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Sick of constant kidney infections and antibiotics

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I'm 23 and have had trouble with Kidney infections all my life.

When i was little i had trouble with wetting the bed until i was 8years old.

All my life i've had infections, some urine but mostly kidney. When i was 20 I developed acute pyloneprhitis which overnight turned into septicaemia and i was rushed into theatre with suspected internal bleeding.

I've seen specialists in Dorset, Somerset and Gloucestershire and have had loads of scans and xrays which all confirm there is nothing wrong with my kidneys.

The only symptoms i get are pain (always always my left kidney only) and cloudy urine. I seem to get these about once a fortnight - i'm so sick of antibiotics (which dont even work that well anymore) that i've stopped going to doctors and just try to cope with it on my own by drinkingloads of water and taking painkillers.

Its been suggested that i take a permanent antibiotic which i take everyday for the rest of my life - but i'm only 23 and i hate taking drugs for anything.

I worry that when i'm older i will get kidney failure. I just CANNOT beleive that a normal healthy person can get this many infections and nothing be wrong? Or that there is nothing that can be done about it. The specialist in Gloucestershire told me \"It's very common and unfortunately technology hasnt advanced enough to deal with the disorder, so theres nothing we can do\".

I feel sick, tired and emotional everytime this happens and its so hard to cope with work, university, keeping a house and being a single mum to a 2year old when i feel this ill. I manage but it makes me cry a lot.

There must be some explanation or solution???

4 likes, 59 replies

59 Replies

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  • jennifer_81275
    jennifer_81275 Guest

    Posted

    I am the exsact same I have had this for 14 years now since I had my daughter but recently it's just getting worse and worse every time I drink fizzy juice I get it bad the next day I'm totally sick of been on tablets

  • sarah_49543
    sarah_49543 Guest

    Posted

    Hi I'm 28 and from the age of 10 I get this, and kidney infections so I know how you feel it's got to the point I don't feel the pain anymore, they offered me the antibiotic a day for the rest of my life . I don't see how that's going to work when normal antibiotics don't work . Your not alone

    • jennifer_81275
      jennifer_81275 satwik63913

      Posted

      No I don't think I have been tested for rental tuberculosis what does this involve is this when they put dye through your body. I have had that done once I'm honestly loosing the will to live it's horrible living day in day out with this .It's getting to the point I'm taking so much time off work the surgeon thinks I have prolapse of my womb x

  • Amein77
    Amein77 Guest

    Posted

    Wow reading your comment felt like you were writing my life story. (Health wise). But my situation is worst! I've been fighting kidney infections for the last 20 plus years. When I was 16 I found out I only had 1 functioning kidney. My right side kidney was scribble up and not functioning at all, so they removed the basically dead organ. After the surgery the dr's thought I would be relieved from chronic kidney infections, but that wasn't the case. I start having problems with my blood pressure being so elevated that I had to be hospitalize frequently. Then came kidney stones. After removing the stones I was diagnose with stage 3 kidney disease. Along with sarcoidosis and chronic anemia. The pain and agony I'm constantly in some days feel unbearable. I'm 39 and had to stop working due to my health and from being hospitalized so often. Currently I take keflex for my kidney infections everyday along with 4 different blood pressure meds and painkillers. My advice to anyone going thru having frequent kidney infections is to drink plenty water! Or natural juices.

  • jody54846
    jody54846 Guest

    Posted

    hey it has been a long time, how did it went?
  • rachael03574
    rachael03574 Guest

    Posted

    Hello i hadn't updated in a while I ended up needed a kidney operation back in October 2015. They diagnosed me with a rare birth defected kidney at age 30. It was a good year battle from the start of my kidney symptoms which landed me in hospital for a month and off and on for the year with constant utis. It caused me to get septicaemia. My condition was called Cayceal Diverticulum.

    After the op I continued for a few months to get utis and then I found out I was pregnant. Had my baby girl in sept in which we both almost died. I was rushed off from a placental abruption cause due to severe pre-eclampsia and hellp sydrome only found after all occurred which needing an emergency general anesthetic csection. Was rough. Here I am now uti infections clear, occasional I feel a little flank pain. They have just recently done a Radiation Scan to check the flow of my kidney (they could not do while I was pregnant). I actually get my results on Tuesday but I'd say i am officially normal again I hope.

  • Dollyk30
    Dollyk30 Guest

    Posted

    Ive been getting kidney infections since I was 18 19 yrs old. Always the left kidney. Ive had doctors give me catscans ultra sounds and they all say the same thing im perfectly healthy. Kidney infection are believe it or not quite hereditary and u can be perfectly health and still get them. Doctors tell me that with me constantly getting kidney infections that they would recommend a uroligist. They only thing I know to maybe possibly solve Ur issue is a kidney transplant. My aunt on my moms side is like in her late 70s and has had too many to count kidney infections she has now only one kidney till she can get a transplant. All those kidney infections led to her having kidney failure. Id talk to your doctor or uroligist about finding a surgeon and being put on a transplant list. Good luck.
  • charlr70
    charlr70 Guest

    Posted

    I, too, have been suffering through this. For about 2 years now I have 4 to 5 infections a year, currently have my second on for this year. I did just notice a few days ago that it is only my left kidney and besides the pain I only have foul smelling, cloudy urine. I sleep a lot too.

    I am 47 and I live in the U.S. and right now I have a 2 to 3 month wait to get into to see my doctor. I am tired of this. I wish I could find a doctor who would take the time to find out what's wrong with my, not just through pills at me to deal with the symptoms. My health is running amuck and I want to get better. 

    • jody54846
      jody54846 charlr70

      Posted

      i go through the same and there now behaving as if im lying about my symptoms. 
    • charlr70
      charlr70 jody54846

      Posted

      I get it. I am only allotted 15 minutes with mine doctor and it's never enough time. I have many health issues that are still not addressed simply because I don't get enough time to discuss them. What good is better health care if we don't have enough caring, not over burdened, doctors?

  • jilly56
    jilly56 Guest

    Posted

    Fresh lemon water every day make a pitcher with cut lemons it changed my body chemistry to alkaline my doctor still won't back it but I'm cured

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