share your ebv symptoms

hi !!!! I'm having the exact same symptoms with 100.5 temperature and chills. I've been sick for almost a month now but got diagnosed with mono almost two weeks ago. I have three kids and they always asked when im going to get better and answering with " soon" breaks my heart. I also suffer from anxiety and panic attacks and i also have hypochondria. you are not alone. hubby had to leave his job to take care of me and our little ones thank God! how are you feeling now?

Hello all,

I'm so glad I found this forum the last few months have been hell for me.

It started out with tonsilitus that sort of went on it's own, then followed with extreme fatigue and fever around a couple of days after. Because of covid-19 I had a test thinking that may be the cause of my illness but tests kept coming back negative. I had contacted and seen doctors numerously which only ended up with antibiotics and continuous misdiagnosis's. I was only just diagnosed with having glandular fever a few weeks ago after around 4 months of feeling very unwell and made to think it was anxiety.

My symptoms are changing all the time and having to contact doctors again due to abdominal pains now and a constant sore throat.

I had a sore throat, chest pain that was diagnosed as costochondritis.

-headaches

-stiff neck

-fatigue

-sore throat

-chest pain

-abdominal pain (new)

-aches in thighs and hips (this is new)

-anxiety like no tomorrow

I've rang my doctor and am expecting a call today at some point as I've read about complications of ebv and am worried about hepatitis or inflammed spleen. So hopefully they listen and help.

Hi everyone,

Wow I am so happy I found this space. So many of these things have happened to me but I just chalked it up as nothing. My backstory is that back in January of this year I went to urgent care for a swollen gland or lymph node on my right side (I've had this before). The doctor tested me for a host of things including mono and EBV. My EBV test showed normal IGM but EBV ICG was through the roof (both VCA AB and nuclear AG, 300+ and 400+ respectively). Over the next week it became the worst ear infection I ever had. I think the last time I had an ear infection it was when I was a kid. The ENT drained my ear as I had a ton of fluid build up and I lost my hearing out of that ear for a little while and still feel it today. Prior to that I had to get lump removed from my breast that was suspicious but the tests proved it was benign. I've also had a upper respiratory infections that lasted me for months and the last one the allergist diagnosed me with cough variant asthma even though I never had it before. These infections are a common occurrence.

I am writing because I've developed a weird lump in my left armpit a few weeks ago which came and left. During this time I developed some flu like symptoms but no fever. Then this week out of nowhere a weird painful lump behind left earlobe is there and some of the pain is reminiscent of what happened back in January. I'm not sure if this and the prior ear infection was a EBV thing or what, but this is all very strange to me. I don't ever recall having mono so this test result came as a surprise. I believe I may have been tested in the past but this is first time I have seen reports on my ICG levels. Not sure if anyone else had any similar experience but like you I have had anxiety around cancer (especially with the breast cancer scare now). I'm just tired of being sick all the time. Thanks for reading

hi, how are you today?

i have all the symptoms you mentions plus fast hear rate when i try to walk and nausea. I was diagnosed with mono almost a month ago and since then my life is not the same. I have anxiety since 2017 and with EBV is getting worst. I've been in bed for a month mow because I feel exhausted and nothing seems to soothe it. I'm 26 years old and I have 3 little ones at home who want attention 24/7 and since i got sick its been impossible. Sometimes I cry because I don't see tje light at the en of this battle. I want to feel normal and have my life back ☹.

hi, how are you today?

i have all the symptoms you mentions plus fast hear rate when i try to walk and nausea. I was diagnosed with mono almost a month ago and since then my life is not the same. I have anxiety since 2017 and with EBV is getting worst. I've been in bed for a month mow because I feel exhausted and nothing seems to soothe it. I'm 26 years old and I have 3 little ones at home who want attention 24/7 and since i got sick its been impossible. Sometimes I cry because I don't see tje light at the en of this battle. I want to feel normal and have my life back ☹.

Hi everyone hope your doing well I have managed to ease a lot of my symptoms 5 months in but am having serous

trouble with two main symptoms and I think if i could tackle them I would be on my way to proper recovery the 2 main ones are my stomach am eating a very green healthy diet and lately it just does not seem to help at all the stomach pain is fairly sharp and uneasy its feels very bloated and inflamed probably the worst its been am going the toilet nearly 8 times a day over the weekend I was up all night as well with horrid stomach pain..... am getting tests done at the moment for this. The nxt is an odd one but am under the impression this virus attacks the nervous system and as result when I fall asleep I have very strange dreams and they always with out fail wake me up and i have to fall back asleep again which tires me even more does anyone have tips for dealing with this one as am really struggling and starting to get depressed cheers every one

Hello,

I am glad to have stumbled across this forum and I too have been struggling with this illness for quite sometime and feeling frustrated! All the symptoms you have listed are very similar to mine. I will explain how mine started. I became sick in early 2019. I was working fulltime and under a lot of stress (my job is high stress). I was extremely tired, pains generating down my arms and had a constant low grade fever. My doctor finally tested me for EBV and I was diagnosed with it. My job allowed me to work from home which was wonderful. In the beginning, I had the fever, pains, rash, and my feet and legs would swell. After dealing with this for so long , I took some time off work and went for other testing. Everything was negative and was convinced I too had cancer. My doctor kept prescribing an antiviral drug which I believe did not do very much. She continues to run the EBV blood panels which all come back high but advised it's showing I have antibodies which is good.

As of April 2020, the fever finally left and I felt like I was back to my old self (healthy 47 year old). In the last month, I became sick again with similar symptoms along with cough , sneezing, etc. I was convinced I had Covid which came back negative. I have extreme fatigue again and need to sleep every couple hours. I was on two strong antibiotics, steroids, inhaler and antiviral drug again and although some symptoms have subsided, I feel like I have EBV again. I met with an allergist this past Thursday and she ran the EBV test along with a CBC and also tested for allergies. It came back very minor for pollen and ragweed. I decided to take a few weeks off work to try and fight this again, but I am very frustrated. I think my job is starting to think I am making things up although they have been wonderful!

My eyes hurt and arms... tired of feeling so sick. I have started taking vitamin D and a daily multivitamin, but wondering if there is something else I could try. I truly believe people think that I may be exacerbating a bit because there are times I look healthy and able to function as normal, but then it will hit me like a ton of bricks. Even last night, went out to dinner and felt fine. By the time the meal was over 9:00 pm, I was ready to fall asleep. I also took a nap before going out. I got home and fell asleep within minutes of laying on the bed. I sleep on average about 10 hours a day and still tired...ugh! Anyway, I should hear back from the allergist tomorrow with the results from my blood work and maybe I'll have answers or maybe not which seems to be the new normal! My primary care doctor seems to be at a lost too! I am glad to know I am not the only one suffering from this virus/disease and really hope they can do more research so we can have answers along with treatment options. Take care and hope my story can help others to not feel alone or crazy, as well!