so frustrated

Posted , 6 users are following.

Ive had lots of issues over the last 6yrs. Pain all over my body, numbness and tingling, headaches, fatigue, weight loss and gain etc. I was diagnosed with fibromyalgia and hypermobility syndrome in July and referred to physio for some help with pain, only to be sent back to the doctors for more tests as he thought there was something else underlying that had been missed. Now im waiting yet again to see an osteopath and have an MRI done. What are they checking for? Im so frustrated and upset about the whole process its really taking its toll on me, has anyone else experienced this sort of thing? 

5 likes, 129 replies

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  • Posted

    Hi kkylie and frustrated. I have changed my photo again. That is the golden sun up I wrote of this morning. Plus another 😃 . I hope I didn't squeeze to tight.
    • Posted

      Hello Doc!  Kylie! hello ~

      Been quite out of it the past few and while I've come on with intentions to write, I seem to "die" after reading.  I do appreciate all the uplifting, all-powerful input by the both of you.  I admire each!

      Tomorrow I got for that cardio test which I'm not really nervous because I know I'm in the best of hands.

      Doc, I'm sorry to hear you've been ill for a few days.  For us, a few days of illness, takes realistically, weeks to recover fully.  The fact that some thing (else) invades the already weakend body is really, in mind, what strengthens us but nevertheless, it does take more time to recover.  I pray you are on the mend!  You said you were tired yesterday, take advantage of just relaxing and let your body heal.  Even being online takes a lot of energy from us, when not feeling well.

      Kylie!  you sounded up! I love it and you deserve it.  You mentioned about helping with horses, is this a love of yours, meaning, did you ride before not being well?  Are your kids interested in this?  I know in the US it's a love not realized by many, as it is far too expensive.

      This is going to be a short post but I do promise to post more after I'm feeling on the mend.  This oxygen 24 a day is just too much.  Hopefully after starting treatment, I'll be able to support my own oxygen on my own.

      Anyway, love you two and thank you for always being there!

      Big hugs all around!

      Frustrated

    • Posted

      Hi frustrated biggrin so GOOD to hear from you. I do hope tomorrow's test goes well and leads to something good for you. Meantime I hope you have a bit more energy, enough to give us good big biggrin and have plenty left over for yourself.  So early evening for you, but I am an early bedder and it is lights out as soon as I have sent this off, and loggedoff. Sweet dreams, dear frustratedrazz in a few hours and sweet dreams a bit sooner, dear razzkkylie.
  • Posted

    What are these brown things on the upper right of the reply screen? Ah! bold. italic?The dazling sun specs? biggrin no, a set of smileys. And the odd cake with a cherry on top? O my, its for a photo. Wonderful. Time for another 😃
  • Posted

    Aw frustrated, hopefully all goes well for you! I was always brought up around horses. But never did much riding. My uncle trains show and race horses so I was always round his yard grooming and mucking out and feeding them. Then about a year ago I went to a horse farm where my sister rode and volunteered to help out, and sort of stayed there...... Ive done a bit of riding which is how they pay you back for helping, which I do love, but sometimes im not able to all the time as it hurts my old bones lol! 

    George I hope your good mood lasts forever! Its such a nice change from being in a dark place. Maybe ill get there one day, but im stuck in limbo at the minute lol! A bit like you frustrated. 

    Much love and many hugs xx

    Kkylie

  • Posted

    Good morning kkylie and good morning frustrated,

    first let me acknowledge that you both have a tough row to hoe and frustrated a rougher patch at least so since we got together on this discussion. It is only 9 days but it is so important to me that I feel like we have been  together for ages. Today is a bright windy day full of Autumn colour . I am adding another photo for you. I am busy with my water practice. I must be able to drink four plastic drinking cups full over 20 Minutes and then no trips to the bathroon for another 20 minutes. I manage that fine. Men who already have waterworks difficulties can find it very difficult and uncomfortable. By half way though the treatment I might not be quite so cocky. Ah well it is in persuit of a cure which is not easy with PCa.

    wishing you both much joy through the day. Your friend in troubles

     

    • Posted

      What a gorgeous picture!  Our colors haven't changed that drastic as of today, but then again, it's Michigan, weather changes by the hour!  I see a slight tip of yellow but so far that's it.  It's behind a little from previous years.  I know further north it's all in full fall colors so it may just be a matter of time.

      here's my new addition, unfortunate we cannot send via email because I'm not liking this out in open fourm, but he's a sweetheart so here is my recent joy.

       

    • Posted

      Thank you frustrated. It is good to say hello to little Logan. (Perhaps when kkylie has seen him you can get the moderator to delete the photo.)
    • Posted

      Good idea, Doc.  I just did ask Alan to delet that picture.  I love that lil man...his eyes are so wide open now.  Could I ask you and Kylie a favor?

      Could you ask Alan (Mod, Emis) if he'd add that icon in the private messages for pictures to be allowed?? Thank you!

    • Posted

      I've deleted the picture and will ask about adding the image upload to Private Messages. In the meantime if users are happy to you could exchange email addresses via the message service.

      Regards,

      Alan

    • Posted

      Many thanks Emis. Yes, it is an appropriate way to pass an email address. I should think that would need to be the prime purpose and the risks having been tought through. Passing a photo of a face needs rather less care. The open route was I understand very much second best. I should be glad of the option to post photos with private messages. You might like to consider adding an automatic deletion period. I expect most photos will be topical.
  • Posted

    I hope all goes well/went well with your treatment george, its a long And horrible road sometimes to be ill, but chin up and look forward, thats all we can do i suppose..... have a great day tomorrow and let me know how you are? 

    Regards 

    Kkylie

    • Posted

      Thank you kkylie,

      That will serve most sweetly as a goodnight kiss, for it is time to turn out my light. Goodnight, kkylie, Sleep well.

    • Posted

      Good morning kkylie and frustrated, 

      It is dark yet but I have an early start to a busy day.  Its the Planning meeting. The longest session so I will not be back to the forum until this afternoon. I have new things to learn but mostly I understand that I will be lying on my back on a hard bench under a scanner with the duty of keeping still with a full bladder. The radiogrphers do all the work getting me in exactly the right position for the treatments. I must be exactly in the same position every time and my prostate and my rectum-very nasty if they fry rectum or bladder and you don't know for a year or two if they do. I can take my own music but listening to music with background noises is very irritating for me. Deafness is a misery. So I shall lie quietly and think of the girls in my life-my loyal, loving sensitive wife,and my e-friends kkylie and frustrated. And my Lord who loves me and gave himself for me and brought me these three lovely supports. I hope to write again much later today. Meanwhile I hope you find some joy amidst your trials. Your loving friend, George

    • Posted

      Doc..Doc,

      I hear a loneliness in your words.  Do not despair my friend, you are never alone.  I can't imagine what you are going through but just the time we've been able to talk, you seem strong and a very wise man.  God Bless our partners, right?  I've found solace in the words you shared with me when I was at my low. Thank you.

      Kylie, I cannot thank you enough for opening this discussion as it brought 3 people together that otherwise wouldn't have had this opportunity.  You've given me strength.  I feel like I've lacked in this area for you.  You're in my prayers that whatever your needs are or if you need strength, that can happen for you.

      Doc, sometimes, I found, that by going as low as one can possibly go, the light finally shines.  It is my prayer that you are taken care of and that you can live a long, well-loved life. 

      I'm at a loss for words now, I'll let this sit and perhaps come back in a while.  Know that I'm thinking of you and Kylie.

      Your friend, now and everafter!

      Frustrated

    • Posted

      Dear frustrated,

      That set the great tenor song in the film Student Print ringing in my head. I value friends but never have liked to have a great crowd of them. Now with marked deafness my activities are greatly curtailed. I have been using two aids for many years now. Worse, I am sensitive to loud noises (hence the old joke 'don't shout, I am not deaf'.  That cuts out cinemas, many restauants and all but one evangelical church in my district.I find it true that deafness is more isolating than blindness. I don't think blind people are blamed for not seeing. Deaf people often are  for not hearing. eg "Of course you knew. You were there." etc Communicating by text then is a joy for me.

      Amen, frustrated. Where would we be without our partners. We have them by the Lord God's good wisdom for he knew it was not good for man to live alone. And there is the answer to the cynic's unbelieving question, "Did Adam have nipples." I answer, "Of course. God knew he would make Eve.

      And yes, yes YES. I afirm it gratefully again. I believe she was inspired by God's good grace to open the discussion and that by that same good grace we were brought to join in. I bless kkylie for blessing us in opening this discussion.

      Thank you for that encouragement, frustrated. I do feel well loved. The number of years ahead of me does not worry me me so long as I see my wife safely homeward as she desires. She loves me so well it is the least I can desire and pray for her. So my prayers in this respect are not born or misery but hopeful expectation.

      Many thanks frustrated, your friend George

    • Posted

      That was beautifully said, Doc!  I will address more tomorrow or rather most probable early this morning.

      Sleep well both of you, Kylie and Doc!

      <3>

    • Posted

      Oh frustrated, that overdue-bedtime-bug-eyed smiley made me chuckle. A great way to start this Thursday morning.

      BIG big BBIIGG hug cheesygrin from Doc!

    • Posted

      Hi Kylie ~

      I'm hoping  you're doing well.  I haven't received any notices of activity in this discussion so I thought perhaps you're taking a break or something.  Anyway, I hope you're doing well.

      Frustrated

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