Side effects of solifenacin, anyone else struggling and does it work?

Posted , 6 users are following.

Hello I had TVT surgery in September but unfortuneately my problem has increased.  My consultant has now stated that he thinks its an over active bladder and has started me on solifenacin twice a day.  It doesnt seem to be making any difference at all.  Anybody had any experience of this drug.  Also not sure if its a side effect but my urine smells very unpleasent and is cloudy, should this be happening?  Thasnk you in advance. x

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  • Posted

    Hi it gave me a very dry really bad tasting mouth. And didn't help a bit.  I am now on tolterodine which is just as bad. 

    How you doing with the sling. Hope it's worked for you

    Claire 

  • Posted

    Hi 

    yep I got put on made me v unwell found out shouldn't be taken with my other meds 

    my daughter was also on it and she was very unwell 

    fill in the yellow card available in chemists until. A lot of pts complain they don't get statistics 

    mine was blamed on my weight but I pointed out to him in 1992 I wasn't over weight (it's taken this long)

    Now I'm resigned to nappies and no social life 

    good luck 

    • Posted

      I ware nappies,  i self catherterise. Take 4mg tolterodine which they want to change to patch that goes on the buttock but I won't allow as I get so much pain in my buttock and down my leg. Cutting pain in my vagina and have sores down there were the inconinence nurse comes out and sorts. X
  • Posted

    Solifenacin (or Vesicare as it's also known) worked well for me for quite a while with no side effects, but I suppose like anything else my body got used to it and the dosage could not be increased.

    I'm now on Trospium Chloride, once per day, and this is working for me up to a point at the moment (I still get the odd urge or two when it's wearing off and I'm due for the next dose).  Again, this dosage cannot be increased, so I'm hoping this continues to work as well as it is.  I certainly don't want to have surgery after the bad reports on this site.

    • Posted

      Glad it's worked I'm on amodarine and that plus warfarin seems to dislike anything causes tachycardia can't afford to get af again I've been restarted 6 times quite had enough 
    • Posted

      Hi I would advise personally not to have TVT mesh sling.  I have just had to pay for a private scan which results are a loop in the tape on the right hand side, right arm/anchor not in right place, ? Nerve entrapment and it's partially eroded it's been just over a year now and my doc just don't want to know. My GP is kind of listening to me asking for a second opinion   I wish I had gone with Botox now as still need it in the end. Xx
    • Posted

      I eventually see the specialist in January.  The original date was in November, but they cancelled it twice (giving me new appointments weeks later) and then I had to cancel because of another op on my left eye.  I certainly won't be having the sling.  It sounds like quite a lot of things can go wrong.  I was offered an operation (could have been the sling) years ago and refused then because of the possible adverse outcomes. 

      Are there any other ops beside this TVT mesh sling?  How does Botox help?

    • Posted

      I have a friend who's on Warfarin and they gave him Tramadol for the pain of broken/cracked ribs.  They gave him really bad hallucinations and he was admitted to hospital for a few days because he was that bad. 

      It looks like you've to be very careful what you take when you're on Warfarin although I would have thought the prescribing  doctor should have realised!

    • Posted

      Hi I don't know from 1st hand how Botox works but it has changed Helens life she has commented how Botox has gave her her life back.  Was never spoken about until after the TVT mesh op and by then my head is all over.  I would try Botox as if nothin else it is not permanent as you have to go back for injections so many month apart talk to your consultant and Google before taking any risk on TVT I wish I had x
    • Posted

      Hi....the botox works by paralysing the bladder. Imagine a pint glass which is only a quarter full. Well the botox is injected into most of the other 3/4 of the glass so that it stops the signals that make the bladder spasm and us wetting ourselves. I hope that makes sense.

      I was dreading it, but it wasn't nearly as bad as i expeçted. Just a local anesthetic into the bladder then i had 20 botox injections that i could only just feel. More mildly uncomfortable than pain. I was wheeled back into a day room and given tea n biscuits and had to be able to wee before i left....about 10 mins for me. I walked out of the hospital a bit delicatley mind you!! 

      Hope this helps....Helen x

    • Posted

      Hi Helen thank you.   You have explained more to me there than 3 app with consultant.  But I don't really listen now as I know she gunna say make an app for 3 or 6 months can't help ya yet.  But certainly when the time comes I have a bit more confidence in it.  Thank you x
    • Posted

      It's a pleasure Claire. 

      It's really weird not having to be padded up. I still wear a little sanitary pad through habit!! I don't know how long the botox will last, but i do know i won't worry when the time comes to have it again. I suppose i was lucky in as much as i never had any pain. Just the urge incontinantancy, and the only treatments i was offered were the tablets and the botox. 

      Good luck with everything x

    • Posted

      I suppose it's the warning of self catharisation I can't imagine trying to reach there etc 
    • Posted

      Hi I can't help ya on how long it lasts.  I didn't have that choice as I have mixed inconinence so it was TVT 1st Botox 2nd  I am looking forward to being dry and not being paranoid I smell.  X. 
    • Posted

      Oh Gillian that part of it was my biggest worry. You have to be able to self catharise before they do the botox. I did it but hated it. I work in a school and couldn't imagine having to do it there!! Thankfully this time i haven't had to x
    • Posted

      Is Botox free on the NHS or do you have to go private?  question
    • Posted

      Your gp can refer you to a specialist on nhs x
    • Posted

      Thanks.  When I go to see the specialist in January, I'll query this with him.  I definitely don't want the TVT mesh sling! neutral
    • Posted

      The TVT mesh sling is for stress inconinence and the Botox is for urge incontinence   So depends which you suffer with as to what they will offer you.  But if you have urge and you are offered TVT please ask alternatives as there is i don't know what they are of the top of my mind.

      Good luck claire x

    • Posted

      Oh, right!  I hadn't realised that.  Thanks Claire.  It was just stress incontinence when I was originally offered the sling, but now it's both, but the urge one is the worst.  The stress one is now not too bad after coming off the medication 'doxazosin' (I think it was - it's a number of years ago now!) for high blood pressure which made the stress one much worse.

      Thanks again, Kath x

    • Posted

      Tvt can make the urge one a lot worse like I am suffering with now.  70% worse than before TVT sling and it was chronic before hand. I asked on here originally about Botox as to what people thought and if it worked.  But I cannot have it till I get the TVT sorted and hopefully removed successfully.  Then I will research Botox properly as don't want no more complications just want to be dry and normal again.  Good luck x
    • Posted

      Ladies i would recomend botox any day. Before i had it i really had no idea what i was letting myself in fir apart from it involved 20 to 30 botox injections administered into the bladder under local anesethetic. I didn't know if it would hurt. What would happen after....nothing.

      All i can say is that i was desperate by that point and would've tried anything!! My urge incontinence seemed to be getting worse and to say it was getting me down is an understatement!! To make things worse i was (and still am) on water tablets for high blood pressure!!

      When i had my botox i was wheeled into the treatment room. Everything was explained  to me. I was given local anesethetic into the blader. As i watched on the tv monitor i had 20 injections of botox. It didn't hurt. It was a bit uncomfy though. I've had worse. After i was wheeled back. Given tea and biscuits and told i had to wee before i was allowed to go. I was out within 20 mins. I must admit i did walk out of the hospital a bit sheepishly though!!

      Since then everything has been great. I haven't wet myself since. I can now think i need a wee but hold on for a while before i go. No more rushing. I still can't get out of the habit of wearing a pad during the day. I sleep knickerless now!! I'm saving a fortune in pads. I know the symptoms will start up again but hopefully i'll have a few months stress free from all the worry of having urge incontinence. It won't bother me having it again now. 

      Good luck ladies.

       Go for it!!

      Helen

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