Posted , 5 users are following.
I'm not going to go through everything I've already said up here so, I'll start with...
Where can I go if whatever parasite is in me if it doesn't show up in XRays, blood tests, and /or fecal exam? Its been 3 yrs and I'm otw to saying *screw it, if no one wants to believe me.. They can exam my body after I commit suicide *
1 like, 18 replies
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Patient NoHopeLeft29
Posted
Hi NoHopeLeft29
We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.
Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.
If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.
Kindest regards
Patient
NoHopeLeft29 Patient
Posted
Well considering no one has offered up any ideas, or even discuss it. I guess after 3yrs of this and no1 believing me... My cat dying, both of my dogs having trouble breathing and the fact this happened right after I came back from the hospital (because of a *brain stem* stroke... This has been holding me back from getting better.. Examples
Can't breathe worth a crap so I can't talk as long periods, like I could in the hospital or as loud
Not as physical as I was in the hospital... My therapists used to brag about me to every one (without being asked and that including my doctor) to my outpatient therapists saying I'm pretty much undoing everything I've accommodation, this is holding me back from walking any better or as good as I was in the hospital (considering its keeping me stuck in this wheelchair and keep me from getting Botox in my ankle to help me walk better *with help*
My hair falling out, my big toenails turning yellow
Me seeing things in my food
Having a g tube that constantly hurts
A stomach that always hurts.. Back
Gaining weight after I get up every morning
Everything I sit on feeling like it vibrates 24*7 (including my chair, bed, couch... Even the seats in car)
Feeling like I opened a hotel for insects like creepy crawlers with dozens of legs under my skin.
Always being cold
Skin always dry
There is too many things to list..
Oh yeah, either seizure or what they said were 3 different mini strokes
Feeling like I'm the tin man without oil were my smile is because it HURTS for me to yawn
My dog always scratching the same ear.... She scratches her but on the ground /floor..
I've been to the behavior center in the hospital a few years ago when I was raped then ran my car off of a 30ft drop, so of course they committed me* not my choice
So I have all the "tools" to help myself, but thank you.
My life is falling apart.
Ash
jason06244 NoHopeLeft29
Posted
Hello Ash,
Are you from the UK..??
There is a special parasite hospital that only deals with parasite infections it's based in London,
Here's there web page try them or get you're Doctor or Hospital to refer you.
https://www.uclh.nhs.uk/OurServices/OurHospitals/UCH/HTD/Pages/Home.aspx
jason06244 NoHopeLeft29
Posted
This is another one of the web pages.
https://www.uclh.nhs.uk/OurServices/ServiceA-Z/HTD/Pages/Home.aspx
sammie2help NoHopeLeft29
Posted
NoHopeLeft29 sammie2help
Posted
Oh yeah I can. Its on another reply, don't know much about this page so let me know if you can't see me reply to any random person. And THANK YOU for the advice.
Ashley
jason06244 NoHopeLeft29
Posted
Hello 29
I'm still going through a parasite infection myself it's living hell when you have one,
They keep making you ill and and giving you allsorts of symptoms they mimick general health conditions and yet when they look or run general test don't find anything wrong, They won't you need special tests to find them which i'v just found out myself after going through it for 3 years now, I't weren't till i saw a private consultant he when over my notes and said there's indications of some kind of parasite infection going on even the hospital didn't know what was wrong with me just kept saying there's nothing wrong.
When you had a stool test was it a comprehensive one or standard one if it was a standard one there useless as they don't pick up on all parasite infections and only show live parasites not dead ones,
My private consultant told me that, Also if you're under the hospital get them to do these as follows,
Mycoplasma,
Eosinophils,
Serology parasite blood test,
Blood smear looking for any kind of blood parasites,
ELISA blood test,
NoHopeLeft29 jason06244
Posted
T*You SO much
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jason06244 NoHopeLeft29
Posted
Lol Ash,
Another thing you get like i had is burning raw sensations all through you're nerves everywhere,
It really hurts, I found out that's because they lay on the nerves feeding on the emiasin not sure if that's how you spell it, Your nerves react to it trying to get rid of them that's why you get burning sensations all through the nerves, I had it for weeks not got it now unless they have done nerve damage that's why i can't feel it anymore,Did you get stiffness and bloating in your upper intestines..?? I'v still got that and soreness and always feeling strange not quite right,I had 3 seizures and the hospital specialist didn't even know what was causing them.I get bad pins and needles really easy now, The hospital kept thinking it was my heart and i'v had every heart test possible and there's nothing wrong with my heart i even told them that lol, I see you had strange vibrating feelings i'v had them also and tingling sensations all over, The vibrating feelings have gone now well not get them so much, I hated it.
jason06244 NoHopeLeft29
Posted
Allso if you have not had them done get your B12 B9 which is Folate and Vit D checked as parasites rob you of those they absorb 80 precent of those, Mine were so low it nearly killed me specially my B12,
Everytime they treat them your find they will go back down again low and Doctors will keep giving you pills but won't find out the cause, Oh and Parasite infections can make you have suicide thoughts they cause brain problems in some cases i had those thoughts and it scared the hell out of me ,They will then try and blame it all on mental health and that's the cause,don't let keep at till they listen,
jason06244 NoHopeLeft29
Posted
Guest jason06244
Posted
jason06244 NoHopeLeft29
Posted
Hello 29,
Do you have these symptoms like a cold or sinus infection but you don't have them,
Parasite infections cause them they mimick them as though you do have them,
Also do you get alot of dry skin specially on the head they cause that also,
And they cause alot of itching sometimes you get flare ups of it,
I'v found it always starts right up after you get muscle twitching and tingling sensations all over your body.
Do you also get any bad sugar cravings that always seem to start up at night time in the early hours..??
Guest jason06244
Posted
I've read soaking you head in warm water with brown onions in it helps relieve your head I've been lucky that part has stopped irritating me for now///
jason06244 NoHopeLeft29
Posted
I see you've had Xrays done there useless against parasite infections they don't pick them up because there to small to be seen, Hospitals won't tell you that though, I see you have breathing problems and i bet they have done lung Xrays and found nothing wrong with you're lungs, again they won't find general lung problems because parasite infections can cause breathing problems also,They mimick lung problems,Have you had any ear problems like ringing or rumberling sounds in you're head that don't seem to stop and bad ear pains like a ear infection and yet when they look it them find no signs of any infections.
Again parasite infections can cause ear problems and pain they lay on the nerves which causes pain.
Guest jason06244
Posted
You are so right Jason with all you have said!!! But I will say that I've had so many X-Ray's ultrasounds and CT scan but just before mine broke out I was in hospital as I injured my back and neck down at the snow came back and seen my doctor sent me for all scans then went to see my Physcologist and he could see how much pain I was in so canceled my appointment and suggested I see his doctor at the clinic that day lucky I had my scans with me funny thing was this doctor was asking me had I had suffered from kidney liver or lung diseases I stated NO so obviously something had come up on those scans but as a new patient he did all bloods and a diabetes test all good but when I went back to see him after my outbreak he did nothing just said I had scabbies which we new wasn't true as I had been working with a few friends and my pharmacist gave me cream and some tablets and sent me on my way no test nothing!!! anyway back at my original doctors and finally a few of my sores had turned to Staph/Sepsis so getting treatment for that had a long talk with him the other day and yes he talked about parasites and worms and how you get them and I'm like well I know I've got them why are you finally listening to me now but yet you are still not treating me for them SO I ASKED HIM WHAT DO I HAVE WHAT DO YOU CALL THIS LOOK AT MY BODY I WOULD NOT DO THIS TO MYSELF A SECONDARY INFECTION WAS THE BEST I COULD GET OUT OF HIM YET I HAVE BEEN TRAVELING THE WORLD FOR OVER 2 YEARS ON AND OFF AND HE WAS EXPLAINING SITUATIONS I HAD BEEN IN AND IM LIKE YES IVE DONE THAT AND BEEN THERE BUT STILL WOULD NOT PRESCRIBE PARASITE MEDICATION AS ALL TESTS COME BACK NEGATIVE!!! ONLY THING THAT IS CONSISTENT IN PLAYING UP IS MY BLOOD GO ALL OVER THE PLACE!!!
jason06244 Guest
Posted
So true Karen,
Do you find that when you keep going back to the hospital or doctors they keep going over the same blood test instead of doing others to find out whats going on, They keep doing my B12 B9 and Vit D bilirubin and haemoglobin or they keep saying nothings wrong with but you know there is because you feel really strange and not well,There mean't to do follow up blood test to find the cause not leave it,
It's so hard to get them to listen when you say you have a parasite infection they always try and blame it on something else, I'v been going through it for years now it weren't till i saw a private consultant and he when over my notes he said there's signs of a parasite infection going on,If only the hospital listen to what you tell them i even had seizures out the blue which i'v never suffered with till i got ill,
Parasite infections can cause seizures and all kinds of health problems.