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Slowly going insane from ETD

Posted , 12 users are following.

steve1971
steve1971

I am 43, male, living in Southampton and I have had ETD for several years. It is slowly getting worse and I am going insane. Sounds are becomming more and more uncomfortble and now I walk around at work with headphones on and everyone thinks Im an anti social freak. On top of that the loss of sense-of-well-being and GP's only ever wanting to prescribe antibiotics. Crazy ;( Steve

1 like, 49 replies

49 Replies

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  • shaun66375
    shaun66375 steve1971

    Posted

    Hi Steve, sorry been at work all week.  here is the exact device I use:

    Basically put some fluid in your mouth - water, pop etc.  Place the earpopper to one nostril 9Ive got mine set on the high power setting).  Close other nostril.   Then swallow, and at the same time as swallowing squeeze the middle power button for about one second as you swallow.  You can repeat for a total of about 2 popes per ear (according to isntructions), and your ears should pop relieveing pressure, improving hearing and help any fluid to drainaway - I use mine each time Ive got a cold

    Emis Moderator comment: I have removed the link as it was to a site unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

  • shaun66375
    shaun66375 steve1971

    Posted

    yep earpopper by micromedics is what I use
    • marlene21102
      marlene21102 shaun66375

      Posted

      Hi Shaun ,can you answer me a question ,I have perennial Rhinitis ,also tinnitus ,would these poppers be safe with having these conditions ,does it give any info on package ,as to what not to use it for.? Thanks a lot .
  • steve1971
    steve1971

    Posted

    The best thing I have ever tried for ETD (and Ive tried the popper, every decongestant, antioboitc, steroid, anthistamine, acupunture, aspriin the lot, is this

    EarPlanes-Flight-Ear-Protection-One-Pair

    It will give you relieft while you suffer. I now swear by these. 

    thanks, Steve

    Emis Moderator comment: I have removed the direct link. Users can Google the term.

    • jon82247
      jon82247 steve1971

      Posted

      did you ever try Dymista though ? I keep going on about it but it really broke through my ETD in a few days, although mine is caused by my Sinuses (thats the theory to date anyway) and I tried allsorts before too.
    • lylas21
      lylas21 jon82247

      Posted

      I will be discussing the dymista with my doctor because I would like to try the nasal spray! I've research it and it's a combination of azelastine and flonase, and both of those work well! I've always wanted too try a spray with a combination of both! Thanks for the information!
    • jon82247
      jon82247 lylas21

      Posted

      Hope you get on with it, I'm still feeling completely cured. My CT scan (have you had one ?) showed that the overall cause of my ETD is the cartiledge in my nose being an odd shape, which is not alowing mucus to drain normally, so it's going down my throat and probably into my tubes, has been for years, so now I have a simple operation planned to fix it. But the Dymista I use every day still, just in case. I've no need for the ear popper anymore.
  • jason_03617
    jason_03617 steve1971

    Posted

    I am 45  Steve and in exactly the same situation.  I've thought about tuboplasty for ETD, you?
    • jason_03617
      jason_03617 steve1971

      Posted

      It is still a 'new' treatment and their are only a few guys doing it at the moment.  I am not sure thre is any 'NICE' guidance on it at present.  The last person I checked out was a guy in Coventry at the Spire Hosptial (ENT).  The research posted looks promising.  Especially from one of the Scandanavia countries which as produced the primary research.  I have had ETD or whatever it is for fourteen years.  I have gone insane !!!
    • lylas21
      lylas21 jason_03617

      Posted

      You seem to be handling Edt quite well!! Doing a lot better than the average. You give of a good dose of inspiration! Not to mention the information you provide is very useful! I do see relief in the future for you!
    • jason_03617
      jason_03617 lylas21

      Posted

      I thank you for your encouragement lylas21.  I think the steroid sprays etc work well for those suffering from transient, acute or 'minor' ETD.  From my limited understanding, to meet the diagnosis of ETD, then the symptoms may need to be held for years.  Anything else - is just 'something' else.
    • clare48427
      clare48427 jason_03617

      Posted

      Hi Jason,

      I have had some form of EDT for over a year now, it basically feels as if my ears are popping all the time. Some days it is worse than others. On boxing day at a party I had to incessantly hold my nose and breath in to correct the pressure / balance or whatever it is. But it was embarrassing as I am hugely aware of people noticing me do this. If I don't do it the noise in my ears is just weird and distracting and in the end I had to leave the party. It's not that I can't hear it is just super annoying. I was quite peeved to be honest. So up until now I have been prescribed nasonex and in the last few months beconase. Neither really seem to work. I don't have tinnitus thankfully. Do you think the ear poppers will work for me? What about the dymista? Any other thoughts? Clare P.

    • clare48427
      clare48427 jason_03617

      Posted

      Sorry meant to also say in April 2013 I had a little boy. In October 2013 I had some form.of bacterial tonsillitis and a cold / cough etc. The ear popping started after this. I was not told I had ETD till june/july this year up until then I was told it was sinus related and probably a result of an allergy. I moved into our new house in August 2013. It is carpeted through out. I aslo have a terrible habit of smoking 2-3 cigarettes of an evening but have done this for years, however I stopped smoking completely during both my pregnancies and breast feeding. Did the pause in smoking and subsequent restart cause the allergy to form?? Questions questions....i am now at the point where I want to push my gp to diagnose what my allergies are so I can take next steps. There is no way this is going to go on for any longer. I am not leaving parties because of it. One other point to note, I had grommets out in my ears on a number of occasions as a child for glue ear. But since I was 13 I think nothing. Also I had my nose checked for polyps but nothing there. Hope this helps.
    • jason_03617
      jason_03617 clare48427

      Posted

      I think you have to try everthing going if it becomes a chronic condition. My hopes lie on balllon tuboplasty.
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