Side effect Question

Posted , 13 users are following.

Hello

I am wondering at what dosage of pred, are side effects no longer an issue?

I know nothing is  the same for all, but just curious, if have to stay 5 or below for a year or more( not nearly  yet ) if the body adjusts. 

Thanks,

Gina

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  • Posted

    My worst side effects, High(ish) BP. and a feeling of too much adrenaline and over all Hyperness did seem to subside more or less relative to the dose. Ten or below was about the level where they began to wear off.

    What I did find, though, that even months after getting to zero I still had considerable muscle weakness and also fragile skin.  The good news: More than three years on I have none of these.  Sorry I cannot pin point it but once things begin to improve it is such a boost that, even though you may not be all the way back to normal, you do begin to believe that you will get there.

  • Posted

    I am at 4.5. My hair has thickened up and my wrinkles have returned on my face and neck!!. My skin didn't really thin and heals quickly considering my age. Heart flutters and palpitations are minimal now though I have continued with decaf tea and coffee. I occasionally have ordinary tea if I'm out but not coffee. I tire more easily which I suspect must be my adrenal glands wakening up. It's not too bad but does catch me out at times. Today I was thinking I may remain at 4.5 for a bit longer as I've had quite a bit of stress with my OH's health recently which is ongoing.I was planning to drop to 4 next week but a bit apprehensive because of the tiredness. I have been on steroids for almost 2 years.

  • Posted

    Hi Gina I started last Aug at 15mg a day now down to 7mg and I must say I did not have any sideffects from it.  One thing some people seem to do is take twice a day as my mornings are still quite stiff in my hands I now take 5mg around noon the other 2mg at bedtime seems to really help mornings . 
    • Posted

      To everyone, these are great discussions. I like not being the only one with certain issues.

      I am wondering from anyone who gained weight on pred, how did you lose it. Before being diagnosed, I lost about 35 lbs. of course after being diagnosed and on pred I have gained it back. I'm down to 1 pred per day, but I know I'm going to have to go up to at least 3 if not 4 for awhile. My biggest issue is mostly the weight.

      Thanks

    • Posted

      Hi I had gained a bit of weight but after reading that dairy and sugar are the foods that feed inflamation so for 30 days I ate no sugar, no dairy. No grains  and no alcohol.  I lost 12 pounds and feel amazing have now dropped my prednisone from 10 to 7 mg  with no,problems.   The first week was the hardest finding out what foods I could eat as almost everything we buy has some sugar in it but once I got going was easy the rest of the time could eat all meats , vegetables and a bit of fruit , eggs etc. I am still continuing to not eat much sugar but have introduced some dairy back into my diet not a coffee or tea drinker so needed my milk. 
    • Posted

      Cutting carbs drastically has helped a lot of people on the forums avoid weight gain with pred, others have lost weight. I lost 36lb by cutting carbs. I'm stuck at my current weight but the amount of carbs I eat (really not a lot!) keeps the weight stable to within a pound or so either way. If I eat more carbs - weight goes on straight away but goes as soon as I go back to my normal pattern of eating. 

      As donna says - that really does mean cutting nearly all processed foods as sugar (like wheat) is added to loads of things you wouldn't think of! If I want a yoghurt - natural unsweetened is the only way! Salad dressing - olive oil and vinegar. I also eat low salt - when I go out for a meal I retain fluid immediately because of the salt used in restaurant kitchens.

    • Posted

      I gained a lot of weight during the first few months of taking Pred, but since I have gone back on the higher dose due to a flare I have managed to stay steady and actually lose a few pounds.  Apart from cutting out most of the goodies I used to eat and the sugar in my tea I found the low carb just doesn't work for me, but a bit of excercise and eating much smaller portions of my usual foods is gradually seeing results, and I don't have to cook separate meals for me and my OH.

    • Posted

      I've never had to cook separate meals for us to avoid carbs. And actually - what do you think you have done besides cut carbs? We're aren't saying NO carbs, but much lower carbs than you usually eat at a level that works for you. And portion control is still needed.

    • Posted

      The important thing is to eat a good balanced diet. Cut out the simple carbs, those lovely cakes etc, you still need the carbs in veg for example. In fact a balanced diet is the sort of diet everyone should be following PMR or not. We may up the anti inflammatory items with certain vitamins and minerals because of the pred, but at the end of the day it is what our bodies need anyway. As you say just reduce the helpings a bit.
    • Posted

      I agree in part, as I do think its easy to not eat enough when appetite gone.

      So increasing vegetables is my goal

      But i find even a bit of carbs / sugar will bring on the cravings for more.

      Though i would sell my soul at times for a slice of pizza.. ( live close outside  Chicago)  so bragging rights on that)  . I know it will be a slippery slope.

      I admire those strong enough for an occasional treat..

      Wishing all well,

      Gina

       

    • Posted

      Sugar is amazingly addictive!! One cookie is not worth having you need the packet.

      Why not have some pizza occassionally? Life is too short I feel to not have the odd pamper.

    • Posted

      You are so right,and it will be in my future when I get down from this high dose!

      Not soon though as gca symptoms returned today on 25 so back up I go..

      Darn

       

    • Posted

      Before I started the low carb attack I had used the five:two diet approach and I found that reeducated my appetite to want much smaller portions within just a few weeks on it. It is a relatively easy way to do it too as you are never "dieting" for more than 1 day at a time and tomorrow you know you can have that whatever it is you suddenly crave while on a diet. If you google it don't write the words, use numbers (usually it disappears for moderation if you put that).

    • Posted

      Eileen, what is the five;two diet approach?

      I'm really trying to drink a lit of water and walk and cut out sugar, but it seems like a losing battle.

      Some days I feel like my stomach is huge and very hard then other days it's not bad.

      I just read your last part about google...sorry and thanks again!

    • Posted

      Google it as numbers:  5 colon 2 - if I write it out the post will get taken for moderation. It is a diet based on eating normally for 5 days of the week and having 2 non-consecutive days where you only eat 500 calories if a woman, 600 for men. It is one version of intermittent fasting. 
    • Posted

      Oh dear, slapped wrists... I only mentioned the diet in a bit more detail with the name of the book. Obviously too much information.
    • Posted

      Er- why do you think I went about things in such a convoluted way? Was that Michael Mosely's book? He was the one who started as a proponent of the concept - I've read it. Didn't see the TV programme though as I don't live in the UK!

    • Posted

      Yes, that's right. I must have used a word that got warning bells ringing! The programme was good. I like all his programmes and articles as they are evidence-based and well researched.

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