Sex

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I'm 25 and have symptoms of LS but I'm going to see my OBGYN about it next week. I've noticed I have the white plaque around my vulva for a few months but I thought it was just dry skin. Now I'm noticing my labia minora fusing. I'm not in pain and I haven't scratched around my vulva in months. I've even had sex without any problems. I'm afraid if I do have this condition it'll get worse and I won't be able to have sex with my boyfriend at all. For those who have LS is it hard to have sex once you have it? Or can you have a normal sex life?

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  • Posted

    I feel bad for you. I've had this since 1991. I was ok until about the last 10 years. Now it's unbearable. And sex? Out of the question. I can barely touch it to shower or go to the bathroom. I suffer daily with it. 

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    • Posted

      You may be ok but I am no longer able to have penetrative sex at 55 but you can work around it!
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  • Posted

    I am still new to this also. Diagnosed a year and a half ago. I am 35. At this point I am still having sex with lubrication. I don't know what would happen without it. I am praying for the best and hope with dedication I can continue for years to come. At this point I accept that we can and try not to worry about the future. Hang in there! This sucks!!

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  • Posted

    Hi, I'm 40, currently going through the process of being diagnosed. I can't offer any answers (sex is generally uncomfortable if I'm not careful right now) but I can say that those who have little to no difficulties may not get to this forum as they're getting on with life enjoying sex and symptoms are minimal. The reason we're here is we're concerned or having issues. The pool of us here may not represent the full range of how LS manifests itself.

    I hope that making lifestyle changes and getting the right medication may minimise the impact LS will have on me for as long as possible. Hope is all I have right now so I'm grasping it with both hands- and doing lots of reading.

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  • Posted

    I joined this site at a time I was feeling desperate with flare ups. Kind people directed me to the post on borax (and bicarbonate of soda) and it has made a huge difference. The lady who wrote says it has helped unfuse parts that had previously fused.

    Also the video webinar all about LS by a specialist in LS from USA was really informative and although hard to watch gives valuable info re the correct way to use treatment for most successful management of LS.

    Hope this helps you

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    • Posted

      i had a gyny appt last week and my bits have fused and gyny said ,once they`ve fused thats that and cannot unfuse,she updated my status to chronic
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    • Posted

      Can you provide me wth that info on the borax. I have had LS since 1991 and I suffer terribly with itching (unbearable) and severe pain.

      My doctor at the time formulated an ointment. Testoserone. And in the past 10 years my doctor now has given me Lidocaine for the pain. Neither works well anymore. Sex? Forget about it. Haven't been able to for over 10 years. 

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    • Posted

      I am also seeing a homeopath to try to boost up and improve my immune system. Of course this won't have a magical cure/ reversal of fusing etc, but it,s very likely connected.

      Am bipolar so have taken(a smallish )dose of antipsychotic medication for 10 yrs.

      All my best to everyone with this difficult and distressing condition. Can't imagain myself having sex again either.....I suppose never say never.

      Maggie 💙

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