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I think my illness is becoming quite severe. If I even take a 10-15 minute walk to try and get exercise, as I did yesterday, I fell asleep for many hours afterwards and I have very limited energy, it just gets worse every day. Even though I my FVC is 77 and FEV1 90, I suspect things are much worse than they appear. Isn't it common that the spirometry does not always correlate with symptoms?
I will get referred to PM in a few weeks (can't get appt till then). Not sure that will help. ? Because I have almost no capacity for exercise (fall asleep or feel totally exhausted immediately afterwards) I think my lungs are just failing altogether. I sit or stay in bed most of the time. I know that is bad but I can't do much of anything. Am I at severe, likely?
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