Socially isolated?

Posted 9 years ago, 9 users are following.

lisa52101

lisa52101

ive noticed when reading through conversations on here how socially isolated many of us are. I'm wondering whether it's been a choice to have a few good friends who don't always understand what we're going through, or that fibro has isolated us. We can't go out the way we used to and I know from experience that we can't plan anything because we don't know how we will feel. I know I'm far more isolated than I used to be.

4 likes, 132 replies

132 Replies

TeresaJS lisa52101

Posted 9 years ago

Friends? Were they really friends? No, they don't understant and are not willing to. And family BTW not much more either.
So, yes, it makes everything worse. Support can heal almost anything.
Tragic isn't it?
- kaz_40 TeresaJS
  
  Posted 9 years ago
  
  Hi Teressa My friends and son dont understand what Im going through or care. having support is what we need with our condition but getting that support and understanding is another matter? True friends would give you that support
- TeresaJS kaz_40
  
  Posted 9 years ago
  
  Yes, i agree. reaching midlife, having this condition (hate to call it disease), losing so much and realising that maybe friends were not quite so has led me in to a quite bleak journey I must say. But I belive, I have to, that there's a purpose for all this.
- kaz_40 TeresaJS
  
  Posted 9 years ago
  
  its certainly been a bleak journey I agree. none of us know whats in store for us in life we have to take the good with the bad in what ever life throws at us and battle on as best we can. I was once told by some one their is a reason for everything
- TeresaJS kaz_40
  
  Posted 9 years ago
  
  I hope we can all make sense of what we're going through. XX
- kaz_40 TeresaJS
  
  Posted 9 years ago
  
  we can but try to make sense of it theirs a reason for it? take care gentle hug
shelagh6 lisa52101

Posted 9 years ago

Personally I don't see anyone other than my husband for weeks on end, I don't leave the house except to the garden. It's the beginning of the show season for us so we go to Dog Shows but I think people are getting sick of me talking when I'm there, I go over the top so next show I'm going to zip it and throw the key away!
hope you had a great weekend Lisa, gentle hugs
- kaz_40 shelagh6
  
  Posted 9 years ago
  
  Hi shelagh I only get to go out on a weekend when my husband takes me out. my husband my youngest son are the only people Imainly see. as for friends I dont see them oftern they dont understand my illness and dont want to understand it. I just take each day as it comes and get through it as best as I can with support from my husband and the ladies on here. on here we all know what its lie to have fibro and what each other is going through take care
- TeresaJS kaz_40
  
  Posted 9 years ago
  
  I have to say, from experience and also because I've also read about it, that pampering ourselves and dressing up boosts endorphins and oxytocin. All feel good peptides and hormones. So that's a good excuse to get out of the house and go to concerts, expos and so on. There's always lots of things going on some of which are free. Maybe finding like minded people to attend these events is a way to get out of closed circles many of us are in. Also joining a choir, a reading circle and thigs like that can make us activate right brain funtion which is in itself healing.
  Maggs: you've got to make the Poets Society!
- kaz_40 TeresaJS
  
  Posted 9 years ago
  
  The more we can keep our brain activated the better like you say joinig a choir reading group etc is a form of helping to heal. ANything we can do to help us in our daily fight with fibro is a good thing
- TeresaJS kaz_40
  
  Posted 9 years ago
  
  Everyone's got a hidden talent... as we can see from Maggs
- kaz_40 TeresaJS
  
  Posted 9 years ago
  
  I Id love to be talented like maggers with poems, I use to love poems as a child growing up. I agree I think weve all got a hidden talent
- Maggers kaz_40
  
  Posted 9 years ago
  
  Im not talented - just write what I feel in my heart. Try it you will be surprised. I can put it down on paper even when I am foggy brained. Its how I came to write because the spoken word was lost somewhere between brain and mouth. It was a case of necessity!
- kaz_40 Maggers
  
  Posted 9 years ago
  
  Im finding Im having to write things down all the time now, I will give it a go and see how I get on
- Maggers kaz_40
  
  Posted 9 years ago
  
  Go Kaz I never intended to share mine but glad I did as so many seem to identify with them. They were written before diagnosis whilst negotiating Limboland.
- kaz_40 Maggers
  
  Posted 9 years ago
  
  you writing what you did and doing it from the heart all that you were feeling experiencing and sharing it with us was everything I was feeling and could relate to it so well. im so glad you shared it with us.
- TeresaJS Maggers
  
  Posted 9 years ago
  
  I'm not talented, .... really....
- kaz_40 Maggers
  
  Posted 9 years ago
  
  Hi Maggers I was a wake all night last night again, so 2.30 this morning I had a poem going round and round my head so put pen to paper. Ive put it on the forum let me know what you think. hope your not in too much pain and having a good day and getting some free vitamin d. take care

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