Side effect Question
Posted , 13 users are following.
Hello
I am wondering at what dosage of pred, are side effects no longer an issue?
I know nothing is the same for all, but just curious, if have to stay 5 or below for a year or more( not nearly yet ) if the body adjusts.
Thanks,
Gina
0 likes, 40 replies
BettyE gina30088
Posted
What I did find, though, that even months after getting to zero I still had considerable muscle weakness and also fragile skin. The good news: More than three years on I have none of these. Sorry I cannot pin point it but once things begin to improve it is such a boost that, even though you may not be all the way back to normal, you do begin to believe that you will get there.
Silver49 gina30088
Posted
I am at 4.5. My hair has thickened up and my wrinkles have returned on my face and neck!!. My skin didn't really thin and heals quickly considering my age. Heart flutters and palpitations are minimal now though I have continued with decaf tea and coffee. I occasionally have ordinary tea if I'm out but not coffee. I tire more easily which I suspect must be my adrenal glands wakening up. It's not too bad but does catch me out at times. Today I was thinking I may remain at 4.5 for a bit longer as I've had quite a bit of stress with my OH's health recently which is ongoing.I was planning to drop to 4 next week but a bit apprehensive because of the tiredness. I have been on steroids for almost 2 years.
donna25417 gina30088
Posted
cb72360 donna25417
Posted
To everyone, these are great discussions. I like not being the only one with certain issues.
I am wondering from anyone who gained weight on pred, how did you lose it. Before being diagnosed, I lost about 35 lbs. of course after being diagnosed and on pred I have gained it back. I'm down to 1 pred per day, but I know I'm going to have to go up to at least 3 if not 4 for awhile. My biggest issue is mostly the weight.
Thanks
donna25417 cb72360
Posted
EileenH cb72360
Posted
Cutting carbs drastically has helped a lot of people on the forums avoid weight gain with pred, others have lost weight. I lost 36lb by cutting carbs. I'm stuck at my current weight but the amount of carbs I eat (really not a lot!) keeps the weight stable to within a pound or so either way. If I eat more carbs - weight goes on straight away but goes as soon as I go back to my normal pattern of eating.
As donna says - that really does mean cutting nearly all processed foods as sugar (like wheat) is added to loads of things you wouldn't think of! If I want a yoghurt - natural unsweetened is the only way! Salad dressing - olive oil and vinegar. I also eat low salt - when I go out for a meal I retain fluid immediately because of the salt used in restaurant kitchens.
priscilla23271 cb72360
Posted
I gained a lot of weight during the first few months of taking Pred, but since I have gone back on the higher dose due to a flare I have managed to stay steady and actually lose a few pounds. Apart from cutting out most of the goodies I used to eat and the sugar in my tea I found the low carb just doesn't work for me, but a bit of excercise and eating much smaller portions of my usual foods is gradually seeing results, and I don't have to cook separate meals for me and my OH.
EileenH priscilla23271
Posted
I've never had to cook separate meals for us to avoid carbs. And actually - what do you think you have done besides cut carbs? We're aren't saying NO carbs, but much lower carbs than you usually eat at a level that works for you. And portion control is still needed.
ptolemy priscilla23271
Posted
gina30088 ptolemy
Posted
So increasing vegetables is my goal
But i find even a bit of carbs / sugar will bring on the cravings for more.
Though i would sell my soul at times for a slice of pizza.. ( live close outside Chicago) so bragging rights on that) . I know it will be a slippery slope.
I admire those strong enough for an occasional treat..
Wishing all well,
Gina
ptolemy gina30088
Posted
Why not have some pizza occassionally? Life is too short I feel to not have the odd pamper.
gina30088 ptolemy
Posted
Not soon though as gca symptoms returned today on 25 so back up I go..
Darn
EileenH gina30088
Posted
Before I started the low carb attack I had used the five:two diet approach and I found that reeducated my appetite to want much smaller portions within just a few weeks on it. It is a relatively easy way to do it too as you are never "dieting" for more than 1 day at a time and tomorrow you know you can have that whatever it is you suddenly crave while on a diet. If you google it don't write the words, use numbers (usually it disappears for moderation if you put that).
cb72360 EileenH
Posted
Eileen, what is the five;two diet approach?
I'm really trying to drink a lit of water and walk and cut out sugar, but it seems like a losing battle.
Some days I feel like my stomach is huge and very hard then other days it's not bad.
I just read your last part about google...sorry and thanks again!
EileenH cb72360
Posted
ClaireJG EileenH
Posted
EileenH ClaireJG
Posted
Er- why do you think I went about things in such a convoluted way? Was that Michael Mosely's book? He was the one who started as a proponent of the concept - I've read it. Didn't see the TV programme though as I don't live in the UK!
ClaireJG EileenH
Posted
Yes, that's right. I must have used a word that got warning bells ringing! The programme was good. I like all his programmes and articles as they are evidence-based and well researched.