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Sex and lichen Sclerosus

Posted , 15 users are following.

Guppy007
Guppy007

Hi Ladies, Sex with my husband recently was a bit of a disaster.  It is just too painful, I haven't been using a vibrator or anything to keep the area open, which is a bit of a shame, so I don't know what to do now, I guess I will just have to do it!!   I just find the whole idea such a drag, and yet it is important especially as my husband is six foot four and not small in any area, so I should have been doing  that really.  I don't know, I have other health issues that I am dealing with, and I just let that slide really.  

Also, sex now has to be planned,  and has to be  slow, careful, more cautious.....its hard to imagine that I will never be able to have spontaneous, hot sex again.  Fortunately,  my husband is very understanding, (but then so am I, as he is certainly not perfect) so that is a  plus, as I know for some women, this can put a terrible strain on their relationship.   Because it is not just the mechanics of sex, it is the intimacy, closeness, that partners feel when making love, it's what binds relationships together, and when that disappears, its hard to adjust, and hard to adjust to a new and different way of making love.  And, a different way of being with your partner, who goes from being your lover to more like your best friend that you hang out with...

So I am feeling like  I can't be bothered to have sex anymore, knowing that it will cause me such pain and discomfort...I have not ruled out the possibility of having the Mona Lisa Touch some time next year, but at the moment I want to wait and see how this treatment is working before going ahead with it.

How is your sex life with Lichen Sclerosus?

  

3 likes, 39 replies

39 Replies

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  • sammiey
    sammiey Guppy007

    Posted

    Also for me ...too risky. Pain and the healing being undone.

    How did you get on previously with dilators? I've recently got some but the step between the one that fits and the next one is too great... in other words the penis sized one is the one I'm not getting up to. xx

    • Guppy007
      Guppy007 sammiey

      Posted

      Sammie, Dilators aren't something that is talked about much on here, but it should be because if used regularly it will help prevent the narrowing of your Vjay.  I have been a bit slack with this recently and like yourself when I got around to it the size I need is too big for me (husbands penis size) I'm unfortunate (or maybe fortunate) cheesygrin  that is the situation.  The best way to do this though is to keep one in your shower cubicle and use it every day for a few minutes, and then eventually you should be able to move onto the next size.

  • amyroffles
    amyroffles Guppy007

    Posted

    Just before I was diagnosed I was continuing to have pretty instense sex and damaging the already thin and irritated skin leaving me

    Now with severe nerve damage, as soon as there’s any pressure applied my muscles down there seize up and won’t relax until hours after, it’s really frustrating. I use a dilator and it has helped, I also saw a physio who gave me pelvic floor exercises to do every day which had also helped. 

    Thank you for your kind words aswell it’s great talking to people who understand 

    • Guppy007
      Guppy007 amyroffles

      Posted

      Hi there, sorry to hear that.  I hope you continue to make progress. 
  • katie58281
    katie58281 Guppy007

    Edited

    I am new to LS as of a month ago. For several years I would go to the doctor thinking I had a UTI or yeast infection and they would put me on antibiotics. In the spring, the itching was so bad and I started having pain during sex and when urinating. I knew it was not a yeast infection and fortunately, the GP sent me to a specialist this time. LIfe is better with the topical steroid treatment from my new doctor but I am nervous and scared about what my future looks like. I am 63 and since I had two sets of babies -with the same husband- I still have one child at home attending the local college. We were so excited for that season of life when we could freely enjoy our sex life without ears and eyes in the house and now this... I am in the anger stage of accepting this and needing encouragement that life with this affliction isn't the end. I am a strong Christian and I am counting my blessings but.... I was also an incest victim and have often dealt with issues associated with sex. Now this! I would welcome any words of wisdom, insight, encouragement. I read through the ideas of how to move forward with intimacy with my husband but seriously, it is true, I do feel damaged and anxious. Thank you so much for sharing.

  • christine97462
    christine97462 Guppy007

    Posted

    I just recently started having sex again after many years. My vaginal area is irritated, but not too bad. My doctor suggested using a lubrication to decrease friction/irritation. Does anyone use one that does not burn or irritate? I also just started the estrogen cream in that area; hopefully it will help.

    My doctor told me to treat with ointment immediately following sex to help with inflammation.

    Any lub suggestions are greatly appreciated.

    Guppy - i hope things have gotten better for you!

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