Socially isolated?
Posted , 9 users are following.
ive noticed when reading through conversations on here how socially isolated many of us are. I'm wondering whether it's been a choice to have a few good friends who don't always understand what we're going through, or that fibro has isolated us. We can't go out the way we used to and I know from experience that we can't plan anything because we don't know how we will feel. I know I'm far more isolated than I used to be.
4 likes, 132 replies
tiggers1 lisa52101
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lisa52101
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kaz_40 lisa52101
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Maggers lisa52101
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kaz_40 Maggers
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Maggers kaz_40
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kaz_40 Maggers
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kaz_40 Maggers
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Maggers kaz_40
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kaz_40 Maggers
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bronwyn97278 lisa52101
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lisa52101 bronwyn97278
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He "nana?"
Me "yeses?"
He" I love you nana. Wish I could spend aaaalllll day with you"
Me" I know sweetie, but maybe one day"
He" I know, we could have a picnic and everything"
Me " well maybe one day"
He "It's not fair nana, your always poorly. Can I make you better?"
And so on, but this exchange made me realize that by no fault of anyone's the most I could promise him was an hour or two, where there are lots of people and away from either of our homes. All he wants is a whole day with his nana having a picnic. I have on occasion even had to cancel this precious time that I have with him and his mum. All because the combined effect that the conditions I have on my body can take their toll.
I admire the people that have fibro and other conditions, who can still function socially and with regularly. When my mum turned 65 she developed breast cancer for a second time and was having chemo and radio at the same time such was the aggressiveness of this recent bout. Despite this she continued to work full time between treatments as an area manager of a high St chain. I could barely function with no name as to why. That was almost 5yrs ago, and she beat cancer again for the fourth time. I think if it wasn't for her and the fight she put up I would have given up on myself a long time back. Now I think if she can fight like that at her stage in life then I dam, sure I can too.
Does it make life easier? No.
Does it still make us demoralised and frustrated? For sure.
Im not sure what I'm really trying to say here except there are times when it really hits home how much we miss out on, but how determined I am to keep fighting against the isolation. Your right it really is like living a roller coaster.
Hope yourweek goes well and gentle hugs.
bronwyn97278 lisa52101
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kaz_40 bronwyn97278
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christine26761 lisa52101
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kaz_40 christine26761
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christine26761 kaz_40
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for them...:-) xxx
kaz_40 christine26761
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christine26761 kaz_40
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..have a lovely day..:-) xxx
kaz_40 christine26761
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christine26761 kaz_40
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