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Should I trade Cushings for Addisons

Posted , 4 users are following.

candia03996
candia03996

I was diagnosed with Cushings Disease in Sept 2009 in Oct 2009 after a 15 hour surgery a macro adnoma was removed from my pituitary gland. Surgical cure that lasted close to 5 years. second tumor not so convenient....inoperable. tried (at that time) the experimental focused linear radiation. The radiation successfully managed to stop the tumor from growing unfortunately it continues to function.a new tumor was just found in my cavernous sinus also functioning. also inoperable. Radiation is not an option as you can only receive radiation in a spot once. they have offered to remove both adrenal glands, curing my cushings but causing adrenal insufficiency that will result in addisons. has anyone had or heard of a similar circumstance. can anyone give me their advice on if i should trade cushings for addisons or not

0 likes, 20 replies

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  • elizabeth62717
    elizabeth62717 candia03996

    Posted

    I am a little concerned, even scared to be honest, when you say your surgery took 15 hours.  Is this a typo?  And if not, is this the norm?eek
  • elizabeth62717
    elizabeth62717 candia03996

    Posted

    Even five hours seems long for what I have been lead to believe is quite a simple procedure.  But definitely better than 15.
    • candia03996
      candia03996 elizabeth62717

      Posted

      My surgery was more lengthy because my skull is thicker then average so it took longer to drill through. I also had a Macro adenoma witch made the removal lengthy. After she cut up and removed the inner core she had to wait for the outer casing of the tumour to collapse into the open area so it could be safely reached, cut up and removed. 

  • elizabeth62717
    elizabeth62717 candia03996

    Posted

    My prospective surgeon informs me that the pituitary gland will be accessed via a cut behind my top lip, and up behind my nose.
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