned to you.
    • Jimjamcolly
      Jimjamcolly susan75999

      Posted

      Yes do Im in shock that something so easy to be fixed ..iv been on lyrica , ixpeim, mirapexin and amtriptyline for my pain last 5 months ..was trailing every sort of nerve pain ..it took 8 weeks for vitamin to kick in so give it time. .I was thinking of giving up work last week !!
    • Jimjamcolly
      Jimjamcolly PinoM655

      Posted

      Yes it was iv seen several doctors ..I went to acupuncture for it as it was mentioned to me that acupuncture helps with nerve pain ..had 12 sessions with no ease of pain ..have you ever got your vitamin d level checked ..
    • PinoM655
      PinoM655 Jimjamcolly

      Posted

      Not sure, but have had so many tests and apart from Cholesterol being  on the high side they could find nothing. Will ask GP if I have had Vit D checked. Thank you for you quick response.
    • jane75220
      jane75220 Jimjamcolly

      Posted

      Jim has your vitamin B12 been checked? If you google pernicious anaemia society u will find loads of info on this.
    • jane75220
      jane75220 PinoM655

      Posted

      Have you tried to reduce your cholesterol with plant sterols?
  • jane75220
    jane75220 moimystique

    Posted

    Have yu considered plantar faciitis?
    • terry74787
      terry74787 jane75220

      Posted

      Can plantar fashiitis really cause tinglimg and burning in your legs!??
    • jane75220
      jane75220 terry74787

      Posted

      yes it can play amajor contributory factor because thte muscles are stiff.
    • jane75220
      jane75220 terry74787

      Posted

      terry If you research plantar faciitis and tendonopathy you will see the link.
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