Sexually Aquired Reactive Arthritis

Good morning to you folks in England the land of Robin Hood must have some humor living with this Reiters l don't wish any one luck more most of my life the 50 years that l have lived with Reiters l thought l was the only one in the world experencing the many difficult situations with this synrome even today with all the people in the world who now have Reiters doctors don't want to talk about it as they don't have ant answers what is happening for me of alte is great fatige and sore small bumps on my head yesterday l was a sleep for a total of 13 hours at times l just become exhuasted being retired here in canada the winters are cold for 3 - 4 months for walking our dog so use a rowing machine to keep my body moving and in the warmer weather walk the Lucky ( dog) 2- years ago had a real time with my right knee could harly walk for a month but finally went away on its own strange how the body reacts to this synrome noone has any anwers which l find difficult to understand with all the many projects going on in the world you think there would a study for Reiters or Reactive arthritis in closing hope you folks in the land of a square meal in a round bun perhaps you don;t have those great hambers anymore they were much better then Mcdonalds anytime,R from canada

good morning as it is 4:3 am here in canada to answeyour questions there have been many times where l have experenced urination burning forskin

swelling it goes away and comes back l can live with this problem my right knee will start to having pain when l am getting tired and after l sleep for a few hours it normal again in the last 2- years l have only experence pain in this kness where it was hard to walk and bend it lasted for a month each time , used to like drinking some wine at meal times durning the week found that if l did this the knee would develop pain so no longer drink alcohol 6 years ago was going to the bathroom often when to the doctor the blood count was up for prostate issues so went to a specialist the prostrate was not inlarged but thankfully the doctor decied to do 16 samples of the prostrate and they came back with morderate cancer in the prostrate went for removal of the prostrate thank god l did as the prostrate came back with 70 % cancer and yet the prostrate was not inlarged so again think this  was part of the Rieters so would encourage you folks to keep an eye in this area havin stomach issues and have beenin the hospital twise for a few days with blockage in thia area so now watch what l eat no bread food that will swell in the intestine as Rieters can cause problems in thia area even if it is std contact never was tested for the gene as when l first contacted Rieters there was no test l remember a doctor telling me to get out of his office for having such a problem "didn't want a human being who had such  low life health problem" you didn't talk about Rietiers. 50 years ago so here l am 70 now and very thankful every day that lam still here wish there was a study somewere that l could be part off so perhaps it would help others like us to find a treatment. cheers for now enjoy this webb page and the connection with all you folks. cheers Roy

 

no have never been tested  perhaps will procced and have this done they never suggested this test 50 years ago ,

I took humIra and got to say so far so good. Spine pain gone....hahhhahahhahhahhaha in two f years finally gone.

Only been a day so let's see what happens through out the week.

Other aches in joint slowly seem to go away.

No change in prostatitis symptoms...so whatever it is must be still there.

thought l would follow up today with on going problems of us who have reactive arthritis or retiers arthritis, over the 50 years living with this virus the most difficult has been the issue of fatigue and people don't understand how you feel its like you share about  back pain people brush it off because they have never experence it , for the past three weeks have been living with constipation and diarrhea problems and the upper pain in the chest had a scope done last week all seems normal from the throat down as this virus effects many parts of our body being

in our blood traveliing every place through the body the effects change from time to time and as it is such game of cat and mouse and no cure doctors don't follow up enought here in Canada being 70 now l hope you younger folks will someday have a cure for this terrible health problem blessing from Canada

Hi friends? Can you tell me how all are you doing?

Do you have still pain and urination problems? If so how you manage them? Taking drugs or supplements? Did they have an effect?

I will be glad if everyone share their recent status.

Thanks

My flare-ups are definitely associated with oral sex, though in my case all the STD tests have been negative. It seems, at least in my case, that what most people would consider normal bacteria in a woman's mouth will trigger a ReA flare-up. I haven't found a doctor yet who can tell me why this is happening.

Hi guys,

Is this thread still active? You all seem like a good bunch of blokes.

I had Reiter’s Syndrome in 2008 and never really got over it. Symptoms improved after the initial terrible 1-2 years but never fully cleared.

I believe it’s an ongoing infection that either our immune systems can’t clear or overreact to.

Well I had a sexual encounter a few weeks ago and I’m starting to experience some of the same acute symptoms again. I’m terrified I’ve picked up another bug and am about to go into full blown Reiter’s again. 

How are you guys all going? 

I think you should get tested for all STD’s Chlamydia is on of the causes to have an episode of Reactive Arthritis. Doc should advise after blood results. Usually after a high and long term doses of antibiotics, the flare stops its course. Having a healthy diet, staying away from nightshades, alcohol and starchy food help a lot! 

Exercise also helps!

G’ luck and report back!