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Well i went to see my reotoligist yesterday and he gave me a full check looks like i need op on shoulder and wrists , a few weeks agao i was taken to hospital as i lost power of speach and left side parliysed for 4 hours the thought i had a stroke but it turns out it was just a bad silent mirgaine that done it but since then i have been stuttering my words and cant get them out properly and my specalist wants me to see the neorllogist as he said this isnt fibro causing it and what i would like to know if anyone else has had this problem xxx

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  • Posted

    HI cherl I am having problems with speech I will go tosay something the world wound come out and some times my speech goes alltogeather,I am also forever mixing words up I will got to say somethng a different word comes out,last year I was numb down my left side arm and face my speech was slured I was rushed into hospital with a suspected TIA. the specialist couldnt confirm 1 way or the other.I also stutter at times also. I am going to have a word with my gp about it see what she says. take care gentle hugs
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    • Posted

      hiya ask to see your remolotogist as he said fibro does not cause this and ask to be refferd back to a neroligist take care gentle hugs love always xxx
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    • Posted

      Hi Cherl Im going to speak to my gp about it and see if she will refer me, I cant believe your still like it after 3 weeks thats not right. hope you get seen soon hun take care gentle hugs xsmile
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  • Posted

    Just a thought Cherl - did they mention a possible TIA? (Transient Ischaemic Attack), often called a 'mini stroke'.  It's not a stroke as such and doesn't leave permanent affects so is sometimes difficult to determine after the event.  Otherwise, sorry I can't offer any suggestions but I tend to agree with the neurologist it definitely doesn't sound like fibro.
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    • Posted

      hiya hunno itwas my remoltogist that said it wasnt fibro and wheni was rushed to hospital they said it wasnt a stroke or mini just a playising silent mirgraine , my neorgolgist says everything is mirgiane and i really dont like him so not looking forward to seeing him again to betold its a mirgiane causing my stuttering and thatxx
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    • Posted

      Hi Cherl.  There are very many forms of migraine, some of which do cause physical weakness, theyre most familial migraines, ie hereditary like hemiplegic.  It's definitely possible that this is the cause of your symptoms, particularly as the rheumy has said its not the fibro and the neurologist has put it down to migraine. Hope you find some relief soon hon.
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    • Posted

      morning loxie how are you today? I was rushed in with a suspected TIA, i was numb all down my left side speech slured face numb left arm leg foot. the specialist said he was 50/50 couldnt confirm if it was definitly a stroke or not  stroke. Im beginning to wonder if it could possibly of been a migrain. Ive suffered with them alot in the past since having fibro Ive had them a few times. hope your not in too much pain take care gentle hugs
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    • Posted

      oh kaz you poor thing, how worrying for you.  I hope you find that it's nothing serious or lasting.  Even finding out it's yet another nasty symptom of fibro would be better than a more serious reason.   Just how much more do we have to cope with this vile thing throwing at us?  If anger alone could cure me, I'd be 100% healthy by now - I get so furious at this horrid affliction.  big hugs. xxxx
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    • Posted

      I get very angry frustrated by it I cant believe how my health has taken such a nose dive. Te difference in me from last year to this is staggering. My mobility is now that bad If I go out my husband has to push me a in a wheel chair. something I dont like. As my passion has always been going for long walks my husband me charlie would walk for miles. Ive always walked every where not used taxis buses unless I really needed to. It heartbreaking when you can no longer do what you use it. never mind onwards upwards we are how we are.hope your having  alovely day not in too much pain the sun is shinning in shropshire its uiet warm but not over powering thankgoodness. you take care gentle hugs xxxsmile 
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  • Posted

    Hi Cherl,

    As Loxie said it could have been a TIA but also a Hemiplegic Migraine (Pasted Info below). I wouldnt think its fibro either if im honest. 

    My friend was told he had a TIA and was put on blood thinners for over a year and then now he has had follow up they have told him its Hemiplegic Migraine so hes not on anything.

    Familial Hemiplegic Migraine

    Familial hemiplegic migraine (FHM) is defined as migraine attacks occurring in two or more people in the same family who experience weakness on one side of the body as a symptom with their migraines. On average 50% of children who have a parent with hemiplegic migraine will develop this disorder.

    At least three different genes have been implicated in FHM. In half of the families where FHM occurs, a gene with a defect on chromosome 19 has been identified. This causes the related calcium channel to work incorrectly from time to time, and when it does a series of biochemical changes result in a migraine attack. For other families chromosome 1 is implicated which alters the behaviour of a channel involved in cell energy and in still others a sodium channel gene on chromosome 2 is altered. Even these do not account for all cases so more genetic causes will be found during future research.

    Sporadic Hemiplegic Migraine

    If someone experiences all the physical symptoms of FHM but doesn’t have a known familial connection they are diagnosed as having sporadic hemiplegic migraine (SHM). The cause of SHM is unknown, some are due to new or so called ‘sporadic’ gene mutations.

     

    Research has shown that people with SHM usually experience all four of the typical aura symptoms – visual, sensory, aphasic and motor symptoms – during their attacks. It was reported in the people who were studied that the motor weaknesses were always one sided and more often experienced in the upper limbs. For two thirds of people the symptoms lasted around an hour; whilst only 8% experienced this weakness for more than a day. None experienced the one sided weakness in their body without experiencing other symptoms as well, and the most common of these accompanying symptoms was visual disturbance. All experienced the headache of the migraine.

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    • Posted

      Nicely detailed info charlotte, I've only just noticed what you've put - I had a friend with hemiplegic migraine and its quite scary making you think it's something far more complicated or dangerous. Thank you for your long post, very informative.
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  • Posted

    Sorry forgot to add the symptom part:

    What is hemiplegic migraine?

    Hemiplegic migraine is referred to as a “migraine variant”. The word hemiplegic simply means paralysis on one side of the body. A person with hemiplegic migraine will experience a temporary weakness on one side of their body as part of their migraine attack. This can involve the face, arm or leg and be accompanied by numbness, or pins and needles. The person may experience speech difficulties, vision problems or confusion. This can be a frightening experience for the individual as these symptoms are similar to those of a stroke. This weakness may last from one hour to several days, but usually it goes within 24 hours. The head pain associated with migraine typically follows the weakness, but the headache may precede it or be absent.

    What causes the symptoms of hemiplegic migraine?

    To understand this, it is important to look at the mechanism of hemiplegic migraine. The brain and nervous system depend on a combination of electrical and chemical signals to function. When a nerve impulse (electrical) of sufficient strength passes down from one nerve cell towards another, it opens a so-called ‘channel’ which acts like a ‘gate’. This process releases neurotransmitters (or chemical messengers) which contact the neighbouring cells and tell them how to respond. If a channel in the brain is not working properly, neurotransmitters, such as serotonin, may be released in an abnormal way. In the case of hemiplegic migraine, the way the channel dysfunctions is known to have a role in the condition.

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    • Posted

      Well a quick search does bring up stuttering with migraine along with other speech issues BUT (only on a quick search) i cant find much about it lasting weeks after, more like days).

      You could try whilst waiting for your neuro appointment giving the migraine trust a call, they may be able to give you some guidance.

      Also one more thing I though of is that sometimes you can have low level migraines, perhaps your not fully out of a migraine attack yet?

      My friend who had the TIA which they now thing is migraine has never since had a full on attack where you become partialy paralysed etc so hopefully you wont have another.

      Good luck and fingers crossed for a speedi neuro appointment.

       

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  • Posted

    i try to say something but something else tends to come out or i sler my words i have mentioned this to my doctor and still he has done nothing and even the rhuematologist has not done anything about it but my doctors surgery only has 1 full time doctor and 1 part time doctor and its hard to get an appointment but when im lucky to get 1 he is just useless and does not listen yet alone do anything so i cant get any tests done cause the surgery is a joke so im trying to change doctors but all the other local surgerys keep telling me im out of there area does anyone have any ideas
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