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I'm 25 and have symptoms of LS but I'm going to see my OBGYN about it next week. I've noticed I have the white plaque around my vulva for a few months but I thought it was just dry skin. Now I'm noticing my labia minora fusing. I'm not in pain and I haven't scratched around my vulva in months. I've even had sex without any problems. I'm afraid if I do have this condition it'll get worse and I won't be able to have sex with my boyfriend at all. For those who have LS is it hard to have sex once you have it? Or can you have a normal sex life?
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That doesn't work for me. Everything burns
I feel bad for you. I've had this since 1991. I was ok until about the last 10 years. Now it's unbearable. And sex? Out of the question. I can barely touch it to shower or go to the bathroom. I suffer daily with it.
I am still new to this also. Diagnosed a year and a half ago. I am 35. At this point I am still having sex with lubrication. I don't know what would happen without it. I am praying for the best and hope with dedication I can continue for years to come. At this point I accept that we can and try not to worry about the future. Hang in there! This sucks!!
Hi, I'm 40, currently going through the process of being diagnosed. I can't offer any answers (sex is generally uncomfortable if I'm not careful right now) but I can say that those who have little to no difficulties may not get to this forum as they're getting on with life enjoying sex and symptoms are minimal. The reason we're here is we're concerned or having issues. The pool of us here may not represent the full range of how LS manifests itself.
I hope that making lifestyle changes and getting the right medication may minimise the impact LS will have on me for as long as possible. Hope is all I have right now so I'm grasping it with both hands- and doing lots of reading.
Also the video webinar all about LS by a specialist in LS from USA was really informative and although hard to watch gives valuable info re the correct way to use treatment for most successful management of LS.
Hope this helps you
Can you provide me wth that info on the borax. I have had LS since 1991 and I suffer terribly with itching (unbearable) and severe pain.
My doctor at the time formulated an ointment. Testoserone. And in the past 10 years my doctor now has given me Lidocaine for the pain. Neither works well anymore. Sex? Forget about it. Haven't been able to for over 10 years.
i cant ant get borax in uk , only bicarbonate of soda and I use soaks twice a day and have still had flare ups but they are not nearly as sore or long lasting and this definitely gives relief along with regular clobetasol and Hydromel ointment
I am also seeing a homeopath to try to boost up and improve my immune system. Of course this won't have a magical cure/ reversal of fusing etc, but it,s very likely connected.
Am bipolar so have taken(a smallish )dose of antipsychotic medication for 10 yrs.
All my best to everyone with this difficult and distressing condition. Can't imagain myself having sex again either.....I suppose never say never.
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