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Hi, I am not a COPD sufferer but I do suffer the disease with my mother who at 56 is very young to be at an advanced stage. I came onto this site looking for information on why she had suffered another acute exacerbation, which is her second in 6 months and I thought I would post my experience of the disease in the hope that it might help someone else in my position.
My mother smoked for 30+ years, and at 45 was diagnosed with emphasyma, and then later COPD - which with my father she has dealt with quite admirably. In the past year, I have noticed that the disease has taken a real grip on her and that her quality of life is taking a real rapid downward progression, meaning that she is pretty much bedbowned and realiant on my father for everything. I cannot imagine how she feels, but I try to understand by discussing it with her when she is able to although recently I have found that I try to talk about anything other in an attempt to keep her spirits up, which I am sure is a battle in itself for her personally.
Since the condition has taken hold in a major way, she has had a lot of medical attention from our local GP and the respitory specialists at the hospital. She has been on a transplant list for almost two years now and has been contacted twice to go for the transplant, but unfortunately has not been able to have it as she was on antibiotics the first time, and the tissue type was not right on the second. Still she remains positive, and never gives up hope. I am amazed at her inner strength.
As I mentioned before, I came onto this site for information as my mother has been admitted into hospital due to an acute exacerbation which I am struggling to understand. My father cares for her exceptionally well, so much so that the doctors but a lot of trust in him to manage my mothers condition and together they do a great job, so when she goes into hospital I am always left confused as to why this happens. It is not easy at all seeing her on a hospital bed with O2 tubes and antibiotic drips surrounding her, and she looks so frail and weak - and quite scared, which is totally understandable. I put a smile on for her, and chat about whatever I can which helps her I think, but when it comes down to it I am scared too so I hope that does not show.
I don't believe my mother has long left and trying to comprehend the inevitable is the hardest thing about the condition but I do not suffer it... I would really appreciate some advice on what happens with acute exacerbations and on a more personal note, what sort of thing my mother is going through in her own mind as I am sure its unbelievably frustrating and horrific.
Thanks for reading this
A concerned son,
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