Severity

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I think my illness is becoming quite severe. If I even take a 10-15 minute walk to try and get exercise, as I did yesterday, I fell asleep for many hours afterwards and I have very limited energy, it just gets worse every day. Even though I my FVC is 77 and FEV1 90, I suspect things are much worse than they appear. Isn't it common that the spirometry does not always correlate with symptoms?

I will get referred to PM in a few weeks (can't get appt till then). Not sure that will help. ? Because I have almost no capacity for exercise (fall asleep or feel totally exhausted immediately afterwards) I think my lungs are just failing altogether. I sit or stay in bed most of the time. I know that is bad but I can't do much of anything. Am I at severe, likely?

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  • Posted

    I too find any form of exercise difficult and sleep loads my recent spirometry was similar to yours and have no energy either, I find it seriously worrying as am mum to 11 and 12 yr old and am 51 my oxygen levels are ok but do have unmedicated high blood pressure. Any advice would be fab

    Thank you

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    • Posted

      Echoba, maybe the spirometry is telling. My concern is that since it is not THAT low, it can sure get worse quickly. I think. God bles you with the kids. It must be very hard!!! And you only 51- I am 58.

      Do you have diagnosed COPD? Also I think untreated HBP could definitely cause low energy. Don't ignore that! Let us know how you get on if you check that out.

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    • Posted

      Why no medication for your high blood pressure?  That sounds risky to me but I don't think it has anything to do with your lack of energy
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    • Posted

      I guess untreated does not cause low energy. Still could you ask your doctor about your symptoms?
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    • Posted

      Gp did an average of bp readings and decided that although it was high it wasn't worrying enough for medicating, I also have chronic migraines and ibs so take meds gor those too as well as menopause life is a barrel of laughs lol !!!!

      Echo

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    • Posted

      If you're experiencing broken sleep from menopausal hot flushes, that could explain the tiredness or maybe the migraine medication, depending on what it is and how often you need to take it
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    • Posted

      Hi mary terese,

      Yes I have been diagnosed with copd and am continually out of breath, I can't even do some hoovering without having to stop half way through and have to rest, I'm st docs later this week as really struggling at the moment.

      Echo x

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    • Posted

      Neurologist has recently started me on new cocktail of meds but have had this fatigue/tiredness for a year or so but it gas got progressively worse this year, guess it could be any number of things but is definitely lung related as continually sob and according to hub my breathing has changed and have even started snoring!!!

      Echo

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    • Posted

      I was pretty much like that when I was first diagnosed with COPD nearly 4 years ago, but although I now occasionally have tired days I credit Pulmonary Rehab with teaching me so much about breathing correctly and exercising that my lung function hasn't deteriorated since diagnosis.

      I should say that when I have low energy days there's nearly always an explanation:  that I've been into the city and been exposed to pollution or have been out to outdoors live music (which I love) and copped cigarette and/or joint smoke.   I had a couple of bad days last week and didn't realise at first that what i thought was normal haze in the mountains where I live was in fact smoke from bushfires in Tasmania - I'm in Victoria on mainland Australia.

      I used to have days of total exhaustion when I'd pushed myself to do more than my lungs could cope with without discomfort:  rehab taught me there's no point in "soldiering on" with COPD bc it just takes longer for your lungs to recover.

      It's OK if you can't vacuum your entire house without having a rest:  who says you have to do it all in one go?   Don't push yourself beyond what's comfortable, there's no point,   Sorry if I'm being repetitive ....

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    • Posted

      Have you been checked out for sleep apnea?  That can cause extreme tiredness and also snoring.   The tiredness could easily be a combination of COPD and something else, eg sleep apnea
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    • Posted

      Not repetitive at all, sometimes I do try to do too much but I want to be a fun mum and not a grumpy old woman and kids are getting hormonal as almost teenagers, guess I just need to pace mysrlf more, and get them to understand my health issues

      Echo

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    • Posted

      That is a good idea as I fo sometimes wake mysrlf up when snoring. (I've put up with my hub snoring foe 26 years ) so guess it's his turn to listen to me wink
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