shingles outbreak reccurring same place.. butt crack..

Posted , 12 users are following.

I'm Donna & I'm 55 yrs old & I have been dealing with reccuring outbreaks of shingles for the past 12 years or so.... I have it in the same location each time (top of my butt crack) and the breakout is not really all that bad but the pain that is within the nerves and the way I feel (tired, irritable, sad ... and much pain)....nerve pain in my hip and legs.... unreal..

I do take Valacyclovir, which helps and will shorten the time its so bad... at least I hope but I live it fear it will not work one day..... My heart goes out to anyone who suffers with this continue outbreak and issue as it is very painful and bothersome...

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10 Replies

  • Posted

    I hope it keeps working for you Donna. I Went to another dermatologist and they say it is folticulitis Now and I could have it the rest of my life. It's on the crown of my scalp. I have neurological pain from it. Plus I just recently lost my job and insurance.  Horrible.
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  • Posted

    Hi Donna, I so identify with your nerve pain, and the feeling tired,sad and irritable. I cannot take Valacyclovir or any anti viral meds as they make me sick. Had the shingles vaccine back in June but yesterday they came back, so dissapointed. But saying that it was the longest I had been without them.Mine are on the left thigh just a small cluster, but it is my right hip thigh and knee which is very painful at the moment. Feel like chopping off my left leg. Hoping they will not last as long this time due to having the vaccine, will keep you posted. Hope you feel better soon. xx
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  • Posted

    Hi Donna,

    I have been experiencing recurrent Ramsay Hunt Syndrome-Herpes Zoster Oticus Right Ear every three to five weeks for the last 19 years. (Shingles) I have the malaise, low grade fever, fatigue, and of course, protracted pain. At the first hint of the headache, I start the Famvir, which works best for me. I am also on Topamax, an anticonvulsant, daily which helps to lower the intensity of pain and prevent post herpetic neuropathy. I do take a narcotic, as I could never get through the first week of almost intractable pain. I also use Auralgon ear drops, which have benzocaine, a local anesthetic, to soothe the nerve endings in my ear canals & on my ear drum. You might request Lidocaine patches to see if they help.

    Another issue to consider is why are you getting recurrent shingles. I was finally diagnosed with Lupus, an autoimmune disease that lowers your resistance to viral and bacterial infection. I would research if you might have that possibility in your family-SLE, Rheumatoid arthritis Sjögrens, for example; Also, more remotely, people who have cancer & HIV, tend to get recurrent shingles. People who take a lot of corticosteroids also have impaired immune systems. These are things to think about, but not worry about. I hope this helps. I am a Nurse Practitioner in the States. If your doctor does not give you excellent pain medication for your shingles, find a new doctor to help you. Shingles is devastating.

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  • Posted

    I have had shingles for about 5 years now. It hurts like crazy!! Especially on the inside. I just started taking valaxyxlovir, but have never been free of the pain.
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  • Posted

    Oh wow. I have the same thing. It comes and goes for the past 7 years. I also get a few on the same side on my side and behind my ear. All on. The right. Side. It's just awful. I feel for you.

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  • Posted

    Thanks this is my first outbreak and everyone keeps telling me that it can't be Shingles because of where it is. Z'S ON MY BUUT. I DON'T HAVE A FAMILY DOCTOR AND DON'T KNOW WHAT TO DO. CAN YOU PLEASE HELP.

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  • Posted

    I have the exact same issue, Donna.  I haven't been to my Dr yet, but it just recurred for the 2nd time and is excruciatingly painful.  As a cyclist, I initially thought it might be chafing--but it's at the very top of my crack and that just didn't make sense.  I has West Nile in 2013, which has affected my immune system.  I just can't get over how terribly painful this is, and it's a relatively small area.

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  • Posted

    Hi Donna, I am 60 y/o, I also get shingles the same place. Tremendous pain most of the time down my left leg. I have other symptoms first. Headaches, loss off coordination,fatigue ,sometimes nausea. Then terrible pain occurs down my leg. Most of the time the left leg. The outbreak then occurs and more pain. I have recurring shingles for about 10 years now.  Sometimes 10 times a year. Now my foot is going numb and my toe drops with tremendous pain. The other night I was asleep and woke up with terrible pain in my toe. It felt like a snake bite. The next morning I woke up with the shingles outbreak. I am getting ready to get some test run. I fell two days in a row. I have no idea if it is related to the shingles. However. My feet have been numb for 4 days now and I still have the outbreak. How is your now? 
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  • Posted

    Im so sorry ive had the shingles 4 times now same spot every time top of my butt crack im so sick.I hope we both will feel better.soon
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