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So mad and fed up!

Posted , 14 users are following.

shirley84100
shirley84100

Just had a lovely morning walking round town. No Vaginal discomfort, felt great.

Now this afternoon its a different story! Sore sore sore!! Don't want to do anything or go anywhere.

I've had this Vaginal Atrophy for over a year now. Yes I get some good days in between. But I don't know if that's not worse than having it bad all the time - because on good days I am hoping and praying that the problem is resolved, then it comes back again!

I saw the Doc recently as neither the GINEST or Vagifem worked for me. She told me there was nothing else to help!

So then I went to the chemist and she said I should see Doctor again, even though i'd just told her the doctor said there was nothing more they could do for me!!

I've got lubricants to use but they don't stop the problem coming as there is no hormones in them is there. Also they don't stop the wanting to wee all the time either.

So sick of this. I get up in a morning wondering if I am in for a good day or bad day. Was going to the Supermarket this afternoon but the VA completely put me off.

Thanks for listening

Shirley

2 likes, 346 replies

346 Replies

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  • jools72842
    jools72842 shirley84100

    Posted

    Hi Shirley , just wondering how you are coping , things mostly the same with  me , still taking it a day at a time  xx

     

    • shirley84100
      shirley84100 jools72842

      Posted

      Hi Jools, Things pretty much the same although the Vit E Suppositories help with the Vaginal soreness and dryness. Don't know if you saw a few weeks ago that I tried Ovestin HRT cream one Saturday night. Mistake. It's meant to get rid of the soreness, not make it worse, although having said that, I couldn't expect it to work the first time I used it either. But honestly, that night I felt like someone was directing a blow lamp up there!! Hardly slept all night so I won't be using that again. That's three lots of HRT that don't work sad

      As I am sat here now I can feel that bladder or urethra discomfort. Only consolation is its not as bad every day.

      I've got another Docs appointment on Thursday. Not that it will make any difference. So yes I'm taking it a day at a time.

      How are you doing? It's really not easy is it.

      Shirley

      x

    • nancyo
      nancyo shirley84100

      Posted

      The coconut oil has been working for me. Use it every time I go to the bathroom. So far it's working
    • lee12629
      lee12629 shirley84100

      Posted

      Hi glad to see your post was wondering how you are.I get this achy dull feeling i believe around the vaginal opening..im thinking its irritation from dryness or maybe the opening is shrinking.Kind of had the same feeling when i was going to get my period..no stomach cramping but achy down there.im going in next week to..im in the US my husband ins plan at work is changeing and get this the best plan has a 6000 deductable..i hope i get this figured out soon. Cant afford with that policy to go very often..just what i needed..sigh.
    • lee12629
      lee12629 nancyo

      Posted

      Thats good to hear..think i will try it next week.the vit e on the outside feels sticky.
    • shirley84100
      shirley84100 nancyo

      Posted

      Glad the coconut oil is working for you Nancyo. Are you just troubled with the soreness and dryness though. I get the bladder/urethra discomfort too and of course the oils etc don't help with that side of the problem.
    • shirley84100
      shirley84100 lee12629

      Posted

      Hi Lee, Good to see you here too. I don't use the Vit E Suppositories every day as they are too expensive. I am using them twice a week at the moment to see how I get on. Hope you are doing OK.
    • nancyo
      nancyo shirley84100

      Posted

      Hi Shirley.  U r right but so far I have had few weeks of bladder issue being quiet.  I am down to once a week with Premarin.  But each day who knows.  I dread another uti. Wish I knew what brings t on but stress doesn't help
    • lee12629
      lee12629 nancyo

      Posted

      Do you just use the premeran on the vulva and Not internally..im thinking of maybe trying that first.
    • shirley84100
      shirley84100 nancyo

      Posted

      Oh now that sounds interesting nancyo although the Premarin will be helping where any bladder issues are concerned won't it. But I'm really pleased you have had a few weeks of the bladder issue being quiet . That's great. I dread another UTI too and I do sometimes feel like that UTI is coming back, then the next time I visit the bathroom its gone! It's like its trying to fool me but it has me on pins when I get days like that. I'm hoping that by keeping the inside of my Vagina so its not dry and sore, will help keep the UTI'S away.
    • nancyo
      nancyo lee12629

      Posted

      Lee, I am trying to cut down on the premarin, really afraid of cancer,,, so I use it once a week internally and put some on the vulva if I feel like a uti or frequent running to the bathroom.  Hoping to go to twice a month but if the itching and pain start its back to twice a week...  
    • nancyo
      nancyo shirley84100

      Posted

      Shirley, I feel the same thing, so sure I was getting a uti then nope ... every day without pain is a gift... I too hope the coconut oil will keep it not so dry and keep the uti's away... its awful because each day you don't know how you will feel...
    • shirley84100
      shirley84100 nancyo

      Posted

      Hi Nancyo, Same again this morning! Went to the bathroom just after 8.30am and had that slight UTI feeling again. Then the next time I went a couple of hours later, that feeling of a UTI possibly building up had gone again. This happens most mornings so I end up dreading my next bathroom visit in case the "UTI feeling" is much worse! Hopefully your coconut oil is helping you avoid UTI's though like I'm hoping my Vit E Suppositories are doing the same. You are right though, we never know how we will feel one day to the next. Or in my case, I can even feel awful in the morning and better by the afternoon and vice versa. So up and down. No rhyme or reason to any of it. You are so right, any day without pain and discomfort is a gift.
    • nancyo
      nancyo shirley84100

      Posted

      Shirley. Wishing you a good day. No answers fromr doctors. They just have no answers Like we are on our own to figure out what works.
    • lee12629
      lee12629 shirley84100

      Posted

      Wondering shirley if it burns more first thing in the morning because the urine is stronger and more concentrated on waking up?Then you get more hydrated and it doesnt burn as much?
    • shirley84100
      shirley84100 nancyo

      Posted

      Hope you are having a having a good day too. You are right. The docs don't know the answers and we are left on our own to figure it out. I'm going to try the sepia tablets I got this morning.
    • shirley84100
      shirley84100 lee12629

      Posted

      Yes that might answer it Lee. It is stronger and more concentrated first thing in the morning. Just going again in a minute. Will see what happens.
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