1. Community
  2. Brain and nerves
  3. Neuropathic Pain

Severe tingling, burning + pain in both legs

Posted , 205 users are following.

moimystique
moimystique

​​

H​i everyone,

I've been having severe tingling and pain in both my legs (toes, feet, calves and knees) for about seven months now. On running a few tests, I found six months ago that I was deficient in vitamins B12 and D, which was set right. The neurologist said my symptoms were due to the deficiency, however, the condition has steadily worsened in spite of the deficiency being rectified.

Here are the tests I've done:

Vitamin B12 and D: Levels stable for the last 4 months

Thyroid: Normal

Sodium, calcium, potassium: Normal

Iron: Normal

Bloodwork, ANA, dsDNA all normal.

Rheumatoid factor negative.

The pain is worse at night and while lying down. The docs have told me I've got Restless Leg Syndrome. I took Pregabalin for about a month and Ropinirole for ten days but both didn't help with the tingling - in fact the side effects were terrible.

I'm not on any medication as of now and the pain + tingling has worsened, now almost constant, like there's electricity shooting up my legs all the time. I'm unable to do anything physically exerting like climbing stairs. Walking makes my feet hurt terribly (which I believe is not the case in RLS?).

Does anyone have suggestions to confirm the diagnosis? Is there something I'm missing? I'm due for an LS MRI, but the docs have said it is most likely to come clear.

Thanks a ton!

17 likes, 568 replies

568 Replies

Prev Next
  • shona53538
    shona53538 moimystique

    Posted

    Hay i know its 4 years but how have you got on did mri show anything
  • alan49719
    alan49719 moimystique

    Posted

    I can confirm you all have SCIATICA!

    go to the nearest most dodgiest looking CHINESE ACCUPUNCTURE Shop in your neighbourhood.

    Tell him you want to be hooked up to Electricity current at the L5-S1 REGION.

    he will zap the christ out of your sciatic nerve when he HOOKS IN!

    you will then start crying on the table as he leaves you alone. The pain and tingling is disappearing. You will not believe it. Your legs start feeling cool again.

    30 mins later, he takes the needles out.

    he meets you at the front counter.

    $55 thanks in an asian accent with a goofy asian smile.

    "do you want all the money in my bank!! - you deserve it!' - you say in disbelied after spending thousands on 8 doctro visits, neurologists, Lyrica, nerve conductivity tests, MRI's.. and not even a diagnosis!

    This Chinese prick fixes you in 45 mins...

    Dr Simon Wu from Brisbane ladies and Gentlemen.

    I was near suicide, just days from it. 90 days of immense torture.

    • shona53538
      shona53538 alan49719

      Posted

      Wow awesome .i know the feeling i was getting close to that point also.thats why i think you may be right and the yin and vinyasa yoga im doing is making huge changes .its the stretching and letting go of muscels etc
    • Peonygirl1
      Peonygirl1 alan49719

      Posted

      Alan, I am so happy for you! Sending a hug and my best wishes your way.
    • alan49719
      alan49719 Susan9824

      Posted

      hey. he charged the need;es up with a battery and hooked my sciatic nerve up a few times. he said he burnt all the inflammation! it wokred like magic!!

    • sheila26060
      sheila26060 alan49719

      Posted

      the current going through the acupuncture needle would be to flush the meridian electrically, I would say that was a good feeling. delighted it worked for you

    • Khurana2
      Khurana2 alan49719

      Posted

      Hi Alan

      are you 100% ok now and you are from which country .

      whats your diagnosis of the problem . the tingling burning and numbness was always there in yout legs and feet.

      i feel electric current feeling in my feet fingers also .

      how long u suffered from this problem

  • Perky22
    Perky22 moimystique

    Posted

    II think part of my pain (if not all) is caused from pressure on the sciatic nerve from the piriformis muscle on my left side. Maybe this info will help someone.

    Perky

  • PinoM655
    PinoM655 moimystique

    Posted

    Is your pain confined to your legs only or do you have it in other places?
    • Perky22
      Perky22 PinoM655

      Posted

      Pain and tingling is all on my left side; lower leg, outside of foot and some hip pain. Doctor says the piriformis muscle is pressing on the sciatic nerve. 
    • Peonygirl1
      Peonygirl1 Perky22

      Posted

      I have that also and the area you talk about, outer leg etc is all too true. It also effects my foot and toes! Activity causes mine to flair up and it can take awhile to calm down. Mine never goes away, I have chronic pain. Go online and search the spine and the nerves that are at each disc in skeleton. Such L4,5 etc  You will be able to see where the nerves effect the various parts of your body. This is helpful because you can confirm your symptoms, pain to those nerves and it will clarify it better for you. Best of luck, this can be a lifelong journey and it can and will affect your quality of life. With that said it is important you research and find information re your situation that will help you make everyday decisions for your activity level. Look up spoon theory and it will give you the jest of what you might face. If you continue to suffer pain management clinic might be your best friend. Also I would seek a neurologist now and ask for a nerve conduction test if they think you might have pinched or damaged nerves. If you don’t consider that a Hugh gift. Sending a hug, fight like crazy for your health, you will have to be the leader in this Journey!!
  • susan02606
    susan02606 moimystique

    Posted

    Could be a pinched nerve. Have you been to a chiropractor? I had something similar and it fixed the problems. All those meds have side effects!

  • Radforth1988
    Radforth1988 moimystique

    Posted

    Hi no mot been see a chiropractor at all will look into this thank you.

    My pain got worse can't get up morning without help my son helps me at minute by getting me my walking stick. And I struggle my back completely stiff and can't move in mornings.

Back to top
Prev Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.