Severity
Posted , 6 users are following.
I think my illness is becoming quite severe. If I even take a 10-15 minute walk to try and get exercise, as I did yesterday, I fell asleep for many hours afterwards and I have very limited energy, it just gets worse every day. Even though I my FVC is 77 and FEV1 90, I suspect things are much worse than they appear. Isn't it common that the spirometry does not always correlate with symptoms?
I will get referred to PM in a few weeks (can't get appt till then). Not sure that will help. ? Because I have almost no capacity for exercise (fall asleep or feel totally exhausted immediately afterwards) I think my lungs are just failing altogether. I sit or stay in bed most of the time. I know that is bad but I can't do much of anything. Am I at severe, likely?
0 likes, 30 replies
Echoba maryterese
Posted
Thank you
maryterese Echoba
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Do you have diagnosed COPD? Also I think untreated HBP could definitely cause low energy. Don't ignore that! Let us know how you get on if you check that out.
jude65855 Echoba
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maryterese jude65855
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Echoba jude65855
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Echo
jude65855 Echoba
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Echoba maryterese
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Yes I have been diagnosed with copd and am continually out of breath, I can't even do some hoovering without having to stop half way through and have to rest, I'm st docs later this week as really struggling at the moment.
Echo x
Echoba jude65855
Posted
Echo
jude65855 Echoba
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I should say that when I have low energy days there's nearly always an explanation: that I've been into the city and been exposed to pollution or have been out to outdoors live music (which I love) and copped cigarette and/or joint smoke. I had a couple of bad days last week and didn't realise at first that what i thought was normal haze in the mountains where I live was in fact smoke from bushfires in Tasmania - I'm in Victoria on mainland Australia.
I used to have days of total exhaustion when I'd pushed myself to do more than my lungs could cope with without discomfort: rehab taught me there's no point in "soldiering on" with COPD bc it just takes longer for your lungs to recover.
It's OK if you can't vacuum your entire house without having a rest: who says you have to do it all in one go? Don't push yourself beyond what's comfortable, there's no point, Sorry if I'm being repetitive ....
jude65855 Echoba
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Echoba jude65855
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Echo
maryterese jude65855
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maryterese Echoba
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Echoba jude65855
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jude65855 maryterese
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