shaky muscles and off balance
Posted , 10 users are following.
Hello All,
Hello All,
So just over a year ago I experienced this sudden feeling of being off balance one morning, I had had this feeling for about a week a few months previously but it went away on its own.
It feels like whichever way I shift my body weight it feels like I’m being pulled to that side, this feeling is in my neck, upper body and legs. It has also affected my limbs, for example my arms feel very heavy now so do my wrists, my legs also feel heavy, it has also affected my speech as my speech is now very shaky. I have seen a neurologist, rheumatologist, orthopaedic Surgeon, Chiropractor and have all the necessary tests (blood tests, MRI of brain, C spine etc and they did not find anything).
The one thing however that is bothering me more than anything is they shaking that has developed in what seems to be all my muscles. When I extend my legs, arms (Shoulders), wrists and neck the muscles shaky uncontrollably and I cannot for the life of me understand why this is, it has made simply speaking difficult as I can feel my voice shaking and muscles in the back of my neck shaking when I move my neck. The shaking is only ever triggered with movement, if I raise both arms in the air, my shoulders and forearms shake when my arms are extended and retracted. The most noticeable one however is in my legs, when I extend or retracted my legs, the rubber band like tendon or muscles that runs down the back of the leg and knee shakes uncontrollably making the whole leg shake and it radiates up towards my pelvis and torso, causing further shaking.
It is incredibly frustrating because the only way I feel that I can see what is happening with my muscles is to have a dynamic ultrasound of the tendons and ligaments in my legs, arms and neck to really see what is triggering this shaking however no specialist wants to refer me for this, even with private insurance.
If anyone here is suffering with something similar or has received any answers please let me know or if anyone has any suggests, I know there is someone out there who is suffering with the exact same thing.
Thanks
1 like, 30 replies
starbright1 kelvin91301
Posted
HI Kevin
Hope you are feeling okay. Do you sleep well?
I ask this because I wake up with my my muscles feeling tender and stiff. I have internal shaking . My hands tremble and I have tingling and numb patches that move around my body. I have had this for four months. I am very anxious and it feels as if I have chemicals in my body. My doctor has prescribed sertraline. A low dose but when I read the reactions of they seem worse/similar than what I have. The waiting list for a neurologist is five months and my doctor wants to see if the tablets work before refering me. I can not really afford a private scan, etc. It is a lonely and frustrating time. I wish you well.
sandramgd starbright1
Posted
I have the same thing. Have been to a lot of doctors and they told me it is RLS but mine is not only twitching in leg but all over my body. Stiffness and numbness is my biggest problem.
To be honest...after 3 years of searching and trying to find out what I have I am still not
sure if this is the correct diagnose.
My body is vibrating like a washing-machine inside and this mostly happens when I am in bed or in the sofa...
Also...all that vibrating and twitching is always when I am resting...
That is why I am here to see if I can get some help or info.
Take care and try to think positive!
derek76 sandramgd
Posted
Have you at any time in the past been prescribed Cipro or Fluroquinolones for any infections as they (as in my case ) can cause many delayed side effects or can be triggered by other medications or steroids
There is a forum for it.
https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305
starbright1 kelvin91301
Posted
HI Kevin
Hope you are feeling okay. Do you sleep well?
I ask this because I wake up with my my muscles feeling tender and stiff. I have internal shaking . My hands tremble and I have tingling and numb patches that move around my body. I have had this for four months. I am very anxious and it feels as if I have chemicals in my body. My doctor has prescribed sertraline. A low dose but when I read the reactions of they seem worse/similar than what I have. The waiting list for a neurologist is five months and my doctor wants to see if the tablets work before refering me. I can not really afford a private scan, etc. It is a lonely and frustrating time. I wish you well.
starbright1
Posted
sorry Kelvin misspelt your name .
theworriertx kelvin91301
Posted
kelvin, the shaky muscle thing is actually muscle fatigue. It could take year or two or even years for your body to repair itself. Its actually muscle fatigue. EBV/Mono has attacked your actuall nerves which causes your muscles to be in a constant state of fatigue. I pray it doesnt turn into chronic fatigue syndrome. Look up post viral muscle fatigue and CFS.
kelvin91301 theworriertx
Posted
Hi,
Sorry I have not been checking this for a while but I will be and I just sent you a message as I saw a message you left on another post, can you expand a little on the EBV/Mono attacking the nerves because I have always suspected it is something to do with the nerves and do you know of any treatment, I am still very energetic and exercise frequently so I don't think I have Chronic Fatigue Syndrome at this stage.
Kind Regards