Posted , 16 users are following.
Hi all,
I'm a 29 y.o male and for the past few months I have had very shaky muscles, like when I move my head up and down my neck muscles move in a jittery unsmooth pattern. The same happens when I lift my arms and slowly drop them (shoulder muscles shake) or when I bend over to pick something up (stomach and leg muscles shake). I also have sudden jerky-like twitches in a lot of places like fingers, shoulders and legs. All this has recently started affecting my breathing muscles so now I have "broken" inhales and exhales like when you are super stressed expect that I am not. It's getting pretty scary and so far EMG and MRI have been negative. Anyone else here experiencing these kind of muscular issues?
0 likes, 23 replies
Phoebe604 OntarioDude
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OntarioDude Phoebe604
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Phoebe604 OntarioDude
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OntarioDude Phoebe604
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Phoebe604 OntarioDude
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nicole00 Phoebe604
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Btoash OntarioDude
Edited
I have the same symptoms as you.
Every muscle i move is moving shaky not shaking like tremors but like movements of broken chainweel or somthing realy shaky movmenets.
lawrence1776 OntarioDude
Posted
Have you been successful in finding a diagnosis?! I've delt with exactly what you've explained for over 3 years and no one seems to understand or relate to any of my symptoms. Dr.'s tend to just shrug their shoulders.
Sometimes I feel that it's tied to a social anxiety. And other times I feel that it's a hormone or vitamin deficiency. Maybe Both?
It has become extremely embarrasing and has arrested any social enjoyment I try and have.
joeyupstairs lawrence1776
Posted
This also describes my experience exactly. Been to a neurologist who ruled out several things via MRIs and chalked it up to response to stress (said he encounters this type of thing often in my demographic). Same bilateral "unsmooth" movements in wrists, sides, neck especially without loss of strength.
I have had three distinct periods of worse symptoms over the last 2-3 years, with lessening in between.
Primary doctor also suspects Lyme disease, however no evidence found (which sometimes can take years to show in tests)/
PainfulNerves joeyupstairs
Posted
Hi joeyupstairs,
Curious how you are doing now? Hopefully many of these symptoms have decreased or gone away for you
turnin OntarioDude
Posted
Yes, I have the same.
Started during smoking cessation and amalgam removal.
Initially I thought it was a deficiency in calcium or acetylcholine or something like that but it seems that it's similar to essential tremor but not quite.
Gets worse with caffiene or exercise and heat from sauna/hot shower ( read stress)
alcohol = no difference ( unusual for essential tremor I belive)
Ive seen a neurologist who basically told me nothing
I also have fasciculations in my feet and lately my memory is getting worse.
I wonder about leaky blood brain barrier and inflamation but there are no tests for these so it's a bit of a guess really
I made some video's here if this helos for comparison
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jasmeet36870 OntarioDude
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nicole00 jasmeet36870
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jade29936 jasmeet36870
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jade29936 OntarioDude
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PainfulNerves jade29936
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Hi jade29936,
Hope your symptoms have improved and that you are/have been on the path towards healing. Curious how you are feeling now? I just started having these symptoms 2 months prior and wondering if they'll ever go away...
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