Share your symptoms thread or (lack of)
Posted , 7 users are following.
extreme fatigue
sleepiness
lump in throat feeling
slight difficulty passing food at times
good appetite, however, body doesn't retain the food I eat well.
weakness
night sweats
light headed
faintness
sweat a little more doing regular tasks
swollen glands by groin
I cant help but feel that I'm doomed. There is just no other way in my mind right now. I sincerely hope you all are faring a lot better than I am.
0 likes, 26 replies
Jaycee192
Posted
lack of fever
josh46287 Jaycee192
Posted
I have never had a fever actually my temperature has stayed about 97
josh46287 Jaycee192
Posted
I have the same thoughts. No matter how the day is going i can not help but think sometimes at some point that i will never get better. I am sure it just the anxiety and depression that goes along with the virus. I was very used to pushing my body and i can not do that now which makes me feel kind of helpless at the moment. All i can say is the virus has given me many weird symptoms aches pains sensations and they all seem to come and go as they please. The best thing to do is support your body with good food vitamins and minerals and try to make the best of each day. That is literally all i have done for the past 6 months. It is not ideal but it is better than sitting on a couch thinking this is the end doom and gloom type stuff. Trust me i feel that way every once in a while and i try to make the thoughts pass and just go back about my day.
Jaycee192 josh46287
Posted
Honestly Josh, I feel as if its something worse. I just can't help but feel that way.
josh46287 Jaycee192
Posted
Well i have spent most of my savings for them to tell me its not something more so if you do not think thats it try to get more answers. Nothing wrong with checking in and asking questions. It can help the anxiety for sure. Doctors are not right 100% of the time but i would say most times they are perfectly correct. Mono just looks like so many other illnesses.It is awful for the fact that they can not do anything to fight the mono except time.
josh46287 Jaycee192
Posted
I feel the same way. They have ran many test on about everything they can ct and x ray of chest ct of abdomen all kinds of blood test endoscopy twice colonoscopy heart test urine test kidney function thyroid function liver function mri on my brain tomorrow and all they found is high ebv numbers hiatal hernia low vitamin d. i been to seberal different regular doctors the ER 8 times urologist neaurologist cardiologist gastrologist and special disease and thats literally all any of them have found not counting the holistic doctor i went to.
Jaycee192 josh46287
Posted
Man Josh, you've been through quite the ride. I'm curious as to how you got the doctors to run specific tests. I ask because in the past I have been denied certain tests I have wanted done due to not finding anything in earlier studies to warrant such tests.
josh46287 Jaycee192
Posted
The doctors know me and i have almost no history of going to the doctor or being sick so i guess they can just tell something is off. Like at this moment i feel like i can not breath hardly and maybe tomorrow i will be fine it may come back in two days two weeks who knows but i know they have tried to find something but they haven not found anything of note and reading through all these post if people there is many symptoms that go with the virus i am pretty sure anything is possible with this thing. My brain fog fatigue nausea and air hunger are among my worst and i tire easily now. If it makes you feel better to get a bunch of test go ahead and get them but they have not helped find something else wrong with me yet and tomorrows brain scan should be the last thing i tried because everything else seems to be good.
starrA Jaycee192
Posted
hi Jorge,
i have some of your symptoms currently. I have had an array of symptoms and they are confusing, some come and go while others seem stuck. Daily some are persistent and others are up/down.
I can tell you that the most difficult thing of dealing with this, is the DR's/tests/imaging/ER visits. And them finding zero answers beyond Ebv/mono. It is impossible to wrap your mind around all of this. Your mind thinks its more, you cant imagine that the way you feel its not something detrimental. I have been to Dr after Dr, test after test and honestly it has added time onto the healing process. I still struggle on this has to be more- I feel as if thats the virus playing tricks on you.
My best advice to you, is to rest, sit tight and save your energy on healing- not googling, chasing dr's and more* answers. Unless you are having an emergency then yes go to ER/DR.
This is very confusing and keeps you suspended into thinking that its more-
please stay calm as i need to follow my own advice as well-
if you have a diagnosis
then go with it-
i have gotten myself into trouble digging for more extensive answers*
please, just try to rest and acclimate to this unfortunate event as i am still trying to myself.
Time heals and when youre home tryingto heal- your mind may wonder-
try to stay calm- worry, anxiety, fear- all by design feed this evil virus- and it keeps you suspended.
Im trying to heal and master this thing -
its very tough!
this forum is a life saver-Craig and others are here as DRs and folks who have never felt this way- do not get it
so best advice-do not look for answers from them*
the only thing i do- about every so often- is check bloodwork
CBC/WBC etc
making sure your body is fighting the way it should.
you will be fine-
its scary feeling like this and understanding its all coming from a virus-?!?!? wtf right?--
i still have to stop and remember myself.....!
i told my husband the other day who to give my belongings to, as i for sure thought this is it-feeling so ill-
but im still here.....crazy!!!!
this thing is just plain maddening -
i try to eat very clean and drink a lot of water/pedialyte is a life saver.....
healing prayers to you and all on this forum are in my prayers daily!.....
Jaycee192 starrA
Posted
Wow, i have said this before to someone else but.... your reply is exactly what I'm going through in my head. Its just a constant battle thinking its more. Yeah see, I dont even want to begin digging around the web. Its just a horrible cycle. As much as I try not to think about it... BAM! There it is in my head. I, too, have had many tests done. They have all came back just fine. Regardless, like you, I just keep thinking the contrary. I keep thinking the worst, however, I'm scared to even write it so i wont. I remember being the man everyone would go to for support. I have always stood tall, strong, and confident. I have always helped people in time of need emotionally and mentally. I was always the pillar to lean on. I'd be the one to guide others with there troubles. I'm not capable of any of that anymore. I have gone from a man of great strength and courage, to a a very weak man. A shell of what I once was. My own mind is tormenting me and I just to have it in me to fight back. I just feel a great impending doom.
craig07920 Jaycee192
Posted
It's so hard Jorge, this virus can be so intense that it often tricks you into thinking that there is something else going on when in the vast majority of cases it is just the mono. I remember thinking with how bad I was feeling and all the different symptoms I had, 'surely all this can't be from mono?'. But looking back it was, sometimes checking in with the doc and maybe asking them to do blood tests just for reassurance can help put your mind at rest a bit.
This does get better Jorge, it can take a little time but truly you will get through this but just take each day as it comes with this because getting through a single day when in the intense / early stages can be so tough - look after yourself and remember you're not in this alone, God is on your side.
Craig
starrA Jaycee192
Posted
hi jaycee
sorry i mixed u up w/ jorge-:-)
yes
this will drag you down
and crush your spirit for sure
when you are strong in body you feel strong in mind and vice versa
i know how it feels to be strong and leaned on
this too has shaken my core confidence everything
but im trying to work on gaining it back
i felt lost in this
so i did an exercise; i wrote myself a letter who i am what i love why im great strong and awesome
i read it daily outloud
like bio feed back
it helps me feel grounded
prayer too* if you believe in God
it helps so much
gives you spirtual strength
this thing is still trying to abuse me
i just hit 9 mos
its a rollercoaster
the waiting is so hard
waiting to heal
when will i heal
ughhhh tough
after this phase ive heard recovery is easier
i see improvements
but its so all over the place along with my standing symptoms
it gets confusing to read your body
i just keep eating well and perfectly and pumping in the good nutrition and figure it will all balance out
i stopped refined sugar right away
refined white flour
minimal whole grains as they add to fatigue with me
clean whole foods
raw juice
i dont eat meat so i drink whey protein and eat eggs
yes eggs (some say it feeds virus well it feeds me to so i need that nutrition)
pedialyte
water water & more water
i guess the more nutrients you pump in the better ?
its a journey and its the most difficult thing ive ever faced
ive been through a lot too
too much
this is the kicker......
it feeds off stress and anxiety
when i feel upset
and dont completely cry and breakdown
i try to do bio feed back
"i will get well
"i am getting well
etc
it helps the mind cope*
try to write some things down so you dont feel so broken as i know what youre feeling i truely do
youre not a weak man
you just have an intruder who you have to fight against
our bodies are stronger than this virus eventhough it makes us feel so lousy and down
in all ways
try to stay stronger than you ever were before
as this sucks the life from you
keep going
keep eating well
things will improve
its a zig zag recovery
but have faith
i hope this helps
have a better day........
craig07920 starrA
Posted
Hey Starr,
This thing might try to crush your spirit but it won't succeed - even though you may feel weary, bruised, battered right now, this is temporary and God is going to give you the victory over this thing, I honestly believe that and still keeping you in my prayers.
That's a great thing you did writing that letter to yourself, definitely you're showing courage and taking positive steps to help yourself Starr. You're showing determination and fight in the face of frightening and unknown circumstances - take heart from that, God is giving you strength and will continue to give you strength until this thing is a thing of the past (and beyond).
It took me a while to get my confidence back after this virus, it really knocks your confidence and just want to reassure you that this is normal and understandable given what you have been through, but that your confidence will return as you start to feel better and see further improvements and breakthrough (which you will).
Some great advice on diet and drinking plenty of water as ever Starr - you are an amazing blessing to this forum and have taken the time to encourage and help me and others despite what you've been going through yourself - take strength from that! God sees that and is pleased I feel sure.
And most importantly - I want to tell you today - you ARE going to get well again and it's not down to you to defeat this thing alone - God is at work. I believe you won't have to go through anything as horrible and intense as this last 9 or 10 months and that a period of recovery, peace and healing lies ahead, thanks to God.
Thinking about you and keep the head up - God has got you protected and got this in hand, He is faithful and will pull you through. It's so hard when we don't understand why and when things go on for so long, I wish it was easier, but remember He knows what He's doing and won't ever leave you or abandon you, His timing and will in your recovery is going to be just perfect and come to pass, hang in there. Hugs!
Craig
josh46287 Jaycee192
Posted
Like right now for no reason i feel like i can not breath my head chest back neck and stomach hurts. i feel like i am gonna pass out but if i go up to the ER they will find nothing. It is so so frightening all the weakness and sensations and tingling but what else can you do. You have to try to relax as much as possible which is almost impossible i would say but find someone that cares and comforts you and try to ride it out as best as you can.
craig07920 Jaycee192
Posted
Hello Jorge,
Absolutely I want to reassure you that the symptoms you describe there all sound very consistent with and classic for going through mono - and to reassure you that in no way are you doomed or anything like that - this is a stubborn and nasty nasty virus and can take time to recover from but truly you will recover and get better. It is understandable to be feeling so down and helpless, and it's the worst feeling in the world, especially when you want to think positive but just feel so overwhelmed by this virus and weary and drained.
Remember rest is important - you don't always have to be in the face of it fighting every day - sometimes with this the best way to fight it is to be smart, to give yourself time, space and rest - remove stress as much as possible (not easy I know), and just to take it one day at a time and not look too far ahead. Because you WILL get there Jorge, I truly believe that and have real faith in that.
My main symptoms, from memory (it was a long time ago so I may have forgotten some):
Awful and continuous low grade fever
Terrible and draining fatigue
Sweating and night sweats
One particular painful and swollen gland in my neck
Strange pains and discomfort in other glandular areas, including upper chest, armpits and groin
Muscle and joint aches, pains and even bruising during one spell
Just a general feeling of being 'stunted' or unwell - something very hard to describe but just that you knew you weren't right or well but couldn't really explain it
I'm sure I had other phases with different symptoms too, it was like a rollercoaster one week or month it could be a different thing bothering me, although the fatigue and low grade fever were constant throughout.
You WILL get through this and get better Jorge - really you will, this is a HORRIBLE illness but it DOES get better with time.
Craig