Sjogrens Disease and severe mouth dryness
Posted , 8 users are following.
I have sSjogrens ad have for many years now. The other night I was eating and I alway drink before I take a bite of food. I started to eat and began choking on my food which got into my esophagus. It was stuck.i tried to get it to go down and tried to get it out. No luck. I was scared to death and in a panic. I called 911. Heard the sirens and said tis that for me? Yes the paramedics were there they took me to th ER at the hospital. They tried o give me two shots and a nito under my tongue. This was to relax the esophagus. That didn't work so ER doc called in an anatesologist to put me out and a gastrointestinal doctor to do an endoscopy. It was now 5 1/2 hours I was sure I was going to die. I was so so scared. It was sourdough bread. It was so good. But I will never eat it again . I have tried evovox and salavart but had side effects so had to stop takin. I dont kow what to do unless I eat only soft foods. Does anyone have this problem or suggestion for what I can do. I dont want to become paranoid of food because it was so bad. I welcome any help
Thank you kristyk
1 like, 49 replies
jennifer09136 kristyk
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kristyk jennifer09136
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jordan58854 kristyk
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kristyk jordan58854
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lily65668 jordan58854
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We don't eat pretzels where I come from. The only time I ever tried one I thought it was among the most disgusting things I'd ever tasted - so no temptation there!
jordan58854 kristyk
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jordan58854 kristyk
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lily65668 jordan58854
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After three months of taking sea buckthorn oil at the end of last year I noticed a slight improvement in my dry eyes and a marked improvement in tendinitis and joint pains. In fact, the tendinitis has cleared up almost completely, after several years of pain which became disabling in the final year. However, I don't know whether this is really due to the sea buckthorn or whether it would have happened anyway, as my SS has always been unusually prone to flare-ups and remissions. In any case, I plan to complete the current three-month course, started last month.
As already mentioned in these forums, my main concern is that omega 7 only occurs in minute quantities in most foodstuffs (mainly dairy I believe). This may mean that our metabolism isn't really geared to cope with it. As it's only very recently started being extracted, there isn't enough historical data on this. I suspect that if there are any harmful effects they would show up in the liver.
It's for this reason that I've decided only to take it for three months on, three months off. Having said that, I stopped the original three-month trial last November and a blood test taken in March actually showed my liver enzymes to be in a better state than they've ever been!
shaq26875 lily65668
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Could this just a coincidence or is SS causing it to flare?
jennifer09136 shaq26875
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lily65668 shaq26875
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I too was surprised by tendinitis in both upper arms a few years ago. It wasn't too bad for the first couple of years so I didn't take too much notice of it, and didn't associate it with SS either. However, a year ago, after a scary fall down an escalator, I had a really bad flare-up of a lot of SS symptoms, and the tendinitis got very much worse. Someone on these forums (Pam or Christine I think, but can't remember) pointed out that tendinitis (or tendonitis as it's sometimes spelled) is indeed part of SS, which attacks the body's connective tissues.
I went through a very bad year, but am now almost completely pain-free.
jordan58854 lily65668
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lily65668 jordan58854
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shaq26875 jennifer09136
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shaq26875 lily65668
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shaq26875 jordan58854
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lily65668 shaq26875
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I'd be inclined to up your intake of macadamia nuts if you don't want to take the oil.
shaq26875 lily65668
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aitarg35939 shaq26875
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*Please no one start in on me about The Great Cheater AKA Lance Armstrong. I was one of only 2 people in Austin Tx who ALWAYS said he had to be cheating This belief meant I had to keep head down mouth firmly closed in all public situations in order to avoid flogging. I also have always been appalled at the 6-figure salaries paid to Livestrong Foundation employees.
That said, I tend to trust them on health science.
lily65668 aitarg35939
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aitarg35939 lily65668
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Really I was just giving Shaw some additional sources. I read the info on dairy and almost wept because during the 25th years I've drunk only fat free milk I've acquired more and more belly fat.
lily65668 aitarg35939
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I too switched to semi-skimmed milk (which is 1.5% fat in this neck of the woods) 25 years ago when I was half convinced by all the hoo-ha about dairy. I stopped believing that stuff more than 10 years ago, but the trouble now is that I've got used to semi-skimmed and actually find the texture of full-fat milk quite nauseating.
However, I've always made up for that by eating moderate quantities of butter. 40 years ago I spent some time working for the European HQ of what is now one of the most reviled US chemical companies in the world, which shall remain nameless (but is infamous for its work with GMOs and pesticides). They also had a food division, and what I learned there ensured that I'd never touch artificial sweeteners or low-fat spreads for the rest of my life!
I also enjoy full-fat, natural yoghourt and rich cheeses. After reading your post, I checked out the Chaource cheese (one of my favourites) I bought in the supermarket this afternoon: 50% fat! Cue Homer Simpson drooling noises... I've got belly fat too (and back fat and neck fat and scary upper arms) but with a waist measurement of 86cm/34in I manage to delude myself that I'm just about within the limits!
Not that it's only the Yanks who mess about with natural foods, of course. As a matter of fact, when I was walking home this afternoon I noticed a new poster on a billboard near my house. Translated, it said: "Half-fat butter. Real butter!" Really...?
aitarg35939 lily65668
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It's funny, I waffle back and forth on butter. There's always some in the house. For quite a while I've been using a plant oil based spread for toast, potatoes, etc. But I could never convert to reduced fat on cottage cheese. Back in the '80s I read that four-day cottage cheese had health benefits not to be found in lower fat versions. They never said anything about milk fat.
I'm with you on fake sweeteners. Give me the real stuff or I'll do without. I have come to like the erythromycin-stevie combo, but there's nothing fake about those 2.
here's to half fat real butter, obviously taken from the smaller-side udder!
shaq26875 aitarg35939
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thanks aitarg.
shaq26875 aitarg35939
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aitarg35939 shaq26875
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You probably already use these but just in case, if you want to know about parsley and basil helping with GERD, PM me.
Aitarg