so frustrated
Posted , 6 users are following.
Ive had lots of issues over the last 6yrs. Pain all over my body, numbness and tingling, headaches, fatigue, weight loss and gain etc. I was diagnosed with fibromyalgia and hypermobility syndrome in July and referred to physio for some help with pain, only to be sent back to the doctors for more tests as he thought there was something else underlying that had been missed. Now im waiting yet again to see an osteopath and have an MRI done. What are they checking for? Im so frustrated and upset about the whole process its really taking its toll on me, has anyone else experienced this sort of thing?
5 likes, 129 replies
kkylie
Posted
We also looked after our boys the same way, he did early mornings and I did late nights. Although thankfully we were blessed with children like me, who loved to sleep lol!
I am not as sore today with shoulders, neck, arms etc so im now wondering should I push it and go for a jog? Or maybe just hit the treadmill for a half hour. I dont want to do too much in fear of starting it off again. But running is relatively low impact for the upper body isnt it? .......😕
I agree frustrated, finding you and george has been a blessing. Talking can heal a great deal of pains as long as its with the right persons. 😆😉
frustrated61 kkylie
Posted
I just wrote you a chapter in my "new" book lol of "Frustration". The page froze, which often happens during peak hours on this site. Briefly, I stated that I felt running has a high level of impact because of the slamming down with each step. Something is bound to take a hit from that (no pun intended) My daugher is an avid runner, running in marathons "for the cause" all over the US. She is intense at times and other times she's running but w/o conviction! I did my share of being a runner in my younger years (pre-children) and found myself going back and forth to the chiropractor. When I started "walking with a purpose", the visits stopped. I would walk somewhat fast but didn't put such a blow to the knees and upper region. Anything we do from the feet up and neck down, effects your spine, don't you think?
Funny, when my kids were little, my husband is a professional photographer (now retiree) and would be out many nights shooting different functions. He'd come in quite late, especially if it was a wedding. I'd be far, fast asleep by then so it actually worked that I would get up early (not always) but in truth, we just did what had to be done..sleep just was a pipe dream when they were babies/toddlers. Neither girls like taking naps, which would have been a savior to me. I always made them either, lie (yes, cows "lay" people "lie") lol in bed for about a half hour or so and either read or do something quiet. They did needed this unwinding time and so did I lol. So, as far as he did this and I did that, it happened at times but most often, since I did go back to school, I'd have the kids while he worked and he'd have them while I "worked" myself through school; what a challenge that was.
Going back to school at age 31, when everyone that started college was the fine age of 18, I felt oooolllllddddd! But it didn't discourage me to quit. It, to me, was a challenge I was set out to accomplish! And 5 years later, I did just that! I was the first in our family to go to college, my brothers were more into the technical jobs, ie: Master Plumber, icky job but someone has to do it (lol) or the others Electrician.
I'm really getting concerned with regards to the pain I'm having. It's between the shoulder blades and up throughout the neck and into the head, I'm having extreme headaches w/i the past two weeks this has started. I had uncontrollable migraines after having lazer surgery on a foreman of the spine, they had to open the nerve root so the nerve wouldn't be compressed. Afterwards, and in the hospital, I ended up with spinal meningitis.
Get this, the hospital released me even though I had a temp of 104 and was complaining of not being able to look down w/o having severe pain. The "stupids" said, oh, that's just the area where the doctor worked on, let it heal. Oh,ok, and am I supposed to have a fever as well, she "felt" my head as opposed to taking my temp. She said, come on, you're being wheeled to the front and set to leave! That was something of a nightmare as when I got home, I started having convulsions and my husband was a mess. He rushed me to the hospital where my daugher worked and they did a spinal tap and low and behold, spinal menigitis. I was extremly ill for a while. I ended up in the hospital for another 14 days then home care for another 15 days or so, I had to have antibiotics via picc-line. I could go on and on how things got out of hand after going home with a home care nurse daily for 15 days, but I'll save you that burden of reading !
Anyway, I have to answer Doc's message. I am so happy to have met such nice, nice, yes NICE! people!
Warmly,
Frustrated
georgeGG frustrated61
Posted
georgeGG frustrated61
Posted
frustrated61 georgeGG
Posted
Okay, I am going to get some much needed sleep. Now it's 3am! what?!
YAY! I get two hours sleep then it's off to get my 3 grandkids off to school and the other 1 back home with us. Then, later, to see my sweet Logan. They are all very sweet! I'm a very fortunate Nana! I also have 3 step-grandkids but they were very young when they joined our family so they are in essence a true part of our family!
Hugs all around to Kylie and Doc pssst, kylie, your turn
georgeGG frustrated61
Posted
kkylie
Posted
I didnt think of running in so much detail, so I guess when you think about it, it does have an impact on the upper body too. The first few times out, I managed to really hurt both my shoulders because of my form. I was using them a lot to try and lift my body rather than using my legs properly. So form is key also!
I have so much that I want to do, and no energy to do it now. I am currently in the planning stages of my second novel lol! I havent even bothered looking for a publisher for the first yet........ although im thinking I might do it myself on kindle. I have recently started making wall art and things out of old palates, I want to go for a run/walk to clear my head and have thought about training to join the police ( but am unsure atm if they would even let me in the door...) ive made some 'hedgehog hotels' for my young sons to decorate (with bits of foresty stuff, all natural) which need to be installed in our forest whilst on a lovely walk....... The list doesnt get any shorter if you add the things that actually need done.....
Ahh, it would be worse if I had nothing to do, wouldnt it? 😃
Kylie x
frustrated61 kkylie
Posted
A second novel! wow! That's exciting. What kind of a read are your novels? I agree, keeping busy, as busy as our bodies allow, is key!
You soundd good today, like finally getting to enjoy I'm happy for you. I hope you have many ahead of you! I'd be very interested in reading your novel. I know you haven't published it as of yet, but let me know when it becomes available either with kindle or a hard copy, a signed hard copy that is lol
Hugs all around!
Frustrated
georgeGG kkylie
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frustrated61 georgeGG
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georgeGG kkylie
Posted
How are you this morning? How did you sleep,well I hope? The pains, a bit easier today I hope? Please drop us a line, even if it is just to say what you are having for breakfast, or to tell us how brightly the sun is shining in your part of the world. Your virtual friend sends you a B I G virtual hug.😀
kkylie
Posted
I was really busy yestarday so didnt get on as after I finished work I collected my kiddies from school, cooked dinner and went to work with the horses for 31/2 hours! I was shattered by the time I got back home lol!
They arent my horses, I help the instructors with taking lessons, and lead on treks, and all the other lovely stuff like grooming and mucking out lol! No riding for me tho as I was feeling a bit stiff so I didnt want to push it too far.......
Frustrated I always spell that word wrong lol! I meant the wooden palats....... no what I mean?? I rip them apart, put them together into different sized picture boards and paibt them..... i love working in the garage!
How are you two doing today??
Much love
Kkylie
georgeGG kkylie
Posted
Yesterday was a great day for you then. Feeding the children and then a half day with the horses. frustrated can breath great lungfuls (sarcoid permitting) of that wonderful baby Logan perfume. Happiness is also great lungsfull of horse perfume and standing in a half dark horse warmed stable listeniing to the horses champing on their hay. I hope you did not overdo it and sully the memories of the day with aches and pains.
I am having a quiet day for I am rather fatigued. Still, just right for sinking into your warm enveloping hug. Hurry as I might the clock runs faster and I slip behind the easiest schedule. Never mind, although I do breakfast every day for I am a morning person, my wife does the hard work of lunch and supper.
Really great to hear from you. Puts a smile on my day - my face too,
georgeGG kkylie
Posted
Here there is a bright sky with very high cloud. The golden sun is just about to come over the rooftops. The fatigue I started with yesterday had given way by mid afternoon and this morning I am feeling irrepressibly uppity. So B I G hugs for each of you. I am so glad you are there and so grateful you arethere for me. So another B I G 😃
kkylie
Posted
Kkylie
georgeGG kkylie
Posted
I am sorry you are not uppitty today but I am glad to have that hug. you mention pollution. There is so much in our land sea and air. I am persuaded that many of our diseases and particularly many cancers and autoimune problems start and are maintained by substances that have no proper place in our bodies and should not have been in the food we eat, the air we breath and the water we drink. If that is not enough, there are also strange substances that touch our skin and are absorb into our bodies through that touch. It has been going on a large scales since the start of the Industrial Revolution. So many years, hundreds of years that we think it normal.
Oh dear, kkylie, that is hardly cheering when you are not so uppitty. So we sharers of adversity must give each other another BIG B I G 😃, What do you say frustrated?