Should I Have Urolift or Something Else?

Posted , 12 users are following.

I've suffered from BPH for 30+ years. Had a TURP twenty years ago. BPH keeps coming back. Bad LUTS for years. Medication for a long time that no longer helps. Recently diagnosed with minor prostate cancer on which no one will operate. Fully familiar with catheterization. Question now is: Urolift or something else? My uro is backing urolift. I know there are people here who are for it and against it. I know there are (as with everything) potential bad effects, side effects and unhappy sequelae.

Of course, I do NOT want to wind up with a catheter for life, or any of the other myriad miseries that can result from prostate surgery/treatment of any kind. But I'm sad to say those things can happen with every single procedure about which I've read for twenty years and more. What say you, brethren? If I want relief from LUTS, if medication no longer works, what are the options with the largest upsides and the smallest downsides?  

 

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  • Posted

    "Medication for a long time that no longer helps. "

    What medications did you try, and for how long? Hank

  • Posted

    This is my opinion, and I'm not a medical expert.  This site seems to attract guys who have had problems with various therapeutic procedures for BPH. I've read a recurrent theme regarding the Urolift procedure; that it's great ... for a while.  Then the problems come back.  It's my best guess that so many of our brothers-in-suffering are told they can give up their prostate medications, and so they do.  The procedure doesn't change the architecture of the prostate by biochemical means.  It remodels the prostate by mechanical means.  The prostate may continue to grow.  That said, some experts argue that even if the prostate does continue to grow, the ability to urinate remains unencumbered.  Hope this helps.

    • Posted

      The question I cannot get and answer to is that as it grows what happens ? Where does the growing tissue end up and do the bands holding it not damage it ?
    • Posted

      The implant are very strong.  But I assume it just hold the prostate open.  I see my Urologist Friday morning.  I'm going to ask him.  I guess if it grow to much you can have a few more implant put on the prostate to keep it open  Take it easy  Ken...  I have to ask him some stuff anyway.  I had a CT Scan the other day and there is something on it that I need to talk to him about.  It said that they see Surgical clips on the left urinary bladder base.  I have never had anything done to my bladder...  

    • Posted

      I have heard that in some cases the continued growth of the prostate encloses the clamps used (grows around them) and when adjustments of the clamps are needed then this requires surgery. I don't know anyone that this happened to but I did hear it on the internet and it address your questions of continued growth. I am sure that this is not the norm but it would be my luck that my big ole prostate would keep growing and they would have to cut on me. 

    • Posted

      The group will be interested to hear his reply.

      Very strange about the surgical clips.

      Good luck with your consultation. 

    • Posted

      Quite possible the prostate seems as bad as Japanese Knot Weed for growing.
    • Posted

      Good Afternoon.  Was with my Urologist for about a hour.  He got everything straight.  2 of the clips are at the opening of the bladder not on the bladder.  The other 2 are at the other end to help with the stricture that I have at the opening of the prostate.  The radiologist also put down that I had brachytherapy seeds in my prostate.  My doctor will be calling the radiologist to tell them to pay more attention to what is on the patients information.  If I did not know better I would have panic.  Being this happen men when you have any test done makes sure you read the results and all is correct  NEXT
    • Posted

      How could the Radiologist get it so wrong ? What did your Uro say about the  source of the 'seeds' 

    • Posted

      Brachytherapy seeds (which urologists place for cancer) have an appearance which is similar on imaging to the Urolift clips.

      If a radiologist has not seen urolift patients before (which is certainly likely, as it is a newer procedure), he could easily mistake them for seeds.

       

    • Posted

      I gave all the information he needed on any surgery's I had.  The radiologist read the pins from the urolift as the seeds. He never paid attention to the information.  Will type more later having a problem with the computer..Ken 

    • Posted

      That is what the radiologist did.  But why don't they look at the information from the patient.  I gave them a list of my surgery's and it said I had a urolift.  He did catch the monitor in my chest..  Thank you  Ken  

    • Posted

      He'd hardly miss the monitor. My pacemaker and Amplatzer amulet showed up well on my CT.  

    • Posted

      Also I will be on 4 weeks of antibiotics for a infection or prostatitis.  Just to be sure.  He checked my prostate and it was a little swollen.  Also have to have my PSA done again in 3 month's.  It's a little high for me.  The last one was 0.7  This time it's 2.2.  Also being I have a defected kidney.  It is half the size of a normal one.  It sits on my bladder.  He told be because the ureter is very small it could kink or get plug.  He said if I have any pain to let him know. We have to keep a eye on it    Life is so much fun   Ken    

    • Posted

      My urologist said that there is a lot going on with the Urolift.  They are trying to improve it.  There is a trail going on now with men that have a large median lobe .  Having good results.  Right now it is lasting 5 to 7 years.  They are trying to get it to 10  That is the goal.  But for me a procedure that would last 5 years would be good for me no side effect.  I would have it again.  Now with the prostate growing.  It would depend on the man.  Not all men prostate grows at the same speed some are faster then others.  When the prostate grows the clips will hold it open if the prostate gets to big they can be adjusted or the doctor can put more in.  Like mine.  9 month's after I had it done.  I had to have a repair.  1 got lose When my doctor went in he found the prostate got smaller he replace one and tighten the other 3  Been good for now.  I hope the improvement come quick.  I think it would help a lot of men.  That don't want any of the others procedures.  Ken   

    • Posted

      If this guy read the information that they ask for it said that I had a urolift.  He found the monitor and the defected kidney.  They just need to pay more attention.  Life goes on.  Thank god I'm done with tests and procedures for now..  Will see in 3 month's what it will bring  Have a good weekend   Ken

    • Posted

      That is correct.

      We are involved in the median lobe trial. I'm not sure how successful it will be for men whose median lobe is the primary cause of their symptoms. We've been aiding the company with some of the engineering changes they've been implementing, and hopefully the product will continue to improve. It's still (like any treatment for voiding symptoms) not for everyone.

    • Posted

      Yes it may not be for everyone but I think it would be something to try first and then move on from there.  Time will tell.  Let's hope all goes well.  Thank you for being here.  I have been trying to get my doctor to come on here .  The nurses are telling him he should who knows  Thanks again Ken

    • Posted

      Can you tell us how they handle a large median lobe in this Urolift trial ? It would be great if no cutting or burning is involved. Thanks. Hank
    • Posted

      Sorry to hear about the infection.

      I'd read about the trials on bigger median lobes. Do you know how the clips can be adjusted?

       

    • Posted

      They tack/bunch the median lobe up to get a (hopefully) wider opening.
    • Posted

      It won't be a good weekend  we have Storm Brian hitting South East England. Still it won't be as bad as Ophelia that went up the West Coast and Ireland last week.

    • Posted

      I'm sorry for it.  I know how you f eel Just had ours here a few weeks ago. be safe Ken

    • Posted

      Thanks Ken, it won't be as bad as that one. We live in a tall odd shaped apartment block that the wind howls round at the best of times.

    • Posted

      That is great. I have a pre fab home  4 bedrooms.  Lost 200 to 300 shingles off my roof.  Need a new one know.  it will take some time.  May have to my sons on the roof.  They won't let me up there. take it easy  Ken

    • Posted

      Do they have to get inside the bladder to do the tacking/stapling ? Where would they tack the median lobe to ? Thanks. Hank
    • Posted

       they would take it to the capsule of the prostate.

      Whether they need to go into the bladder depends on the actual anatomy of the median lobe 

    • Posted

      I hope that insurance paid for it. Worst we ever endured was on holiday in New Zealand in 2006 when we got just the tail end of a hurricane that kept us indoors for two days. 
    • Posted

      We were keep in for 3 days .  I went by my sons house.  He has a brick home.  Take care  Ken 
    • Posted

      We went to Grenada on holiday about six months after its  2004 hurricane. There were very few hotels still operating and practically no tourists apart from day visitors from cruise ships.

      We are bird watchers but the birds had left before the storm and did not come back. We went on to Tobago where the hurricane damage was much less.

    • Posted

      That's great.  I did not get to go any where.  WAS suppose to go to Las Vegas.  But we changed going in February  Have a nice Sunday  Ken        

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