share your ebv symptoms

hello everybody, i was just wondering if anyone could reply. i have two symptoms that will just not go away.. neck pain (stiff very sore) and a dry sore throat that gets worse with activity..my question is if anybody else has experienced this.. i have had all the other symptoms mentioned.. and they lasted a very long time.. but these two things are holding on for dear life... will they ever get better? any reply would be muchly appreciated

Hello....42 year old man from DC that got hit with this back in August. Terrible liver results (they are normal 3 months later) but it's truly a nasty virus. From what I've been told it is what it is...ride it out. Wish everyone well.

hello,

just wanted to say I've been suffering from Nasty Mono symptoms and my acute stage was the worst sickness i've ever experienced. i'm 33 years old and a very active person who leads a healthy lifestyle. up until i got this virus in october 2020 i had run 2 marathons, 4 half marathons, and competed in 7 boxing matches.

my initial stage of mono was 13 days of hell with the worst migraine I’ve ever had, Brutal fever, chills, vomiting, sore neck, fatigue, night sweats, ad extreme anxiety.

Doctors thought I had viral meningitis because of the severe symptoms. They were unable to diagnose me right away. I started getting sick October 23rd 2020 and it wasn’t until late November that they were able to diagnose me as my lymph nodes were extremely swollen.

It’s now January 2021 and I’m experiencing the weirdest symptoms like sensitive scalp, body tremors, feeling of plugged ears, weird burning skin irritation above my eye, and facial numbness. My latest new symptom is my armpit has become extremely irritated and now feels like it’s on fire and extremely sore.

I’m a person who suffers with anxiety so being this sick for so long I inevitably think I have lymphoma or a brain tumour or something very serious causing my symptoms. I’ve been unable to be myself and it seems every time I workout I make it worse.

Also if I drink alcohol it also seems to make issues way worse. I’m sick of being like this and fearing there’s something worse going on. I just felt like venting my frustrations. It does give me some hope hearing others have endured the same strange long lasting symptoms.

Happy new year everyone!

• Brian

Hi,

i have suffered from quite severe symptoms of this.

all the usual symptoms, fatigue, painfully sore throat,

lymph node pain, sweats, shakes, upset tummy, thrush etc.

i continuously got it around 4 times a year for 4/5 years. its been at least a year and a half and i am just coming out the end of another infection

does anyone else get it regularly over years like i have? i am at the end of my tether with it and was hoping anyone has any advice on stopping it from returning?!

i have usually worked through it also as unless you have had it, many people dont take it seriously and shrug it off, which is annoying

many thanks

I have gotten over the fatigue but I have bad ringing in the ear and no appetite which has caused weight loss. This as a rail. Was diagnosed with mono in September. It's terrible.

I've got bad liver test results in August after sleeping all day for like a month - the reason I went to the doctor. Got new liver test results in December that came back normal. Got an EBV test with IGG antibodies at 156. Doctor told me I had mono. My symptoms are ear ringing that WILL NOT stop, weight loss/loss of appetite and some mental confusion. The fatigue has gone away mostly but my anxiety is quite high. Terrible virus....I just wonder if it's COVID related.

for any new people: please try lauricidin/monolaurin (do some research about it)

yes you will herx badly and for quite awhile (2 weeks to 4weeks) when you start taking it but it definitely works!! if you can work up to 3 scoops a day it will have you back to feeling pretty much 100%. only bad thing about it is i have found i have to keep having it to keep my symptoms away. i ran out and had ordered another but it didn't come for 5 days after i had ran out.. in those 5 days i felt everything slowly coming back, temperature, sore throat and neck, aching joints ect. got my new tub and by the end of that day i was good again. i don't care if i have to take it for the rest of my life i will be. i had been sick for six months before i started monolaurin/ lauricidin. i was in so much pain and a shadow of my former self.. i had even quit my job.. so i want to share this if i can help anyone even one person. i know how terrible, frightening and soul destroying this virus is. so please.. try it.. but remember you will herx and you will feel really bad for a little while, i know of people that give up it is that bad but if you can just put up with it for a few weeks and build up to 2 to 3 scoops it will be so worth it. suffer for a few more weeks so you don't have to suffer for years. i wish you well.. im so greatful to feel how i feel today.. looking back on days i was so disheartened, panicked and in pain i wanted to end my life. please try it.

Hello all, my name is Peter and I'm 52 and first noticed symptoms of what I've been told is likely chronic EB syndrome in May 2019. I'd not long had an operation for something unrelated and developed an enormous painful lump on the left of my jaw. As it happened I was due to have a 'well man' check up that week and they noticed microscopic blood traces in my urine. What followed were several weeks of various things being inserted into every available orifice and me being scared out of my mind that I had lymphoma or something....Google is a great invention until the day you type in symptoms and every successive search tells you that you have something worse than the one before! Anyway, the GP eventually said that there was an antigen marker in my blood results and that I either have had EBV in the past or have chronic EB now. He just said there's nothing we can do but keep an eye on it and it will probably settle down eventually. I'm due a blood test again soon to see any changes.

My symptoms since the outset have always come and gone in a roughly monthly cycle (though never really feel truly 'well') and include headache, nausea, swollen neck glands and a general feeling of being unwell. Sometimes it's worse than at other times but I think it's pretty mild in comparison to some of the stories on this forum....which i have to say, I'm pleased to have found because it's helpful/reassuring to see that others have a similar issue and to hear their experiences etc.

I'm particularly keen to know however, is there anyone on here who has seemingly got over it?

Peter

First off, what a relief it is to find this website. I am feeling very hopeless at the moment. I was diagnosed with EBV about 3 weeks ago, but started feeling brain fog about 2 years ago and it has only gotten worse. I don't know if it is possible to have EBV for that long and my doctor seemed clueless too. She diagnosed it as if it was just like a sinus infection, no big deal and had to add in there that there is NO CURE. Great that makes my anxiety SKYROCKET. Sorry if Im rambling my mind is a mess. Anyways, I am 22 years old and I've had memory problems and brain fog for 2+ years now since July, 2018. I feel exhausted from the doing the smallest tasks even taking a shower or walking up stairs, getting into bed.. I am winded. I have a terrible headache mostly on the bottom left portion which Ive told myself is brain cancer or a tumor growing in my brain and im going to die. I dont know if this EBV has caused severe anxiety or depression or what but ive never felt so hopeless and lost in my own head. i cant remember what im talking about mid sentence. all the days blend in at this point. i have felt like i dont want to live anymore because i just feel its consuming me. i give myself panic attacks as it doesnt even feel like reality anymore i feel so out of it and not like myself. i used to lift weights 5 days a week and go to college for wildlife biology, working full time and i now cant work at all. i am on foodstamps and about to lose my apartment because i cant work. is it normal to feel this way? has anyone else felt these things? could i be developing an immune disease as this has been going on for 2+ years? i feel so alone with EBV people think its just like the cold or something but i wouldnt wish this feeling on anyone. is there a doctor i could see or someone who could help me get through this? a specialist like a rheumatologist? anything? 😦

Ebv and cmv symptoms.

I had

low grade fever

mouth sores

night sweats

blurred vision (still have)

swollen lymphs in my groin and under my jaws (still have them but not so big)

burning feeling in urethra

furuncles on the back of my head under hair and on the face

slight rash on my legs

diarrhea for a month or so (about 20 times a day)

muscle and joint pain (still have it from time to time)

burning skin in different parts of body

pain in the lymph nodes all over my body (one of the first symptoms

exhausting fatigue(during first 6 months)

the feeling of intoxication of the whole body

dizziness

weakness of the left hand

stomach bloating

pain under the left shoulder blade

chest tingling

the feeling of viruse's presence in the body