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I was diagnosed with Cushings Disease in Sept 2009 in Oct 2009 after a 15 hour surgery a macro adnoma was removed from my pituitary gland. Surgical cure that lasted close to 5 years. second tumor not so convenient....inoperable. tried (at that time) the experimental focused linear radiation. The radiation successfully managed to stop the tumor from growing unfortunately it continues to function.a new tumor was just found in my cavernous sinus also functioning. also inoperable. Radiation is not an option as you can only receive radiation in a spot once. they have offered to remove both adrenal glands, curing my cushings but causing adrenal insufficiency that will result in addisons. has anyone had or heard of a similar circumstance. can anyone give me their advice on if i should trade cushings for addisons or not
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