Severe tingling, burning + pain in both legs

Hi Jess thank you .but ive had every blood tedt and dr has checkex my blood supply to legs but great idea thinkig it could be this also

Hi Jess, that is good info. I’m seeing my doctor on Friday and was going to ask her about circulation as this is beginning to affect my other leg as well. The gabapentin has made a world I’d difference to the cervical spondylosis in my neck but had made no difference to the numbness and nerve pain in my leg. So it is worth going over this with my doc. I will keep you all updated.

Dear Jess 

i find your comments extremely interesting as I have suffered with Neuropathy for over 3 yrs and have come to accept my condition as permanent. I am only really effected when I sit down. When i am on the go I am fine. I have been tested for diabetes and informed I was ok. However if what you are saying is correct and the levels set are too high, what do you think the next step should be.

Too much glucose in the bloodstream 'glycates' every cell in the body and over the long term damages all cells and tissues.  The tiny tiny capilliaries in hands and feet are the first to be damaged and pain is telling you about the damage. The pain is a wake up call imo. I gave up on GPs regarding my pain and burning (and freezing) symptoms.  I read up on diabetes..although I am very slim and have always eaten a healthy diet. I found out that the levels set by NHS are very high and excluding thousands who come below that level but who already have glycation damage. Your GP will do a test, and tell you you do NOT have diabetes.....but do your own research into diabetes.  

Read Richard Bernstein Diabetes Solution, or William Davies the Author of Wheat Belly. His book explains very clearly the damage that high blood sugar does to nerve endings.  And Pino  your condition is not permanent.  All cells in the body can heal and regenerate themselves.....if they are given the proper conditions to do so.  Researchers have found that even brain neurons can achieve healing (called neurogenesis) if the toxins that are damaging them are removed.  (It's a slow process, but what else have we got?  Ever stronger painkillers that don't work?).   It's very late here now, but will try to write more tomorrow.

Im the same all my bloods have come back great as well.let me know whatyou decide to do pleasr

! I’m really not sure what I have now!!! I’ve recently had 2weeks of from work, on holiday, so lots of lying down and wasn’t doing my usual, standing a lot on hard floors etc!!! And my pain subsided so much it was really nice! But now back at work I’m on my 4th day and back In extreme pain, worsening through the day!!! It’s not now just burning painful feet when I stand I’m now getting severe numbing pain in the upper back of both legs when I sit!!! So I’m up and down like a yo yo battling pain in feet when stand and pain in backs of legs when I sit!!!! It’s a nightmare!!!! Any body have any idea what this could be!!!! I’m on a 2 month waiting list to see a neurologist!!! But I’ve already had lots of bloods done and a nerve conduction test in the past!!!! Everything showed fine!!! Sorry to hear your still struggling to coconut it seems to be a new diagnosis! With every appointment 

Just a thought.....if your feet felt better when no standing on them on holiday you may be able to help your pain by cushioning the soles of your feet with some gel insoles.  I bought some insoles last year....they must be the gel ones (scholl do them but I bought the Aldi version when they had them on offer)  and I now have them in every pair of shoes!.  They may be expensive....but they are so worth the money.  The cushions of our feet get thinner and thinner as we age, and the hard surfaces will cause pain if our feet not cushioned from it.  If they a bit large for your shoe you can just cut a bit of the toe part.  They DO have to be the full Gel ones...the ortho ones are too hard.  It's worth a try. If your nerve endings are being inflamed by the hard surfaces that pain can travel via the nerve endings up your legs. The Skecher type shoes have a similar cushioned footbed.....but you can put the gel insoles into any pair of shoes.

Hello

I too have numbness in myright big toe after a while the burning and pain goes up my right leg and hip. I normally get this after walking or standing for a period of time. I had the MRI , and results was spinal stenosis with severe nerve root damage. Trying to loose weight and exercise to help, so I will try the gel insoles. Thanks for the suggestion.

I am not diabetic....but I bought a blood glucose meter and taught myself how to use it (approx £24).  There is evidence that blood sugar above 7.8 for long periods can damage all cells in the body. I have been keeping my blood sugars below 6.0 as far as possible and have seen quite substantial improvement.  If the blood glucose in kept in safe levels then the nerve cells can regenerate .  Blood glucose will always rise after eating and then it will slowly come down.....but if you eat again, or even have a snack, it will go straight back up again!!   The trick is to eat your meal and then not eat ANYTHING  until next meal..or even skip a meal..  Keep your blood glucose in safe limits for as long as possible...this give the cells 'a rest' and they can start repairing until you eat something and raise your levels again.  Your blood bathes every part of your body....so every part of your body can get damaged if blood glucose is raised too high for too long!  Only a meter can tell you what your blood glucose levels are at every point in your day.   It is worth looking into.  Did your neurologists mention blood sugar at all?

Just to add.....I find it strange that although I am not diagnosed as 'diabetic' that eating as if I were a diabetic I have had improvements in the terrible pain and burnings/discomfort in my legs...but also good improvements in other health problems!  We should all eat AS IF we are diabetic......even if doctors are telling us we are NOT diabetic.   The damage to cells in the body is done at much lower levels than the medics use......and this damage can be occuring for YEARS before one reaches diabetic diagnosis levels!  Don't wait for your cells to get even more damaged.....keep your blood sugar  at safe levels...levels that do NOT damage your nerve cells.

Hi wow so how was that diagnosis made .im going to see my dr tomorrow its time i bit the bullet and told him whats going on .as ive slent last 7 years with my darling terminal Husband who i lost ladt year i just dont want anymore to do with drs im over it all.

Hi Shona53538,

sorry for your loss.

I had very bad nerve pains in my legs and arms.

My hands and feet started burning uncontrollably. I could not sleep and I was in so much pain I had to go to the doctor.

Firstly, he put me on the tramazac (tramadol) same thing, to control the pain a bit.

After that he sent me for blood test to see if I had used a lot of alcohol. (this can cause sensory neuropathy) then I was tested for HIV and  fungus type infections.

then I had the MRI and all blood tests and MRI came back negative. Then I had to go for a nerve conduction study several times and each time it came back with poly sensory neuropathy.

I was then put on the tramazac and epleptin and 25 mg amitriptyline for sleep.

I no longer take the amitriptyline as tramazac and amitriptyline slows down my breathing and I could not breath so well at night.

I still go through a lot of pain. Late on Monday night I was very ill and only managed to get out of bed this afternoon.

Most of the time I manage but It does happen that I have these flair ups.

I hope this helps you and I think of you as no one really knows how painful it is until they are a part of it

Regards to all.

Philippina

Shona 53538

I forgot to mention that my feet at the bottom are numb and the cushions of my feet are like sponge that I am walking on and it burns like crazy if I do not take my meds on time.

Philippina

Great talking to you.i saw dr yesterday hes worried its ms so sending me to neurologist ...trying not to think and stress about it cos it makes it worse ..

Please let me know how it went and how you are doing.

thinking of you

Regards

Philippina

Thanks i will and stay in touch

Phillippina...try gel insoles inside your shoes.  They are cooling and when you walk your foot is protected from the impact of hitting the ground!  The skecher type shoes have a similar cushioned footbed.....but you can put a gel insole into any shoes.  They must be the GEL ones though. They are expensive to buy, but they will last ages....has mine approx 18months and they still look new!  Scholls are approx £14....but I got the Aldi ones when they were on offer...and some cheaper shops have their own versions which may be cheaper,  Worth the outlay...even at scholl prices, imo. 

Phillippina....are you diabetic?  Because diabetes can 'soften' all the bodily tissues, this is why diabetics usually get gum disease and tooth loss....the gums become too soft to hold the teeth firm.  Our neuropathies may be because the natural cushioning on the soles of our feet are 'wasting away' because of high blood sugar and therefore not protecting our nerve endings.  Thats why I am using the gel insoles....to do what the body usually does naturally!  Just my 'musings'

Thank you. Yes I am a diabetic. Will try the gel insoles. Thank you,